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labguy
New Member


Date Joined Dec 2008
Total Posts : 17
   Posted 12/14/2008 8:14 PM (GMT -7)   
Quick survey for a newbie. How many have tried the Specific Carb Diet, How faithful to it are you and what's your experience?

Margie11
Regular Member


Date Joined Aug 2008
Total Posts : 467
   Posted 12/14/2008 9:36 PM (GMT -7)   
labguy,
I followed the SCD fror two years after my Crohn's DX in 2002. I had great success with it and added many foods after being symptom free for a year. I now have little or no gut issues, but intend to return to the strict SCdiet in an effort to control arthritis pain. I was symptom free of the arthritis until the last year or so. the arthritis returned after 11 days in a cold house due to power outtages following an ice storm last year and many other stressful life changes. Good luck to you, I hope you have as much success as I did if you decide to follow the SCD.I work in the natural foods industry, and have many customers who have had great relief from the diet.
              Never go faster than your guardian angel can fly!                  
     Be Patient And Tough, Someday This Pain Will Be Useful To You 
 
 Crohn's for life, symptoms included terrible joint and soft tissue pain, just met first cousin who suffers from Reactive Arthritis-explains sooo much. Great control on SCD (when I'm good) and I get by with a lotta help from my friends!
                                                Margie11


EMom
Veteran Member


Date Joined Aug 2007
Total Posts : 990
   Posted 12/14/2008 10:00 PM (GMT -7)   
Just in case you haven't seen it, I wanted to give you this link to a recent discussion here on the SCD:

http://www.healingwell.com/community/default.aspx?f=17&m=739419&p=1

spookyh
Veteran Member


Date Joined Oct 2008
Total Posts : 1342
   Posted 12/14/2008 10:58 PM (GMT -7)   
I have been on the diet for 2 week now turn. It's not nearly as difficult as it looks. I haven't been tempted to cheat at all, and I live with 2 non-SCDer's. I've been adding one new food every 2 days, and so far, so good. I've been on Humira for a few months, and it has helped my crohn's a lot. But since I started the diet, I no longer have constipation (I never thought milk bothered my, but I'm starting to think my 3 glass a day habit was the cause). I also no longer have bleeding, probably because my fissure isn't being irritated by the constipation. No change in energy levels yet, but I know I'm not consuming enough calories. I've never been a big eater, but my appetite is getting better.

Good luck!

Osprey101
Regular Member


Date Joined Apr 2008
Total Posts : 227
   Posted 12/14/2008 11:07 PM (GMT -7)   
One year as of 19 December. Off my meds in a month. Reduced bleeding (from daily to rarely) in two months. Gained back 13 pounds in three months. Started adding a few new foods in 6 months. Doing arduous, multi-day caving trips by 7 months. Blood values normalized by 10 months.

Edited to add: As to how faithful I am to it- NO cheating. At all. Not once. I had one bad reaction to a small amount of chocolate in March, and I haven't had so much as a gram of the stuff since, even though it was probably the peanut butter with which it was served. I *do* consume a small amount of rice as it comes from Chipotle with my bol, and I've not given it an iodine test for starch (I probably should), but it doesn't give me discomfort or D.

Post Edited (Osprey101) : 12/15/2008 12:43:17 AM (GMT-7)


teddybearweiser
Veteran Member


Date Joined Oct 2004
Total Posts : 3042
   Posted 12/15/2008 2:20 AM (GMT -7)   
I am on that diet. I have done it in the past and felt really good when I lost the weight.
Hi, I am teddybearweiser, I am a male.
I was diagnosed with crohns disease when i was admitted to the hospital

in 1992, in Jan of 1993 I was back in the hospital for surgery for my crohns. I had part of my right colon resectioned with ilecolonstomy.

My GI doctor has me on Asacol, Dicyclomine,Imuran,Celebrex and Remicade. B-12 injection once a month.
Also diagnosed with Osteoarthritis and Rheumatoid Arthritis


labguy
New Member


Date Joined Dec 2008
Total Posts : 17
   Posted 12/15/2008 7:49 PM (GMT -7)   
I saw Honey was on the legal list for SCD. Seemed like I read that it had to be filtered..? I can't find anything on that now.

