just diagnosed with crohns

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sulleysullivan
Regular Member


Date Joined Dec 2008
Total Posts : 44
   Posted 12/14/2008 12:56 PM (GMT -7)   
i'm 19 years old just diagnosed with crohns everything is kinda freaking me out ha ha there's just so much to know and i dont really have anyone i know that's going through anything like this so i guess i just kinda would like some friends

gachrons
Veteran Member


Date Joined Mar 2007
Total Posts : 4527
   Posted 12/14/2008 1:14 PM (GMT -7)   
Hi Sulley Glad you found us and welcome to Healing Well. We have a great bunch of caring people here and always good to get some more. I know it can be hard at first to get a crohn's diagonise but there is lots of help. Feel free to ask away .lol gail
Hallarious woman over 50 ,CD ,IBS 27 years--resection,fistula's,obstructions,hemmies,and still alive.lol gail


sulleysullivan
Regular Member


Date Joined Dec 2008
Total Posts : 44
   Posted 12/14/2008 1:20 PM (GMT -7)   
thanks gail! i'm not going back to the dr until the 5th of january and i was wondering what kind of meds i can take for like a headache i know tylenol but tylenol has never worked for me real well in the past is that my only option?

Wolfie40
Veteran Member


Date Joined Dec 2008
Total Posts : 947
   Posted 12/14/2008 1:20 PM (GMT -7)   
Welcome!
I'm sure you have alot of emotions going on right now,but don't worry the people here are very supportive. Your not alone!!

Wolfie

LMills
Veteran Member


Date Joined Apr 2008
Total Posts : 1753
   Posted 12/14/2008 1:23 PM (GMT -7)   
Sulley, I just want to say I am sorry for this news first off. I was also diagnosed at 19 and it really did not sink in until months later the magnitude of the diagnosis. I'm not going to lie that, depending on how severe your case is, it can be VERY difficult. But there are many resources to be had online, many different kinds of medications and diets that you can try to suit your particular case, and then there is this place. Please know that there will always be people here to help you when you need it! I hope you stay around. Personally, this site has been a lifesaver for me, and I think it will be for you too. I look forward to hearing more from you.
20 years old, Diagnosed with moderate to severe Crohn's and Colitis in May of 2008.
Currently taking:
Prednisone(down to 10 mg), pentasa, bentyl as needed, prilosec, tandem plus, humira, and good probiotics
Surgery for ectopic pregnancy most likely the result of severe Crohn's inflammation in July of 2008.

"He who has a why to live for can bear with almost any how."


jamief
Regular Member


Date Joined Feb 2005
Total Posts : 200
   Posted 12/14/2008 1:24 PM (GMT -7)   
Welcome to Healingwell sulley! Sorry about your diagnosis but you found the right place to be. For a headache, right now tylenol would be the best bet since asprin, aleve, ibprofen, excedrin...etc. are considered bad for your insides. I hope your appointment on the 5th goes well!

Jamie

Joie1
Regular Member


Date Joined Oct 2008
Total Posts : 376
   Posted 12/14/2008 6:53 PM (GMT -7)   
Welcome and totally been there too. I told the doctors they had it wrong and to check it again. I'd already been tested for Crohns three times and came up negative. Turns out, a flare can really make things show up. Just breathe and go to a local library. Talk to the librarian. There are a few books that I've read that helped me even more then what I learned on the Internet. Although, coming here to HealingWell helped so much more. Finally understanding all the strange pains and such was a lifesaver from all the stuff I've had to learn how to live with.
27/f/CD. 4 CD related surgeries: 2 resections, 2 JP drains, 3 NG tubes, many absesses (including the one my most recent surgery scraped off my ovary) and fistulas.
Currently trying to figure out hip and knee joint pain.
Have lost in these surgeries: appendix, 8 in. intestine, R fallopian tube, gallbladder, 10 in. intestine
Crohns Dx'd: February 2008.
Pentasa (and much mental screaming)

Trying to hang in there until January so I'll have some insurance and can visit a rheumy, neuro, GI, primary, pain control, and possibly a shrink so I could stop crying and living in my own lil pity party. :-P


Celey
Veteran Member


Date Joined May 2007
Total Posts : 1284
   Posted 12/14/2008 7:13 PM (GMT -7)   
I was diagnosed at 18... (I'm 20, now... got the same problem... No one I know in my living area has Crohn's...)... Keep yourself informed, but try not to freak out too much... Some people end up having very mild cases of Crohn's... As for the headache, I was dealing with that problem last night...

Perhaps a nap might help... or if not.... Well, I recently read... umm... //>.>\\'.... They say having an orgasm can help with headaches because of the endorphins that are released....

