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Regular Member

Date Joined Nov 2007
Total Posts : 165
   Posted 12/15/2008 5:47 PM (GMT -6)   
I'm just curious if I am alone in my current situation. I have been dx with Crohn's since Jan 06. July 07 I had my first resection and on Sept 9, 08 I had our second daughter. I have been on remicade as a maintenance drug and feeling pretty good since delivering the baby. The last week or so I have had a few twinges of pain here and there and a couple hours of sitting in the bathroom which isn't really normal for me. I do always have "d" but normally I go in, do my business and get out 1-3 times a day. When I was in my major flare w/ partial obstruction before the resection I would sit in the bathroom for hours at a time because it was pointless to come out since I would be back in there within minutes. I also had upwards of 15 bm's a day at my worst. issue is that I am in a PANIC that something is wrong!! I am worrying myself sick thinking the worst when maybe it's nothing?! Maybe I ate something that messed up my system, honestly I don't know. I know that I haven't eaten anything "unusual" since I watch eating new things and how I react pretty closely. The pain hasn't lasted longer than 30-45 mins at a time and never more than 2 times in one day. It's not excruitiating pain by any means...definitely manageable! I might be making things worse by worrying and stressing so much but all I can think is that I have a 3 yr old and a 3 month old and I can't have a flare. I mean I know it's not really up to me, but I like to think I can tell my body what to do. HA! Maybe I am just looking for reassurance that it's nothing so I can relax a little. I know that I read a post on here that someone had a flare several months after delivering a baby so that has me worried. I thought I was kind of in the clear since I have felt great for 3 months, but maybe not?!!? I have my next remicade treatment on 12/29 so we'll see what happens from now until then..and then for 10-14 days after the treatment and if I'm still having the pain, I'll probably make an appt to see my GI.
I'm sure alot of others feel this way, but I just need to say I HATE THIS DISEASE!!!! :(
Fibromyalgia DX March 2003
Crohn's DX Jan 2006 (Symptoms since 96-Misdiagnosed as "female" problems-Major flare during pregnancy in 05 which lead to DX)
1st resection July 2007
Currently on Remicade/8 weeks

Regular Member

Date Joined Nov 2008
Total Posts : 192
   Posted 12/15/2008 6:24 PM (GMT -6)   
It sounds like you know your body pretty well. If you think a flare up is coming on, definitely make an appointment with the doctor. Even if it is just a stomach virus, it doesn't hurt to have that confirmed by the doc and ease your anxiety. Good luck!
Diagnosed with Crohn's Disease; Meds: Entocort & Asacol; female in late 20s.

Elite Member

Date Joined Apr 2005
Total Posts : 14995
   Posted 12/15/2008 7:56 PM (GMT -6)   
Chastity I am another one that suffers alot of "anticipatory Anxiety" myself. What if I am getting sick, what if I get so sick I miss work etc. All the what if's can really get you down. I ended up going to therapy and now take an occasional Xanax to quiet the anxiety down, and it works great. Maybe you need to talk with your family doc about this. By the way, when the anxiety kicks in it effects me in a gastric manner, i.e. nausea, d, etc. Good luck!
Been living with Crohn's Disease for 33 years.  Currently on Asacol, Prilosec, Estrace, Prinivil, Diltiazem, Percoset prn for pain, Zofran, Phenergan, Probiotics, and Calcium.  Resections in 2002 and 2005.  Also diagnosed with Fibromyalgia and Osteoarthritis. Currently my Crohns is in remission.

Regular Member

Date Joined Apr 2008
Total Posts : 195
   Posted 12/15/2008 8:57 PM (GMT -6)   
I thought no one else suffered anxiety like i did. I always thought that maybe it was all in my head, but some days I just cant get over how it makes me feel. I guess it would be a good idea to talk to my doctor about it. I always worry that they will look at me funny because I am asking about yet. . . . another thing. Chasity I also just had a baby 9 months ago, well i guess not so recently, it feels like a millenium lol. Well i went through my whole pregnancy in a flare. I dont think I have ever really not been in a flare before. I had a pretty hard time with it. I gained only 11 lbs and Claire was 7 lbs 13 ozs of it. I also dealt with blood clots in my lungs unfortunately in my 7 month. Still to this day I am in a flare. The doctors can't find anything that seems to work for me. I am currently on methotrexate orally but has recently stopped working. So my doc has decided to do IM. My first dose of methotrexate was an IM and that seemed to help immediately. The oral not so much :( Throughout everything I have had an anxiety problem, worrying about to many things. I remember constantly worrying about having an under weight baby because i was in such a flare. It takes a lot to get my mind in a different frame of mind. Its definitely not a mind over matter thing when it comes to my anxiety. I have had panic attacks before and have been prescribed a drug to relax me. Cant think of the name at the moment. Well hope things get better for you and happy holidays. :)
Age:22/6"1'/146lb - Diagnosed: 2001 @ age 15 now 22
First time mom as of March 8th 2008
Past drugs: Pentasa, Flagyl, Budesonide, Prednisone, tons of Antibiotics, Didrocal, 6mp
Past herbal remedies and vitamins:Probiotics, Omega 3&6, Prenatal vitamins, B12, Calcium, iron, vit C, vit D, vit E, Selenium, mineral drops
Current drugs: Valtrex, Methotrexate as of October 2008
Problems:Fissure and Tags on rectum, blood clots, Chronic UTI's, Osteopenia, Ulcers in my decending Colon
No surgeries....yet. Gone through 5 G.I.'s found a 6th G.I. crossing my fingers
Procedures: 4 colonoscopies, 1 upper endoscopy, 2 barium swallows, 1 biopsy of the fissure and tag (chron's affected)

Veteran Member

Date Joined May 2007
Total Posts : 1284
   Posted 12/15/2008 9:08 PM (GMT -6)   
Believe me, I know that overanxious feeling all too well.... When you're not sick, you fear you're going to get sick... When you are sick, you think you're going to get worse and it'll never get better... //@.@\\'... You'd almost think anxiety was a symptom of this disease with how many Crohn's people worry about this sort of thing...
I think I am being picked on by life, sometimes. But's that okay. Life and I are good buddies... I know life doesn't mean no harm. It just is the way it is. I can accept that.

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