Osprey101
Regular Member


Date Joined Apr 2008
Total Posts : 227
   Posted 12/15/2008 8:24 PM (GMT -7)   
News to me about the filtration. All I know is that somewhere I'm keeping some bee guy employed!

Honey is a mix of carbohydrates; it's mainly glucose and fructose, with a little bit (1-9%) of sucrose. Other'n simple sugars, it's water. The fructose and glucose are absorbed very "high" in the digestive tract- before they can get further in and cause problems feeding undesirable flora.

Rough rule of thumb: the bigger and more complex the sugars, the worse they are for Chrohnies on dietary restriction. It maxes out with branched starch, for reasons already noted.

Animal products- including honey- have very, very little starch- if any.

spookyh
Veteran Member


Date Joined Oct 2008
Total Posts : 1342
   Posted 12/15/2008 8:57 PM (GMT -7)   
You have to be a little careful with honey. Some is cut with corn syrup. Also, Elaine said that bee pollen irritates the gut. Originally, she said to get filtered honey. I believe it was later amended to say you can use raw honey, but make sure it's clear and doesn't have honeycomb parts in it.

I love honey! It's a pretty good sugar substitute.

labguy
New Member


Date Joined Dec 2008
Total Posts : 17
   Posted 12/16/2008 6:08 AM (GMT -7)   
Thanks you guys. I thought I had read that filtered and bee pollen caveat somewhere. I just couldn't find it again. I'm glad to hear it has been amended some.

Labguy

Laughing Willow
Regular Member


Date Joined Oct 2008
Total Posts : 69
   Posted 12/16/2008 6:41 AM (GMT -7)   
Osprey, I am in the process of transitioning into the Life Without Bread diet with plans to be strictly under 72g of carbohydrates by the time 2009 starts. Since honey is absorbed so high in the bowels, do you believe that it does not really figure in the 72g calculation? I believe you mentioned something along these lines in another SCD thread, but I may have misinterpreted what you wrote.

I'm concerned about adequate calorie intake as about a 10 pound underweight person (although Dr. Lutz has written that over time people like me will gain weight on the diet) and would prefer not to lose too much weight during the initial period of this diet. I eat a lot of foods that could be sweetened with honey or stevia, an all natural, calorie free sweetener that I don't mind using. Using a generous amount of honey would be one way to supplement the loss of other carbohydrtaes, but ultimately I want to play it safe. I'm currently in remission, if that makes any difference.

spookyh
Veteran Member


Date Joined Oct 2008
Total Posts : 1342
   Posted 12/16/2008 8:45 AM (GMT -7)   
labguy said...
Thanks you guys. I thought I had read that filtered and bee pollen caveat somewhere. I just couldn't find it again. I'm glad to hear it has been amended some.

Labguy


I'm trying to find a definitive source. So far, I've just found to avoid cloudy honey. As long as your raw honey is nice and clear, it's probably okay. It also has to say 100% or pure so that you know they didn't mess with it by adding molasses or corn syrup.

Osprey101
Regular Member


Date Joined Apr 2008
Total Posts : 227
   Posted 12/16/2008 10:53 AM (GMT -7)   
Hello, HS.

Lutz cites 72 grams/day of total carbs for many health reasons- including diabetes. If you're only looking to work on your Crohn's, yes- you could interpret that as 72 grams/day plus honey.

Now, this doesn't mean to go hog-wild on honey, although I certainly did to begin with! When I couldn't have soda or juice with a meal, I'd just make up some honey-water. I've tapered that down dramatically, and instead of going through a pound or two a week, a one-pound container now lasts me 2-3 weeks.

I was worried, too, when I started the SCD. I mean, I was down to 139 pounds from low 160's where I was originally. But the diet allows one to eat richly- bacon, eggs, meat, cheese, full-fat yogurt, and so forth. There will be no shortage of calories provided you think ahead and cook. For example, make a half gallon or a gallon of yogurt; keep that in a big jar in the 'fridge and make up a bowl of the stuff with blueberries, a banana, and honey. Keep plenty of bananas on hand so some ripe ones are always ready.

