Tincture of Opium for Diarrhea

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lovepink
Regular Member


Date Joined Sep 2007
Total Posts : 182
   Posted 12/14/2008 8:28 PM (GMT -7)   
Hi All!

Happy Holidays! May you all feel well this Holiday Season!

I am really sick and it got to the point where I had to say: Here is the deal. If you can't make me any better at least help my diarrhea. So finally after 2 years of me saying this one of my doctors said well we can try Tincture of Opium. And with no thinking about it, I said yes please.... (my friend has been on it for 1-2 years and it really helps her). So I started on it. At first, it really didn't do much. But then I started taking it 2-3 times a day. And boy is it a miracle! You always want to go in between doses so that you do NOT get constipation. So I still go a lot with a lot of blood in between, but it really helps for about 4 hrs @ a time. It is amazing. I highly suggest some of you giving it a try. Yes, it is a controlled substance BUT you take 6/10 of an ML or whatever it is which is a pinch. And it gets our of your system. I have NO side effects whatsoever with it. In my opinion severe diarrhea and blood loss (uncontrollable which is what I have) is a lot worse than taking tincture of opium.

I would love to hear from any of you who are on it as of course what works for me or one of you may not work for the other person. But it is totally worth a shot!

Let me know!

Brittany
I have had Crohn's since I was 21 years old and I am now almost 28....

I am currently on Prednisone and have tired literally every drug available.

Unfortunately, nothing has worked for me. But I will keep on going and trying everything possible!

Also recovering from a blood clot in my lung and of course the blood thinners really messed up my bleeding from my Crohn's....


Osprey101
Regular Member


Date Joined Apr 2008
Total Posts : 227
   Posted 12/14/2008 9:36 PM (GMT -7)   
Opioids are known for one famous side-effect: constipation.

Loperamide (Imodium) is an opioid receptor agonist, so it works in a similar fashion without giving the narcotic side-effects of true opioids.

lovepink
Regular Member


Date Joined Sep 2007
Total Posts : 182
   Posted 12/14/2008 9:38 PM (GMT -7)   
Yep exactly :). And that is why you always want to make sure you go D or whatever you normally do before taking the next dose. It has been amazing for me though....
I have had Crohn's since I was 21 years old and I am now almost 28....

I am currently on Prednisone and have tired literally every drug available.

Unfortunately, nothing has worked for me. But I will keep on going and trying everything possible!

Also recovering from a blood clot in my lung and of course the blood thinners really messed up my bleeding from my Crohn's....


pb4
Elite Member


Date Joined Feb 2004
Total Posts : 20576
   Posted 12/14/2008 10:18 PM (GMT -7)   
Do you get it from a health food store?

:)
My bum is broken....there's a big crack down the middle of it! LOL :)


lovepink
Regular Member


Date Joined Sep 2007
Total Posts : 182
   Posted 12/14/2008 10:31 PM (GMT -7)   
Unfortunately, NO, it is a prescription! But ask your doctor about it. I guess some won't prescribe it which is to bad. It took 7 years before a Dr. offered it to me and I consider it a part of a miracle. Doesn't help my disease. But it allows me a couple of hrs. of no worrying about not being near a bathroom and I go 5x's a day instead of 20-25 literally (if I take it). You just want to make sure you go in between doses. Make sense? Let me know!
Lovepink!
I have had Crohn's since I was 21 years old and I am now almost 28....

I am currently on Prednisone and have tired literally every drug available.

Unfortunately, nothing has worked for me. But I will keep on going and trying everything possible!

Also recovering from a blood clot in my lung and of course the blood thinners really messed up my bleeding from my Crohn's....


pb4
Elite Member


Date Joined Feb 2004
Total Posts : 20576
   Posted 12/14/2008 11:43 PM (GMT -7)   
hmmm, I wonder if it's prescribed in canada? I'll have to look into that...does it happen to help with frequency and urges or just stool formation? My stool formation is pretty good so I don't need help with that but the urgency and frequency are my 2 major problems.

:)
My bum is broken....there's a big crack down the middle of it! LOL :)


pb4
Elite Member


Date Joined Feb 2004
Total Posts : 20576
   Posted 12/14/2008 11:46 PM (GMT -7)   
Actually, never mind, I googled and found this so it doesn't sound like something that can be used long term and it seems it mainly aids with D...

Opium is a narcotic used to treat diarrhea or pain.

HOW TO USE: Take this medication by mouth as directed. May take with food or meals if stomach upset occurs. Carefully measure each dose using the dropper provided. The drops may be mixed with soft food, water or juice. Use this medication exactly as directed by your doctor. Do not increase your dose, use it more frequently or use it for a longer period of time than prescribed because this drug can be habit- forming. Also, if used for an extended period, do not suddenly stop using this drug without your doctor's approval. Over time, this drug may not work as well. Consult your doctor if this medication stops working well.

