went back to the gi today....

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lawgirl99
Regular Member


Date Joined Oct 2008
Total Posts : 22
   Posted 12/17/2008 12:26 PM (GMT -7)   
I went back to the GI doctor today and he has ordered more blood tests to be done and a bunch more stool samples to be done. He said that he wanted to recheck the blood because one of the blood tests for inflamation was a little higher then it should be. He failed to mention this before. He put me on imodule or something to that effect and it did not work. He says that usually when the colonoscopy and blood work and stool samples are fine the problem usually fixes itself. And the medicine has not worked. I have to go back on January 8th...and he said that he may want to look at my pancreas. He did not say why or how or anything. I just want some answers and am getting so tired. He says that it could still very likely be chrons and its just not where he could see it in the colonoscopy. He tells me I am becoming his problem child. My right eye has been itchy and red and gets blurry sometimes. He says that this could be a sign of inflammation somewhere. My sisters chrons is mainly in her colon and that area. Does it usually take this long to figure out what is going on. I just want to feel better. I am constantly tired. Anyone have any advice...

Nanners
Elite Member


Date Joined Apr 2005
Total Posts : 14995
   Posted 12/17/2008 12:34 PM (GMT -7)   
Sometimes it takes people years to get diagnosed. My suggestion would be to ask for a pill cam. Most people have had the most success in getting a Crohns diagnosis by having this test done. It shows the areas where the colonoscopy can't see. I sure wish you luck in getting your diagnosis.

Good luck,
Gail *Nanners8
Been living with Crohn's Disease for 33 years.  Currently on Asacol, Prilosec, Estrace, Prinivil, Diltiazem, Percoset prn for pain, Zofran, Phenergan, Probiotics, and Calcium.  Resections in 2002 and 2005.  Also diagnosed with Fibromyalgia and Osteoarthritis. Currently my Crohns is in remission.


labguy
New Member


Date Joined Dec 2008
Total Posts : 17
   Posted 12/17/2008 12:45 PM (GMT -7)   
I'm the father of a son who just found out he had Crohn's. One thing that I'm hearing consistently is that you should try the Specific Carb Diet. There are people on this forum much better informed than I am, but what I'm beginning to see is a possible link of Crohn's and bacterial inflammation...perhaps not limited to the digestive track (which could explain your eye issue). The diet seems to starve the malicious bacteria abating some of your symptoms. Inflammation is your bodies response to the infection. So I guess the first question is have you been introduced to the SCD (Specific Carb Diet)?

Keep in mind, I'm just learning this stuff.

gachrons
Veteran Member


Date Joined Mar 2007
Total Posts : 4527
   Posted 12/17/2008 1:02 PM (GMT -7)   
Hi Are you on pred. because I was wandering about your eye. Has he given you something for it? Sorry your Dr' called you a problem child not very nice. lol gail
Hallarious woman over 50 ,CD ,IBS 27 years--resection,fistula's,obstructions,hemmies,and still alive.lol gail


inflamed
Veteran Member


Date Joined Nov 2005
Total Posts : 1340
   Posted 12/17/2008 1:15 PM (GMT -7)   
I would get to an eye doctor. I had a bout of kerititis related to Crohn's and needed Rx drops to get it cleared up.
Hoping to stay in remission after the birth of a healthy baby girl. On Pentasa during my pregnancy, went med-free 2 months to nurse (stupid), but back on Pentasa and still nursing.


lawgirl99
Regular Member


Date Joined Oct 2008
Total Posts : 22
   Posted 12/17/2008 3:14 PM (GMT -7)   
The only medicine the doctor has given me has been the imodium stuff. He wanted to see if it would help because the over the counter stuff did not. And neither did the presception he gave me. He has not diagnosed me with anything yet, but he said since my sister has chrons and aunt has colitis he thinks that is probably what it is. He has not told me anything about any kind of diets or anything but on my own i have learned that spicy foods, carbonated soda, anything greesy...aka basically any type of fast food make it worse. Along with my eye i also have Hidradenitis Suppurativa. And he says that they are both probably related to the chrons he is just not finding anything. Also, my white blood cell count is really high too when he took the blood tests. Anyone know why he is going to look at my pancreas. I just want him to figure out something so I can start feeling better.

labguy
New Member


Date Joined Dec 2008
Total Posts : 17
   Posted 12/18/2008 8:26 AM (GMT -7)   
lawgirl, I've included a link to a website that has helped me. From what I've seen, most doctors specialists or otherwise don't mention or even know about the SCD. Many think that the success of this diet, and if it became mainstream would effect income of doctors, surgeons pharmaceutical companies, etc. I'm not quite there yet. However, I do feel that the GI doctors and the medical industry are intent on prescribing medication and surgery to treat Crohn's. Actually you can get a lot of the information if you read the post "Son just found out he had Crohn's" on this forum..... tons of good information. Definitely offers hope in a sometimes dismal situation.

http://www.breakingtheviciouscycle.info/index.htm

catpower
Regular Member


Date Joined Nov 2008
Total Posts : 192
   Posted 12/18/2008 8:33 AM (GMT -7)   
I am sorry you are having trouble getting a diagnosis. With regard to the pancreas, maybe he wants to make sure you don't have pancreatitis (which could cause elevated white blood count). Good luck!
Diagnosed with Crohn's Disease; Meds: Entocort & Asacol; female in late 20s.


MikeB
Veteran Member


Date Joined Mar 2006
Total Posts : 1169
   Posted 12/18/2008 8:42 AM (GMT -7)   
The imodium is strictly for symptom relief. It won't have any impact on any inflammatory processes  that might be related to your possible Crohns. As hard as it may be to accept, your best course of action right now is patience. The most important thing is to get a firm diagnosis nailed down so you can begin long term treatment. In general, doctors don't like to jump ahead with meds or diet changes until diagnosis, for two reasons -- because such treatment can mask signs and symptoms needed to establish the diagnosis, and because the wrong treatment could do more harm than good. Jan. 8th is not that far away. As Nanners says, it used to take months or years for a lot of us to get a firm diagnosis. It generally moves faster today, but there are still so many variables with this disease (and some other conditions like pancreatitis) that they have to follow a step-by-step process. One intiial question to ask when you go back is did your blood work show any elevated enzymes that would point to pancreas involvement? Those should have been part of your basic up-front blood testing. Good luck and remember that this disease pretty much requires us to be patient.
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