Similarly, cook up a flat of chicken- or two. Cook it over broccoli or cauliflower, and then refrigerate it; the vegetables should absorb the fat and the flavor from the chicken. If you're hungry, grab a drumstick. (Tip: chicken thighs are underrated. They are relatively inexpensive, relatively calorie-dense, and probably the easiest part of the chicken to cook!) Add a couple of chunks of cauliflower, and that's lunch. Keep hard-boiled eggs in the refrigerator for snacks.

Saturday morning, and you're starving: cook up some bacon, then scramble the eggs in the bacon grease. (You're starving. Even if cholesterol in food mattered- which it doesn't- you're not going to die of a heart attack when you're ten pounds underweight.)

Want a snack? Cook up some SCD-safe custard with dry curd cottage cheese, some eggs, a stick of butter (use the real stuff! butter is good for you!), and cinnamon. Refrigerate, and then add honey to taste before eating- add blueberries and bananas if you wish.

My advice is to find what works for you and eat the same things until you're on a stable keel. When you can go for a week or a month without D, you'll find out a little dietary boredom is worth it. Then you can branch out and experiment. It took me 6-7 months before I was comfortable adding new food items- I had a great amount of control over how my body would respond, as everything I ate was "under control." It wasn't a matter of guessing, "Was it the carrots or the spinach or the Brussels sprouts I ate tonight?" One new food item at a time.

And don't go easy on the butter!

Using these principles, I was UP 13 pounds within 3 months of starting the diet. My weight loss reversed within a couple of days of going on SCD.

labguy
New Member


Date Joined Dec 2008
Total Posts : 17
   Posted 12/16/2008 10:58 AM (GMT -7)   
Good post Osprey. You answered a lot of questions that were just popping in my head.

Laughing Willow
Regular Member


Date Joined Oct 2008
Total Posts : 69
   Posted 12/16/2008 12:06 PM (GMT -7)   
Great information, Osprey. Thank you for the reply.

I'm glad I saved my Yogourmet machine, a relic from my two failed attempts at the SCD. I'll be making the SCD yogurt on a regular basis now.

DMom
New Member


Date Joined Jul 2008
Total Posts : 7
   Posted 12/18/2008 9:08 AM (GMT -7)   
We are having great results with the SCD diet for my son. The two tricks that I have learned to make it work are: 1)Be prepared - have lots of food on hand - pre-make recipes and have them ready in the freezer.
2)Only add/change 1 thing at a time (1 per week max) - this way you can tell whether or not it makes a difference or if you can tolerate it.

My experience with GI doctor and SCD was: "Well, I never hear back from those patients who are trying it, and if it worked he would hear about it. It is really hard to follow...", my response was "well, maybe they are feeling better and symptom free, so they are not coming to see you!" I earned a smile for that one!

After trying several recipes and variations, we find the food on SCD quite delicious and well worth the efforts... even for those of us who do not have Crohn's.

Life is not about how we survive the storm,
but how we dance in the rain.
 
Mom of 13 year old son diagnosed with Crohn's in Sept 07. Protocol: probiotics, good multi vits, Omega 3, digestive enzymes, calcium, Boswellia, ginger, folic acid, slowly weaning off Pentasa (2 per day). Diet: gluten, most dairy, egg, and soy free.
Seeker of delicious, healthy, nutritious recipes and a better understanding of IBD.


labguy
New Member


Date Joined Dec 2008
Total Posts : 17
   Posted 12/18/2008 9:43 AM (GMT -7)   
Dmom, that's so encouraging. We're just getting started on this stuff...so it's good to hear.
Thank you

spookyh
Veteran Member


Date Joined Oct 2008
Total Posts : 1342
   Posted 12/18/2008 10:16 AM (GMT -7)   
I'm buying a little freezer chest just to hold all of my premade SCD foods. I love to make a big batch of chicken soup in the crock pot, and then divide the broth and chicken into individual portions and freeze it. It's very handy to pull out when I don't want to cook something for dinner.