SIDE EFFECTS: Lightheadedness, dizziness, drowsiness, nausea, vomiting, blurred vision may occur. If any of these effects continue or become bothersome, inform your doctor. Notify your doctor if you develop: tremor, mood/mental changes, rapid heart rate. In the unlikely event you have a serious allergic reaction to this drug, seek immediate medical attention. Symptoms of a serious allergic reaction include: rash, itching, swelling, severe dizziness, trouble breathing. If you notice other effects not listed above, contact your doctor or pharmacist.

PRECAUTIONS: Tell your doctor if you have: liver disease, heart disease, gallbladder problems, intestinal diseases, an enlarged prostate, asthma or other breathing problems, seizures, drug dependency, drug allergies. Use caution driving or operating machinery or doing activities requiring alertness. Rise slowly from a lying or sitting position to lessen the occurrence of dizziness, lightheadedness or fainting. This medication should be used only if clearly needed during pregnancy. Discuss the risks and benefits with your doctor. It is not known if this drug is excreted into breast milk. Consult your doctor before breast-feeding.

Good luck and be careful with it!

:)
My bum is broken....there's a big crack down the middle of it! LOL :)


gachrons
Veteran Member


Date Joined Mar 2007
Total Posts : 4527
   Posted 12/15/2008 5:48 AM (GMT -7)   
Hi Isn't LDN a opium ? lol gail
Hallarious woman over 50 ,CD ,IBS 27 years--resection,fistula's,obstructions,hemmies,and still alive.lol gail


Nanners
Elite Member


Date Joined Apr 2005
Total Posts : 14995
   Posted 12/15/2008 7:16 AM (GMT -7)   
No LDN blocks opiates.
Been living with Crohn's Disease for 33 years.  Currently on Asacol, Prilosec, Estrace, Prinivil, Diltiazem, Percoset prn for pain, Zofran, Phenergan, Probiotics, and Calcium.  Resections in 2002 and 2005.  Also diagnosed with Fibromyalgia and Osteoarthritis. Currently my Crohns is in remission.


lovepink
Regular Member


Date Joined Sep 2007
Total Posts : 182
   Posted 12/15/2008 11:01 AM (GMT -7)   
Oh yes you have to be careful with every drug you are on! As a last resort this is great for me. And yes I take it strictly for my D ONLY, not the pain! Like I mentioned before when you go 20-25 times a day any relief is amazing after 7 years when the doctors can't help you. It is just another option. It has been part of a miracle to me. Again, it doesn't help my Crohn's, but it helps a part of it DRAMATICALLY and that is the D. Especially when I am getting married in 2 months, that gives me some comfort :). Very stressed and worried about that Day! I am praying a lot and thinking positive like I do daily.

Happy Holidays to you all...........

LOVEPINK
I have had Crohn's since I was 21 years old and I am now almost 28....

I am currently on Prednisone and have tired literally every drug available.

Unfortunately, nothing has worked for me. But I will keep on going and trying everything possible!

Also recovering from a blood clot in my lung and of course the blood thinners really messed up my bleeding from my Crohn's....


pb4
Elite Member


Date Joined Feb 2004
Total Posts : 20576
   Posted 12/15/2008 11:54 AM (GMT -7)   
Yes, you have to be especially careful with narcotics, thankfully the natural anti-inflammatories I take are all safe and non-addictive.

good luck with it lovepink, and be very careful.


:)
My bum is broken....there's a big crack down the middle of it! LOL :)


lovepink
Regular Member


Date Joined Sep 2007
Total Posts : 182
   Posted 12/15/2008 3:52 PM (GMT -7)   
Yep of course I will be careful as I am with all pain medications and all others. The natural stuff unfort. have not worked for me so I am definitely thankful. I won't get addicted, I am smart... and have been on everything else and have never been. One day @ a time for me and this is what I need!
Brit
I have had Crohn's since I was 21 years old and I am now almost 28....

I am currently on Prednisone and have tired literally every drug available.

Unfortunately, nothing has worked for me. But I will keep on going and trying everything possible!

