Crohn's located primarily in the rectum & sigmoid - Anyone?

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Kaycie
Regular Member


Date Joined Jan 2006
Total Posts : 449
   Posted 12/13/2008 10:44 AM (GMT -6)   
They've yet to find it in my small intestines, but I have classic Crohn's symptoms - fistulas, abscesses, skin tags, fissures, etc.......

Anyone else battling Crohn's in the rectum and/or sigmoid?

My surgeon had the "surgery" talk with me on Thursday. Not that it's anytime soon, but he wanted to discuss it with me the reasons to do surgery since I am failing major drugs now and have become dependent upon steroids and yet I have to be off steroids for other medical reasons. This of course means an automatic ostomy of sorts. I don't qualify for a J Pouch or Kock Pouch....

Would love to chat about your location of your disease and what drugs you have done. From the get go I was informed that with Crohn's in the location in which it is, it is the most painful AND the hardest to control. Do you have the same issues?
Kaycie - Age: 26
Crohn's - Dx Nov 05
Failed Remicade, moving onto a Clinical Trial called ABT-874 - Tentative start date - 10/2/08 - 10/16/08  - Infusion, every 4 weeks.
IVF #1 (In-Vitro Fertilization) - Failed
IVF #2 - IVIg, Heparin, Baby Aspirin - TWIN GIRLS!!!
Reagan Dawn - 8/2/07 - Lived 1 hour 27 minutes due to Cloaca, NOT affiliated with my Crohn's
Addison Maria - 8/2/07 - 13 months old


CrazyHarry
Veteran Member


Date Joined Mar 2006
Total Posts : 1034
   Posted 12/13/2008 3:35 PM (GMT -6)   
that is where mine is/was. i ended up having the sigmoid removed cos i had a fistula to the bladder. the surgeon was good and allowed me to keep the rectum. i ran into troubles shortly after that and was looking at a colostomy which prompted me to natural measures and is how i found the makers diet. that has helped me more than any drug ever did. i do get abscesses from time to time, but they are minor.
Crazy Harry

---------------------------------------------
Crohn's since 1993 (17 yrs old then)
surgery in July '05 - removal of 2 inches at ileum and 8 inches of sigmoid colon (had fistula into bladder)
Nov '05 developed colonic inertia; July '06 told i needed ostomy surgery
began maker's diet in August '06 - now feeling the best ever with no symptoms of colonic inertia and i kept my colon
med free as of 10/31/07


pb4
Elite Member


Date Joined Feb 2004
Total Posts : 18012
   Posted 12/13/2008 3:58 PM (GMT -6)   
Yup I too have crohn's colitis which is CD affecting the colon where UC typically hangs out (col=colon, itis=inflammation). For me it's been flaring in my colon my entire 17 yrs, in the beginning when I first got sick it was in my TI (small intestine) my colon, my rectom (proctitis) and my anus with perianal crohn's skin tags)...it has stayed constant on my anus with the tags and my colon, comes and goes in the rectom but hasn't affected my TI since after the first 2 yrs of getting sick (17 yrs ago now).

The same meds used to treat crohn's colitis are used to treat UC as well, personally I have no luck with traditional oral meds because I'm either allergic or non-responsive, pred was about the only thing that worked but no longer has any affect.

I use naturals (anti-inflammatories, fibre supplements and probiotics) along with altering my diet and regular exercise which has helped me quite a bit (I also have IBS).

:)
My bum is broken....there's a big crack down the middle of it! LOL :)


dunny2
Veteran Member


Date Joined Jan 2007
Total Posts : 3200
   Posted 12/13/2008 4:45 PM (GMT -6)   
I have it in the ileum and the sigmoid. Having a colonoscopy on Thursday to see if surgery is indicated again.
Vicky

Too many years with CD
Two bowel resections, several obstructions.
Fibromyalgia and recently diagnosed with chronic pancreatitis and lupus.
B12 Shots bi-weekly

Laughter is the brush that sweeps the cobwebs from our hearts...


Julia Hill
Veteran Member


Date Joined Mar 2008
Total Posts : 503
   Posted 12/14/2008 10:53 AM (GMT -6)   
Hi,
 
I have had periannal crohns for 29 years.  The only drug that really made a difference was remicade.  It healed the crohns ulcers and closed a fistula track that I had.  I would definately think about this as it really did help me.  No drugs are without there side effects, so talk to your Dr. and come up with a solution for your needs.
 
Take Care,
Julia
 

justjenjen
Veteran Member


Date Joined Nov 2003
Total Posts : 518
   Posted 12/14/2008 11:23 AM (GMT -6)   
Been there, done that for 15+ years. I finally caved and got a permanent ileostomy and for the first time ever I'm in remission. --going on 3 years!!! Granted my biggest fear is of it coming back in my small intestine (I did have about 3 inches of it inflamed at the time of surgery) but even if it does come back, had I not done it I wouldn't have even had these few years of health.
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