Surgical Question

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PwrToolGuy
Regular Member


Date Joined Feb 2007
Total Posts : 37
   Posted 12/16/2008 12:46 PM (GMT -7)   
Haven't come to the forum for quite some time, but am having a little ongoing problem.  A couple of years ago I had an abdominal abcess that has never healed.  The small hole in my right side continued to drain pus and on occasion I'm pretty sure fluid from inside has come out. 
 
My Crohn's has been prevelant in the area of the ileocecal valve.  After my last colonoscopy my doc explained to me that he couldn't get the scope through into the small intesting because the scaring was so bad.
 
This diseased portion of my bowel no doubt needs to be removed, but I am wondering if someone can point me to any infomation, or give me any input as to what happens after the removal of this valve.  I am wondering how it will affect bowel function, absorbsion, etc.
 
Any help, input would be appreciated.
Thanks,
Chris
 

Chronicallyill
Regular Member


Date Joined Apr 2008
Total Posts : 195
   Posted 12/16/2008 1:01 PM (GMT -7)   
I have no info for you but wish you all the best toolguy. :) happy holidays as well.
Age:22/6"1'/146lb - Diagnosed: 2001 @ age 15 now 22
First time mom as of March 8th 2008
Past drugs: Pentasa, Flagyl, Budesonide, Prednisone, tons of Antibiotics, Didrocal, 6mp
Past herbal remedies and vitamins:Probiotics, Omega 3&6, Prenatal vitamins, B12, Calcium, iron, vit C, vit D, vit E, Selenium, mineral drops
Current drugs: Valtrex, Methotrexate as of October 2008
Problems:Fissure and Tags on rectum, blood clots, Chronic UTI's, Osteopenia, Ulcers in my decending Colon
No surgeries....yet. Gone through 5 G.I.'s found a 6th G.I. crossing my fingers
Procedures: 4 colonoscopies, 1 upper endoscopy, 2 barium swallows, 1 biopsy of the fissure and tag (chron's affected)


Nanners
Elite Member


Date Joined Apr 2005
Total Posts : 14995
   Posted 12/16/2008 1:31 PM (GMT -7)   
I have had my valve removed and it hasn't given me any side effects. Some folks will get a increase in D afterwards, but I think they can use things such as Immodium or Questran to slow it down. I also have to take B12 shots every month. Although I get them bi-weekly because I get run down easily. (I don't think that part is a result of the surgery, more with the low res diet I use).
Been living with Crohn's Disease for 33 years.  Currently on Asacol, Prilosec, Estrace, Prinivil, Diltiazem, Percoset prn for pain, Zofran, Phenergan, Probiotics, and Calcium.  Resections in 2002 and 2005.  Also diagnosed with Fibromyalgia and Osteoarthritis. Currently my Crohns is in remission.


gachrons
Veteran Member


Date Joined Mar 2007
Total Posts : 4527
   Posted 12/16/2008 4:07 PM (GMT -7)   
Hi Since having my resection I have been pretty well pain free and having some mucus and going for a quick bit of pred, for 5 days to see if it helps get rid of it. I have been without bananas that seem to help me some. So will see how it goes I had surgery in Jan. to remove the TI about 10 inches. I was obstructing so was glad to get some relief. lol gail
Hallarious woman over 50 ,CD ,IBS 27 years--resection,fistula's,obstructions,hemmies,and still alive.lol gail


Wolfie40
Veteran Member


Date Joined Dec 2008
Total Posts : 947
   Posted 12/16/2008 5:28 PM (GMT -7)   
I too am curious as i'm going to have surgery in Feb 09.The doctor said that they would take the valve and my appendix out too. My disease is ony 12 cm so I really don't have it that bad yet. Just wondering if I will get "D" as that has only been an occasional problem at the moment. Also will I need to get more B12 injections? I get one every other month right now. Woild I need to take Vitamin D?

Thanks
Wolfie

Wolfie40
Veteran Member


Date Joined Dec 2008
Total Posts : 947
   Posted 12/17/2008 5:22 PM (GMT -7)   
Anyone?

gachrons
Veteran Member


Date Joined Mar 2007
Total Posts : 4527
   Posted 12/18/2008 4:13 AM (GMT -7)   
Hi I take vit D one shot a month for B-12 and a mult. vitamin that has vit K in it and calcium.Yes there are some vitties that you will need to take.lol gaill
Hallarious woman over 50 ,CD ,IBS 27 years--resection,fistula's,obstructions,hemmies,and still alive.lol gail


crohn's pt mom
Regular Member


Date Joined Nov 2008
Total Posts : 86
   Posted 12/18/2008 10:58 AM (GMT -7)   
Hi, my daughter had her appendix out along with that valve and a small amount of intestine.  She hasn't had any real problems but sometimes she does have D.  But she has learned what food causes it and pretty much stays away from it.  She certainly goes to the bathroom more than before but it hasn't been that bad - especially compared to this da__ abcess she has now.
 
