Mouth sores, anyone?

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hukleberrie
Regular Member


Date Joined Jan 2008
Total Posts : 491
   Posted 12/17/2008 4:26 PM (GMT -7)   
Does anyone get mouth sores? I have a canker sore or something that came about today & just wondering what mouth sores that come along with CD look like or feel like... are they in a normal spot, or can they be anywhere? Mine is on the roof of my mouth. Kind of a white thing. Maybe it was just something I ate. I used to get canker sores a lot, but those were always on my inside of my lips, not on the roof of my mouth.

Just curious....
Live for today, for tomorrow you might just get hit by a semi.


LMills
Veteran Member


Date Joined Apr 2008
Total Posts : 1753
   Posted 12/17/2008 4:30 PM (GMT -7)   
I used to get them a while back, but one of the medications prescribed by my doctor(not sure which) helped things get better. If it's white and begins to spread then you might consider the possibility of thrush or a simple yeast infection. It's not really anything to worry about...it's just irritating. I took diflucan for two or three days to treat it, and it disappeared completely.
20 years old, Diagnosed with moderate to severe Crohn's and Colitis in May of 2008.
Currently taking:
Prednisone 30 mg, pentasa 2 pills 4x a day, bentyl as needed, prilosec in the morning, tandem plus, humira every other week, and good probiotics.
Surgery for ectopic pregnancy most likely the result of severe Crohn's inflammation in July of 2008.
Attempting the specific carbohydrate diet. Cheated once for Christmas.

"He who has a why to live for can bear with almost any how."


indigosunrise
Regular Member


Date Joined Nov 2007
Total Posts : 497
   Posted 12/17/2008 4:45 PM (GMT -7)   

That sounds like the sores I get from Crohn's.  Mine have a white center and hurt pretty bad, depending on where they are.  I have had them on my tongue, the inside of my cheeks, the roof of my mouth...they are not fun.  Mine seem to come on at the very start of a flare.  They have not been as bad since I started on Pentasa and I am hoping the Remicade keeps them away. 

When they were really bad, I would put Kanka on them.  It helped but numbs everything else up in the process!  :-)


hukleberrie
Regular Member


Date Joined Jan 2008
Total Posts : 491
   Posted 12/17/2008 4:52 PM (GMT -7)   
I couldn't get a really good look as it's on the roof of my mouth, but looks like a sore, similar to canker sores I used to get. It is really sore. Hmmm. I have used stuff for the cankers, sounds like I should do the same thing, numb it & try to ignore it.

Thanks!
Live for today, for tomorrow you might just get hit by a semi.


pb4
Elite Member


Date Joined Feb 2004
Total Posts : 20576
   Posted 12/17/2008 8:11 PM (GMT -7)   
Since I started taking Primadophilus Reuteri probiotic I haven't gotten a single mouth sore since and I used to get them terribly, they looked like deep ulcerations in the roof of my mouth, long and wide in some spots.

:)
My bum is broken....there's a big crack down the middle of it! LOL :)


Osprey101
Regular Member


Date Joined Apr 2008
Total Posts : 227
   Posted 12/17/2008 8:27 PM (GMT -7)   
I used to get them. They went away when I got the wheat out of my diet.

B vitamin supplementation may help; deficiencies of various B vits can cause aphthous ulcers, which is probably how Crohn's causes them.

pb4
Elite Member


Date Joined Feb 2004
Total Posts : 20576
   Posted 12/17/2008 9:59 PM (GMT -7)   
Ya, I had vitamin B deficiencies but even taking 1200mcg of B12 daily didn't keep the mouth ulcers at bay, it wasn't until I started with the primadophilus.

:)
My bum is broken....there's a big crack down the middle of it! LOL :)


DMom
New Member


Date Joined Jul 2008
Total Posts : 7
   Posted 12/18/2008 8:34 AM (GMT -7)   
My son used to get them, but hasn't for awhile now - I think this is because he regularly eats home made yogurt.

When he did get them, we used oil of oregano, sort of like a mouth wash, or put it directly on the mouth sore as soon as he felt it. It seemed to work like magic and heal it, making it go away before it became big and quite painful. I have tried this too, because I get canker sores when I eat sweets... it did the trick.