Also recovering from a blood clot in my lung and of course the blood thinners really messed up my bleeding from my Crohn's....


nruth
Regular Member


Date Joined Mar 2006
Total Posts : 195
   Posted 12/16/2008 9:23 PM (GMT -7)   
I tried it for awhile, but it didn't really help the diarrhea that much. It is very expensive, even with insurance.
I've pretty much resigned myself to the fact that I'll have horrible diarrhea for the rest of my life. There aren't any miracle cures....apparently.

lovepink
Regular Member


Date Joined Sep 2007
Total Posts : 182
   Posted 12/16/2008 11:12 PM (GMT -7)   
Ah well hang in there! I understand and I am sure many of us do. It started out very expensive, but after a lot of research and going to a lot of compounding pharmacy's I worked it out. Going 20-25 times a day and I needed something. This is not @ all a cure, but it gives some very temporary relief so I can drive places without having to pull over, breathe etc. I am sure you get it! I will say a prayer for you and all of us living with this disease. Yes, we will have D the rest of our lives, BUT have HOPE and maybe a miracle will come one day!
LOVEPINK
I have had Crohn's since I was 21 years old and I am now almost 28....

I am currently on Prednisone and have tired literally every drug available.

Unfortunately, nothing has worked for me. But I will keep on going and trying everything possible!

Also recovering from a blood clot in my lung and of course the blood thinners really messed up my bleeding from my Crohn's....


pb4
Elite Member


Date Joined Feb 2004
Total Posts : 20576
   Posted 12/16/2008 11:28 PM (GMT -7)   
Well I wouldn't say we'll all have D for the rest of our lives...although I started out with D and had it for many yrs combined with mush and play-doh type poops I now have formed stool thanks mostly to fibre supplements daily and bee propolis (a natural anti-inflammatory)...problem is even with formed stools I still have some frequency and urgency issues that I wish would stop.

:)
My bum is broken....there's a big crack down the middle of it! LOL :)


lovepink
Regular Member


Date Joined Sep 2007
Total Posts : 182
   Posted 12/16/2008 11:31 PM (GMT -7)   
LOL great to hear that! Good for you! That is good though..... a start..... and hoping you will get even more better and less urgency. That is so hard and can be so embarassing @ times. But us Crohn's people have such good attitudes, BUT we do appreciate every single formed stool. I haven't had one for about 2 years, but boy when I do I just up for joy- haha! Happy Holidays PB4!
Lovepink!
I have had Crohn's since I was 21 years old and I am now almost 28....

I am currently on Prednisone and have tired literally every drug available.

Unfortunately, nothing has worked for me. But I will keep on going and trying everything possible!

Also recovering from a blood clot in my lung and of course the blood thinners really messed up my bleeding from my Crohn's....


pb4
Elite Member


Date Joined Feb 2004
Total Posts : 20576
   Posted 12/16/2008 11:52 PM (GMT -7)   
LOL, yes, a good attitude can be very helpful for us in dealing with this dreaded disease...some start though, I've had formed stools for about the last 5 yrs and still the stupid urgency and frequency issues won't quit, just goes to show there are many levels of flaring. I for sure appreciate my formed stools (sometimes I wonder if I should take pictures incase it comes to an end LOL) but getting to full remission has never happend to me yet in my entire 17 yrs of having this stupid disease...I must be way to patient although it does drive me bonkers at times. Happy Holidays to you too lovepink and I'm glad you're able to find whatever helps with your symptoms.

:)
My bum is broken....there's a big crack down the middle of it! LOL :)


CrohnsDaddy
Regular Member


Date Joined Oct 2007
Total Posts : 235
   Posted 12/17/2008 11:13 AM (GMT -7)   
Every time someone mentions they are taking a potentially addictive substance, the "Oh my gosh, be careful! Don't get addicted!" posts start to fly, and I wonder...why?

Yes, addictive substances taken strictly for recreational use and not for genuine quality of life issues is wrong. However, addictive substances taken to improve an otherwise miserable existence is not. So WHO CARES if you get addicted to it, as long as it improves an otherwise miserable quality of life; it's not like you're taking it just to get high, you're taking it to make your life bearable. In cases like this, I personally say get as hooked as you need to be to keep your life bearable. I'm not saying over dose or get into recreational use at all, so please don't construe this (which is all just my opinion) as endorsing recreational use; I'm endorsing addiction at an extreme level: a miserable existence that is made tolerable by addictive meds. My mother has a chronic pain condition. She's 72 years old, and every time I ask her why she doesn't get on stronger pain meds, she says, "Oh, no! and get addicted???" What a stigma is attached to pain meds. It's a shame; my mother could live out her remaining years in a much better quality of life if she'd (and this is really what it boils down to) allow herself to get hooked on pain meds. It's a simple fact that if you have a chronic condition that requires an addictive substance to treat, you're going to get hooked. If you're living with chronic severe diarrhea, and the only med that's helped is tincture of opium, you're going to get hooked. Again, I say so what? If it gets you an improvement in your quality of life (OMG....25 bm's a day? there's no QoL there, for sure), where's the harm? As long as you manage your medications responsibly, such as not driving while under the effects of the med, or making financial decisions, etc., do what you need to do (and no more than that) to make life bearable.
Just trying to be a "Regular Member".