Not trying to be creepy or anything... //^_^\\'... I just thought maybe it'd be helpful... Besides tylenol, I can't think of anything else you could take that won't hurt ya...
I think I am being picked on by life, sometimes. But's that okay. Life and I are good buddies... I know life doesn't mean no harm. It just is the way it is. I can accept that.


sulleysullivan
Regular Member


Date Joined Dec 2008
Total Posts : 44
   Posted 12/14/2008 7:22 PM (GMT -7)   
thanks everyone! especially celey ha ha! it's so great to know there are other people and i''m not alone in this altho i wish none of you had to go through this either!

gachrons
Veteran Member


Date Joined Mar 2007
Total Posts : 4527
   Posted 12/15/2008 10:14 AM (GMT -7)   
Hi Sulley you are adjusting already to this disease your " wishing" .ha ha, me too .lol gail
Hallarious woman over 50 ,CD ,IBS 27 years--resection,fistula's,obstructions,hemmies,and still alive.lol gail


Celey
Veteran Member


Date Joined May 2007
Total Posts : 1284
   Posted 12/15/2008 6:59 PM (GMT -7)   
Hey, I hear you, Sully... :)... I'm glad I'm not alone, either... and it's good to know someone around your own age who goes through some of the stuff you do... It just sucks that we all had to meet because of a stupid disease and not because of something fun...

Like.... PUGS! :D
I think I am being picked on by life, sometimes. But's that okay. Life and I are good buddies... I know life doesn't mean no harm. It just is the way it is. I can accept that.


sulleysullivan
Regular Member


Date Joined Dec 2008
Total Posts : 44
   Posted 12/15/2008 7:12 PM (GMT -7)   
pugs like the cute little squished faced dogs? ha ha hey is anyone on the SCD thing? cuz i think i would like to try it after the night i had last night i need to change how i eat! but i dont know anything about it and i'm not too good at the google thing
"I feel infinite." -the perks of being a wallflower


Celey
Veteran Member


Date Joined May 2007
Total Posts : 1284
   Posted 12/15/2008 7:18 PM (GMT -7)   
Yes. Pugs like the cute little squished-face dogs with the bug-out eyes and curly tails and fatness and loveable, goofball personalities.... *Sighs contentedly* Errr....

I'm not on the SCD diet... I want to do a gluten-free diet, but I'm having trouble with it... I'm sure someone else on the board can help, though... :)
I think I am being picked on by life, sometimes. But's that okay. Life and I are good buddies... I know life doesn't mean no harm. It just is the way it is. I can accept that.


sulleysullivan
Regular Member


Date Joined Dec 2008
Total Posts : 44
   Posted 12/15/2008 8:39 PM (GMT -7)   
i do like a cute little puppy they seem to make life a bit more bearable lets go to the pet store to look at the animals!

whats a gluten free diet? what are its benefits?
"I feel infinite." -the perks of being a wallflower


Celey
Veteran Member


Date Joined May 2007
Total Posts : 1284
   Posted 12/15/2008 9:03 PM (GMT -7)   
I can't have a Pug right now, but man, I do want one... I'll get one when I'm out of college...

Anyway, a gluten-free diet is just as it sounds... Gluten-free. A lot of products contain gluten... Anything that contains wheat contains gluten (so that means a lot of bread, cereal, crackers, cookies, etc., and even stuff like soups and puddings)... Modified food starches usually contain gluten.

Anyway, gluten-free diets are usually done by those who have celiac disease. Celiacs are extremely allergic to gluten, and it causes them a lot of intestinal problems. It's been scientifically proven that a gluten-free diet helps those with celiac disease.

Now, as for other diseases, there isn't that much research, but people with Crohn's and UC that have gone on a gluten-free diet have noticed a reduction in symptoms and overall better health. There's a few people on this board that can tell you a lot more about a gluten-free diet. Yogaprof is one of them. Very helpful person. :D...
I think I am being picked on by life, sometimes. But's that okay. Life and I are good buddies... I know life doesn't mean no harm. It just is the way it is. I can accept that.


Osprey101
Regular Member


Date Joined Apr 2008
Total Posts : 227
   Posted 12/15/2008 9:06 PM (GMT -7)   
GF means no wheat gluten. In reality, it seems more likely the effects of GF dieting come from reducing dietary starch, which feeds Klebsiella pneumoniae in the gut. There are good data to support the idea that starch feeds klebsiella, which in turn produces pullulanase, which results in the autoimmune effects we see. Wheat is simply a good scapegoat, as much of the carbohydrates (namely starch) in our diet comes from wheat and related species.

For celiacs- individuals with celiac sprue- it is absolutely true that sub-milligram quantities of wheat can put the patient in agony for days. It seems unlikely that Crohn's patients have such a poor prognosis, and that we can tolerate, say, crumbs on our salad if we choose to get rid of accidentally-placed croutons. Not so with the celiac. It's one small reason I feel more fortunate than those sufferers.

sulleysullivan
Regular Member


Date Joined Dec 2008
Total Posts : 44
   Posted 12/15/2008 10:30 PM (GMT -7)   
i can't have one in my apartment either :(

i just need to try something i'm still figuring out what foods make my tummy sad i had some onion rings and orange juice last night and the pain was awful! my fiance had to go out in the neg 30 weather and get me some tylenol pm bless his heart so i thing onion rings and orange juice are out for a while ha ha thanks guys that info helped alot! :)
"I feel infinite." -the perks of being a wallflower

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