Good luck.

PwrToolGuy
Regular Member


Date Joined Feb 2007
Total Posts : 37
   Posted 12/19/2008 11:01 PM (GMT -7)   

Interesting to hear all the replies so far.  Your input is much appreciated.  I have lived with pretty severe disease since I was 12 years old.  I'm 34 now.  Have had my appendix out, but have never let them take any intestine.  Only problem now is that if I eat heavy, I get what feels like a temporary blockage which causes some pretty bad pain for a couple of days. 

Other than that... I'm a pretty healthy, male, who works his butt off in his business.

I actually just got back from 9 hours of greulling snow shovelling.  My brother plows, other brother shovels with him, but it was so deep it took 4 of us twice as long.

Anyway, if anyone else has comments about having the valve removed it would be appreciated.  Seems to me that the after effects are pretty much the same as a crohn's patient's diet... unpredictible what's going to happen until you try it.

Thanks all.  Have a very Merry Christmas and Happy New Year.  For those that want politically correct.  Have a Happy Holiday Season.  Will check back every couple of days. 

Chris


randynoguts
Veteran Member


Date Joined Jan 2003
Total Posts : 6049
   Posted 12/20/2008 12:17 AM (GMT -7)   
ok, what the others have said is basically it. however, you sound like your asking 'why' , ok her it goes.. the ileocecal valve serves a couple of functions, one is to control the flow of waste into the colon., but the other i thinkl more important one is to control , actually to stop, the flow of colon contents into the small bowel. this being important because the bugs in the colon are differant than the bugs in the small bowel.. the 2 should never meet. so when the valve is removed, you lose the function of holding back waste thus giving you more frequent diarhea. also you lose the "backflow" function , leading to a increase is gas, bloating and diarhea as the bacteria in the colon spread into the small bowel. the same thing happens when you have aresection higher up in the small bowel. there are differant sections of bowel that do differant things, each part digesting differant parts of the food we eat, one for sugars, one for protiens, one for fats etc.. the resection of bowel cause these areas to be mostly or totaly removed thus throwing the digestive system into a state of disfunction. in time some people will adapt in the gut and largely resolve most of the issues. but the same mixing of gut bacteria will still happen causing problems such as gas, bloating, diarhea etc..

as for Vit D. not a big problem with the surgery your having. ask your dr to do an Vitamin assay before surgery and againg a few months after to see what your lacking...

Vit B12, is sometimes necessary because of the resectioning of the terminal ileum, or last part of the small intestine just before the ileocecal valve. this is the area that B12 is absorbed. when it is missing, oral supplements are pretty useless because they cannot be absorbed. so shots are given , usually monthly sometimes more or less often depending on simple bloodwork that your dr should be checking regularly. disease activity in this area can also cause a lack of absortion due to inflamation of the intestinal lining etc..

this ends the lesson for today, a short quiz will be given next week.
randynoguts 



     http://www.geocities.com/randynogutsweb/


LiLa
Regular Member


Date Joined Nov 2007
Total Posts : 106
   Posted 12/22/2008 7:13 AM (GMT -7)   
Hi There powertoolguy,

I too developed this disease around 12 yrs of age. And what i had was a severe case. Constant pain and D no matter what i ate. My life became miserable and i wasn't diagnosed until the age of 19 and had no choice at that stage other than surgery. I have crohns in the Terminal Ileum and had some intestine & the ileocecal valve removed. I went into surgery without giving it much thought - at that stage i didn't care if i'd died because the pain & D was unbearable and i was so sick from it. Anyway it was the best thing that ever happened to me - i quickly recovered from surgery, but thought it hadn't been a success because i was having D again all the time. Then i started taking Questran (i have to take it for the rest of my life) - 1 sachet every morning and it completely controlled the D. The pain is gone too. I'm 29 now and in good shape - apart from my family & close friends - nobody knows i have any sort of illness - compared to before surgery when i was stick thin and sick looking. I think i have a small amount of narrowing due to scar tissue at the point of anastomosis and i guess i could be facing another surgery within a few years to remove that. But that's the only downfall, it was worth it for nearly 10 years of feeling almost normal. I still have to watch what i eat all the time but it's a small price to pay. Anyway, best of luck with whatever decision you make...
Lila
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