Hope you are able to get rid of the sore(s) soon
Mom of 13 year old son diagnosed with Crohn's in Sept 07. Protocol: probiotics, good multi vit, Omega 3, calcium, Boswellia, iron, peppermint oil, weaning off Pentasa (3 per day). Diet: gluten, dairy, egg, and soy free. Always looking for delicious recipes and a better understanding of IBD.


catpower
Regular Member


Date Joined Nov 2008
Total Posts : 192
   Posted 12/18/2008 8:37 AM (GMT -7)   
I get them usually with a flare or when my stomach is generally not feeling well. My GI said it's related to Crohn's. They are painful. For me, gargling with warm salt water helps get rid of them faster.
Diagnosed with Crohn's Disease; Meds: Entocort & Asacol; female in late 20s.


hukleberrie
Regular Member


Date Joined Jan 2008
Total Posts : 491
   Posted 12/18/2008 8:54 AM (GMT -7)   
Well, I have been having problems lately. Wasn't really sure if it's related to GI issues or if it's just a canker.

I will try some of your remedies.
Live for today, for tomorrow you might just get hit by a semi.


Mihee
Regular Member


Date Joined Jan 2005
Total Posts : 155
   Posted 12/18/2008 1:25 PM (GMT -7)   
A good mouth solution for Crohn's mouth sores:
1/2 Milk of Magnesia and 1/2 benadryl.  Swish around in mouth-spit out.  Worked great for me.

Nanners
Elite Member


Date Joined Apr 2005
Total Posts : 14995
   Posted 12/18/2008 2:03 PM (GMT -7)   
Huckleberrie I know you were diagnosed with Crohns then undiagnosed. I swear I think you do have Crohns. You keep getting more and more symptoms of the disease all the time. Hope you get this latest one fixed soon.

Good luck,
Gail *Nanners*
Been living with Crohn's Disease for 33 years.  Currently on Asacol, Prilosec, Estrace, Prinivil, Diltiazem, Percoset prn for pain, Zofran, Phenergan, Probiotics, and Calcium.  Resections in 2002 and 2005.  Also diagnosed with Fibromyalgia and Osteoarthritis. Currently my Crohns is in remission.


auntkay
Veteran Member


Date Joined Apr 2004
Total Posts : 1199
   Posted 12/18/2008 5:05 PM (GMT -7)   
I have one right now in the roof of my mouth. I'ts about a week old and still very sore. I never thought it was crohn's related but hey as time goes on more and more symptoms appear.
Kay

indigosunrise
Regular Member


Date Joined Nov 2007
Total Posts : 497
   Posted 12/18/2008 6:53 PM (GMT -7)   
This may be a little off topic, but how can you be diagnosed with Crohn's then undiagnosed? Isn't that like a diabetic getting their blood sugar tested and having it be within normal range for once and having the diabetes diagnosis taken away? Maybe that's a bad analogy, but it really just doesn't make sense to me.

These sores are so painful and to have them NOT know or change the diagnosis has got to be frustrating. No one wants this disease, BUT if you have it, you want to be treated for it. Like Nanners said, I hope this gets solved for you soon!

Keep us posted as to what is happening. I wish you the best!

sbcgrace
Regular Member


Date Joined Nov 2006
Total Posts : 281
   Posted 12/18/2008 8:47 PM (GMT -7)   
I have had mouth sores like you are describing for as long as I can remember. My doctor thinks that I have had crohn's for quite a bit longer than I can trace the timeline back.

Remember that crohn's can present itself anywhere in the digestive track from mouth to anus.

Currently 3 x per day 1000mgs Pentasa, Entocort (3mgs), Prilosec, multi vitamin, biotin, Lortab, Librax (for spasms) & VSL#3 (for probiotics) or activia yogurt.

Preparing to start Remicade because I am steroid dependent now.


nruth
Regular Member


Date Joined Mar 2006
Total Posts : 195
   Posted 12/18/2008 9:18 PM (GMT -7)   
I've had canker sores all my life; I've found that frequent rinsing of the mouth with plain old hydrogen peroxide works wonders. It's cheap and painless and actually works..at least for me. I ate a bit too much candy last weekend and ended up with a humongous sore on the inside of my cheek. It hurt like the devil, but luckily only lasted a couple of days. 
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