Entocort 9 mg/day, Prednisone 20 mg/day, started Humira 1/22/08, started 100 mg of Azasan (Imuran) 2/20/08. Increased Azasan to 150 mg 10/15/08. Discontinued Humira 11/03/08 after extreme fatigue and moderate muscle aches. Started Cimzia 12/4/08. Down to 10 mg/day of Pred now, and will continue to taper until completely off as long as the other meds keep me off the porcelain.



I'm convinced that Prednisone is the root of all evil, and primarily responsible for global warming.


pb4
Elite Member


Date Joined Feb 2004
Total Posts : 20576
   Posted 12/17/2008 11:35 AM (GMT -7)   
I care, that's who...because it's bad enough she's suffering with CD she certainly doesn't need to add more problems into her life. I totally encourage her to continue with it and just to be careful, I don't see what harm there is in that or why anyone would take any offence to it either.

:)
My bum is broken....there's a big crack down the middle of it! LOL :)


MishBall2
Regular Member


Date Joined Apr 2007
Total Posts : 345
   Posted 12/17/2008 11:44 AM (GMT -7)   
How is this different from Lomotil?  Lomotil is made up of two drugs 1.) Diphenoxylate hydrochloride which is a Nervous System depressant and 2.) Atropine sulfate which, i'm told by my doctor, is added so that if you try to get high by taking large amounts it will make you sick.  
 
This drug works great and is definitely not habit forming.
 
NRUTH - it's also much cheaper - i think I pay a $15 co-pay (i pay $30 for Asacol)
 
33 years old. Diagnosed in 2002ish. 
Taking Asacol, Lomotil TID, and on Remicade since 2004. 
Lower Bowel area only, except for the short stint (about 2 weeks) that I had mouth sores.  Also have external/anal fistula and anal/vaginal fistula. 
 


pb4
Elite Member


Date Joined Feb 2004
Total Posts : 20576
   Posted 12/17/2008 12:06 PM (GMT -7)   
Because it say's "this drug can be habit- forming. Also, if used for an extended period, do not suddenly stop using this drug without your doctor's approval." And anyone taking drugs that can be habit forming should use them with caution...Mishball as you stated the Lomotil is not habit forming, tincture of opium is and that's the difference.

:)
My bum is broken....there's a big crack down the middle of it! LOL :)


MishBall2
Regular Member


Date Joined Apr 2007
Total Posts : 345
   Posted 12/17/2008 2:43 PM (GMT -7)   
I actually meant, what is the difference in results?   Is the Tincture of opium more effective in eliminating D?
33 years old. Diagnosed in 2002ish. 
Taking Asacol, Lomotil TID, and on Remicade since 2004. 
Lower Bowel area only, except for the short stint (about 2 weeks) that I had mouth sores.  Also have external/anal fistula and anal/vaginal fistula. 
 


pb4
Elite Member


Date Joined Feb 2004
Total Posts : 20576
   Posted 12/17/2008 3:25 PM (GMT -7)   
Oh, my bad :)
My bum is broken....there's a big crack down the middle of it! LOL :)


lovepink
Regular Member


Date Joined Sep 2007
Total Posts : 182
   Posted 12/17/2008 5:47 PM (GMT -7)   
I am sure it is different 4 everyone! All I know is FOR ME (again), this is giving me some relief from my 20-25 times a day D's, blood etc. I just wanted to share with everyone and didn't mean to start anything OR make people upset. Anyone can get addicted to medications, but that is the LAST thing I am worried about. I have pain meds, controlled substances on me @ all times for emergencies and severe pain and so far... so good addiction wise and I have had Crohn's severe for 8 years. But yes, you always have to be aware of it. The Opium really does help me with no side-effects and it gives me some comfort which is what I need, especially with the fact that I am getting married in less that 2 months :). LOVEPINK
I have had Crohn's since I was 21 years old and I am now almost 28....

I am currently on Prednisone and have tired literally every drug available.

Unfortunately, nothing has worked for me. But I will keep on going and trying everything possible!

Also recovering from a blood clot in my lung and of course the blood thinners really messed up my bleeding from my Crohn's....


lovepink
Regular Member


Date Joined Sep 2007
Total Posts : 182
   Posted 12/17/2008 5:48 PM (GMT -7)   
I do appreciate people understanding though and being happy 4 me that I do have some relief... Thank You!
Lovepink
I have had Crohn's since I was 21 years old and I am now almost 28....

I am currently on Prednisone and have tired literally every drug available.

Unfortunately, nothing has worked for me. But I will keep on going and trying everything possible!

Also recovering from a blood clot in my lung and of course the blood thinners really messed up my bleeding from my Crohn's....

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