First I want to say Congrats on the baby!! I know you are in a difficult position right now and first and foremost I say follow your heart. What is right for one person may not be the right choice for another person.
On a positive note, I have a perfectly heathly GORGEOUS (I'm biased) 3 month old daughter who I carried while continuing my remicade treatments. I think I had 4 treatments while I was pregnant, the last one being at 31 weeks. My husband and I went to see my GI before we even started trying for baby #2 and my GI strongly recommended continuing the treatments during the pregnancy. I intended to see my OB and get his opinion, but I got pregnant on the first try (sorry if that's TMI) before I made it to my appt. My OB wasn't completely for the treatments because he had never treated a crohn's patient on remicade, but said if I needed the medication to stay healthy then it was better for the baby for me to continue. I had ALOT of days where I worried and cried wondering if I had made the right choice for me or for my daughter. But then I would remember my first pregnancy with my 3 year old daughter. IT WAS HORRIFIC!!! I didn't know at the time that I had crohn's, but at 12 weeks I started having the worst pain in my life and ended up in the ER. After months of weekly dr visits, limited testing to try and dx me, pain meds and 30+ days in the hospital, I delivered a perfectly healthy baby girl. After I was dx'd about 3-4 months after she was born, my new GI told me that I was lucky I carried her to term and made it thru myself. I had a partial obstruction during the pregnancy which was dangerous because they didn't know what it was at the time and it wasn't being treated at all.
For me, with the second baby, staying on the meds was my ONLY option. Without the remicade I would not have even considered having another child. Everyone has to make the choice that is right for them and their significant other. You have to do what is right for you in your heart and mind. If you trust your GI and OB..go with what they are suggesting. I know for me that was key. There are MANY others on this forum who have successful stories of pregnancy/delivery of babies while on Remicade. I am not sure that I have heard of any miscarriages known to be caused by remicade treatments.
Congradulations first of all. Second, I,like you,was diagnosed with Crohn's at age 10. I just recently turned 40. I was the youngest person in our area to be diagnosed with this and it wasn't until 3 years after my first surgery. I was origanally thought to have a burst appendix and when exploratory surgery revealed appendix was fine(it was removed anyway), the surgeons found what they thought were polyps. 18 inches of my small intestine was removed. 3 years later, i was hospitalized for anorexia nervosa and being intraveinously and force fed. I dropped half my body weight during the summer between 9th and 10th grade. I was 90 lbs starting high school. Absolutely no one believed who I was. The anorexia was misdianosed and after extensive testing, I finally was told it was Crohn's. I missed most of my 10th grade year.
My treatment consisted mainly of the drugs Azulfidine,Prednisone,Flagyl and other various antibiotics. Drs. did not know much on how to treat such a young person with Crohn's so much of it was trial and error.
A couple years after high school, I got married. Crohn's had flared up and done a lot of damage to my insides. I've had fistulas from my small intestine to every organ but my lungs,heart and those above chest. I had to have my right side ovary and fallopian tube removed due to extensive damage(tubes and ovaries were switched places with kidneys). I was told that I would never be able to get pregnant(chances were less than one percent of conceiving) and could not carry a child to full term if I did. One year after the partial hysterectomy, I thought the Crohn's was flaring up and was put back on Azulfidine and Prednisone. An ultrasound revealed I was pregnant. The drs. kept me on the meds during the pregnancy at low doses and I was checked on twice a week. My due date was Nov. 4,1991. My son arrived Dec. 1rst. Although he was only 6lbs and 13 oz, I required a lot of stitching back together. My ob-g said that my insides had not fully matured so it was like a 10 year giving birth to a bowling ball. Everything else went pretty good. 17 months later, I had a baby girl. Due to the damage from my son's birth, she was a planned c-section, weighing 5lbs and 7 oz. Both pregnancies I was taking the medications.
My children are now 17 and 15. The meds I was taking did affect their permanent teeth development. They both have a slight yellow tint that the dentist attributted to the sulfa drugs and bleaching will not help. The kids understand and have been a God send for me. I now have a total hysterectomy(not even the cervix is left,thank goodness no more paps!) and have had permanent colostomy. The next time I have to have surgery, will probably be my last, as I have only a few feet of intestines left.
My kids are proof that even though impossible odds are hard to beat, that less than 1 percent is there. By the way, both of my kids taller than me now.Matthew is 17 and 6'3". Elizabeth is 15 and 5'7". I am 5'4". There dad is 5'6"(we're divorced now). I wish you all the luck in the world, blessings of good health and hopes of a wonderful future.
Post Edited (Roni) : 12/18/2008 4:40:07 PM (GMT-7)