Started Humira today

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potty pooper
Regular Member


Date Joined Dec 2006
Total Posts : 375
   Posted 12/17/2008 1:47 PM (GMT -7)   
Hi everyone,
It's been a while since I posted.  So here's what's going on.
I had to go off of Remicade due to extreme difficulty in finding a suitable vein.  Tried 6MP, but had very bad reaction (extreme D and vomiting).  Have been on entocort for many months but don't think it's doing the job.
 
Today I had my first 4 shots of Humira.  Was going to try Cimzia but insurance required a large copay.  After reading the posts on the Humira injections, I was a little anxious.  However,the nurse explained everything and I gave myself two of the shots, one in the thigh, and one in the stomach.
For those of you experiencing problems/pain with the shots, this is what I learned:  warm the pens by holding them in your hands for about 10 minutes.  Apply just enough force to keep it in place.  After the shot, do not apply any pressure to the area.  I did have some pain but not as bad as I expected.  I never imagined that I would be able to give myself a shot in the stomach, but it was fine.
 
Hoping the Humira does the trick.  I'm soooooo tired of this DD.  Any improvement would be terrific.
 
Sending out hugs to all.
Potty

gachrons
Veteran Member


Date Joined Mar 2007
Total Posts : 4527
   Posted 12/17/2008 2:53 PM (GMT -7)   
Hi Hope it works good for you and yeh on giving yourself the shot .Let us know how it goes for you. lol gail
Hallarious woman over 50 ,CD ,IBS 27 years--resection,fistula's,obstructions,hemmies,and still alive.lol gail


Pink66
New Member


Date Joined Dec 2008
Total Posts : 4
   Posted 12/17/2008 2:59 PM (GMT -7)   
Yes, I am anxious to hear how you are doing as well.  I was diagnosed with Crohn's yesterday, and I am horrified from all the side effects I am reading about the medications.  Good luck, I hope all goes well!
 
Pink66

LMills
Veteran Member


Date Joined Apr 2008
Total Posts : 1753
   Posted 12/17/2008 3:26 PM (GMT -7)   
I hope it works for you! I'm glad to hear you didn't have trouble giving yourself the injections. I hope this ease continues. Keep us updated on how the humira is working!
20 years old, Diagnosed with moderate to severe Crohn's and Colitis in May of 2008.
Currently taking:
Prednisone 30 mg, pentasa 2 pills 4x a day, bentyl as needed, prilosec in the morning, tandem plus, humira every other week, and good probiotics.
Surgery for ectopic pregnancy most likely the result of severe Crohn's inflammation in July of 2008.
Attempting the specific carbohydrate diet. Cheated once for Christmas.

"He who has a why to live for can bear with almost any how."


CrohnsDaddy
Regular Member


Date Joined Oct 2007
Total Posts : 235
   Posted 12/18/2008 10:26 AM (GMT -7)   
Here's another guy hoping for rapid relief for you. This disease just sucks so bad.

I didn't get much relief from Humira, but there are those that have seen a tremendous improvement from it. Some people get relief in as little as a couple days after their loading injections, others have reported it taking up to two months for any improvement.

My two cents on relatively pain-free Humira shots: I used the auto injector pens, in the *upper* thigh, and iced down the injection site to the point of numbness (just don't give yourself frost bite!!) prior to the shot. Pinching the injection site *hard* and holding the pinch during the entire injection also helps. Don't let go of the pinch until after you have withdrawn the needle. I tried many techniques over the nine months I was on Humira, and that was the least painful method.

Let us know how it goes!
Just trying to be a "Regular Member".


Entocort 9 mg/day, Prednisone 20 mg/day, started Humira 1/22/08, started 100 mg of Azasan (Imuran) 2/20/08. Increased Azasan to 150 mg 10/15/08. Discontinued Humira 11/03/08 after extreme fatigue and moderate muscle aches. Started Cimzia 12/4/08. Down to 10 mg/day of Pred now, and will continue to taper until completely off as long as the other meds keep me off the porcelain.



I'm convinced that Prednisone is the root of all evil, and primarily responsible for global warming.


Nanners
Elite Member


Date Joined Apr 2005
Total Posts : 14995
   Posted 12/18/2008 10:52 AM (GMT -7)   
Hopefully this med will be what you need to get into remission. Keep us posted.
Been living with Crohn's Disease for 33 years.  Currently on Asacol, Prilosec, Estrace, Prinivil, Diltiazem, Percoset prn for pain, Zofran, Phenergan, Probiotics, and Calcium.  Resections in 2002 and 2005.  Also diagnosed with Fibromyalgia and Osteoarthritis. Currently my Crohns is in remission.


potty pooper
Regular Member


Date Joined Dec 2006
Total Posts : 375
   Posted 12/19/2008 8:44 PM (GMT -7)   
Thanks everyone for your encouragement and good wishes. I really appreciate the support. Will keep you posted.
Potty

teddybearweiser
Veteran Member


Date Joined Oct 2004
Total Posts : 3042
   Posted 12/20/2008 1:47 AM (GMT -7)   
Hi Potty I hope you have good luck with Humira.
Hi, I am teddybearweiser, I am a male.
I was diagnosed with crohns disease when i was admitted to the hospital

in 1992, in Jan of 1993 I was back in the hospital for surgery for my crohns. I had part of my right colon resectioned with ilecolonstomy.

My GI doctor has me on Asacol, Dicyclomine,Imuran,Celebrex and Remicade. B-12 injection once a month.
Also diagnosed with Osteoarthritis and Rheumatoid Arthritis

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