Hi there Chronicallyill.
Well going on with what I've been told by my GI is that 80% of people with Crohns need an operation at some point of there lives. You might be one of the lucky ones that go without. I've gone without surgery for many years which was great, being young I done everything my friends have done. I've always participated in sport and even ran a few marathons so having Crohns hasn't really affected me like some until now... My mum has Crohns too and she has never needed surgery.. So look on the bright side and it might not even happen to you.
And I know what you mean about freaking out having a bag... Me too. I was shaking the other day when I asked my surgeon about that. He honestly looked at me if I was mad... And said No!! Only if things were to go seriously wrong..
Oh and by the way... When I had my first colonoscopy done at the age of 18 they suggested I have surgery done because of my stricture, at the time I was feeling fine so I ignored them, I'm now 36.
Unfortunately I feel the time has now come.. So Im going ahead with it as you know.
How do you feel now? my GI said having Crohns as long as I have and going without surgery is only a good thing, He hopes that it will remain that way after my operation. Good luck
Hey spiceman. Well my crohns to me is horrible, but talking to most of the people on here, not to sound rude, but I am doing pretty darn good i guess. I have a lot of diarhea all the time.When I get really sick I get lots of pain. Most of the time I block the pain. As my mom says I don't take my illness serious enough and sometimes let things go way to far. My doc also says i handle things way to well. I shrug a lot of it off. Looking at it now its kind of like I block it out. It's kind of a down fall because I forget the pain and keep on making my body suffer with the foods i LOVE to eat lol.
There was a point in highschool, my grade 12, that I got so sick my mom wanted to put me in the hospital. She was so scared for me because I went down to 120 lbs at 6"1'. I didnt thinking anything of my weight. For a couple months straight I would go to school ready to puke. Sometimes I would spend time over the toilet getting rid of the acid in my stomach, just by sitting, opening my mouth to let it water out, and would feel better right away. Other times I would puke and feel better also. At the time it was a lot of pain which caused the nausea. I was cr*pping myself silly to. I didn't miss a single day of school that whole time. I hated making up the work. My mom still shakes her head at me.
I havent had a flare that bad since, but I live in a flare every day. :(