Osprey101
Regular Member


Date Joined Apr 2008
Total Posts : 227
   Posted 12/18/2008 11:46 AM (GMT -7)   
DMom> Any details on the improvements you've seen?

spookyh
Veteran Member


Date Joined Oct 2008
Total Posts : 1342
   Posted 12/18/2008 11:02 PM (GMT -7)   
Osprey101 said...
Hello, HS.

Lutz cites 72 grams/day of total carbs for many health reasons- including diabetes. If you're only looking to work on your Crohn's, yes- you could interpret that as 72 grams/day plus honey.


I have a question Osprey. If you have a yeast problem (don't know that I do, but I see a lot of talk about it in SCD), should you be careful with the honey? Or is the yeast low enough in the bowel that honey isn't an issue?

Osprey101
Regular Member


Date Joined Apr 2008
Total Posts : 227
   Posted 12/18/2008 11:08 PM (GMT -7)   
I've not heard of any problems with yeast in honey. Honey is such a strong sugar solution that nothing will grow in it, so- I don't know why yeast in honey would even be a problem.

I have had problems with sourdough; there's some stomach pain even after a tiny amount of spelt sourdough. I suspect it was an ASCA (anti-Saccharomyces cerevisiae antibodies) problem.

EMom
Veteran Member


Date Joined Aug 2007
Total Posts : 990
   Posted 12/19/2008 6:20 AM (GMT -7)   
Spooky, do you mean yeast as in candida albicans overgrowth (candidiasis)? Have you checked out one of the other diets for candida to see what they say? I know the SCD is supposed to be effective and very similar, but it does allow a lot of honey. I am curious, too. confused

Honey is one of those things that it seems science barely understands its benefits. I like to think the anti-microbial effects of honey on candida outweigh the fact that it theoretically could be feeding it... smilewinkgrin
Mom to 16 year old son diagnosed in June, 2007.
Omega 3s, digestive enzymes, probiotics, vit. C, calcium w/D3, a good multivitamin and SCD legal yogurt
Started The Maker's Diet in Sept. '07. Gradually learning/using more Specific Carbohydrate Diet (SCD) recipes, too! (cooking challenged)


spookyh
Veteran Member


Date Joined Oct 2008
Total Posts : 1342
   Posted 12/19/2008 1:49 PM (GMT -7)   
Yes EMom, that's what I meant. From what I've read, it sounds like people with GI issues tend to have yeast overgrowth in their systems. Hopefully, I don't have a yeast problem, because I love honey:)!

LMills
Veteran Member


Date Joined Apr 2008
Total Posts : 1753
   Posted 12/19/2008 1:54 PM (GMT -7)   
I'm trying it right now actually, but I haven't gone completely anti-bread. I tried that before and it didn't end well so I am weaning down on the things I had been used to eating for 19 years!! I'm mostly just eating chicken right now though...one meal a day isn't fun, but anything more than that at the moment and my gut becomes pretty upset. I'll have pure fruit juice too but I'm trying to stick with a lot of water in light of all the medication my body is taking in.
I hope everyone else is having good luck with their attempts and that these attempts become long term solution!
20 years old, Diagnosed with moderate to severe Crohn's and Colitis in May of 2008.
Currently taking:
Prednisone 30 mg, pentasa 2 pills 4x a day, bentyl as needed, prilosec in the morning, tandem plus, humira every other week, and good probiotics.
Surgery for ectopic pregnancy most likely the result of severe Crohn's inflammation in July of 2008.
Attempting the specific carbohydrate diet. Cheated once for Christmas.

"He who has a why to live for can bear with almost any how."


Osprey101
Regular Member


Date Joined Apr 2008
Total Posts : 227
   Posted 12/19/2008 2:47 PM (GMT -7)   
I don't know as anyone has scientifically pinned down the complaints attributed to yeast as being specifically from candida. It's conceivable that the problems attributed to "yeast overgrowth" or candida or whatever are due to another organism. Klebsiella would be a convenient critter to which to ascribe those complaints.
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