Could it be the Humira?

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Regular Member

Date Joined Jul 2007
Total Posts : 73
   Posted 12/18/2008 12:18 PM (GMT -6)   
So I had my first dose of Humira about a week ago.  Everything went fine.  No reactions or anything.  I've have always gotten lots of headaches, so I can't say that those are from Humira.  Today, however, for the first time I got what was apparently an occular migraine.  Had this bright zig zag line in my vision that I couldn't see around.  My boss told me what it probably was because he had had them.  Very scary.  Never had this before, never diagnosed with migraines.  I just have to consider the possibility that since it's the first time, maybe it's the Humira.  I think I'm goign to go see my eye doctor, but I'm looking for some input on this.  Thanks.   
Munchkin 81
27 year old female.  DX June 2007.
abscess Nov. 2006 - drain and surgery
Resection 11/07
Resection 4/08
on Remicade.  reaction during 4th infusion
on Humira

Veteran Member

Date Joined Apr 2008
Total Posts : 1753
   Posted 12/18/2008 9:13 PM (GMT -6)   
I've had some pretty terrible headaches after I began taking humira, but not the kind of migraines you're describing...I haven't had a real migraine since I was 16 or 17 years old so...have you spoken with a doctor or nurse about it?
20 years old, Diagnosed with moderate to severe Crohn's and Colitis in May of 2008.
Currently taking:
Prednisone 30 mg, pentasa 2 pills 4x a day, bentyl as needed, prilosec in the morning, tandem plus, humira every other week, and good probiotics.
Surgery for ectopic pregnancy most likely the result of severe Crohn's inflammation in July of 2008.
Attempting the specific carbohydrate diet. Cheated once for Christmas.

"He who has a why to live for can bear with almost any how."

Regular Member

Date Joined Oct 2007
Total Posts : 289
   Posted 12/18/2008 9:23 PM (GMT -6)   

I had terrible headaches from Humira!!


Good luck wink

Regular Member

Date Joined Nov 2003
Total Posts : 134
   Posted 12/30/2008 10:32 AM (GMT -6)   
Hi. I recently started Humira (just had the 2nd dose Saturday). I do suffer from headaches and migraines, and have not noticed an increase in headaches since I started Humira.

What I have noticed, and am not sure if it's a side effect from the Humira, is terrible stomach and back pain. After the initial dose of the starter kit, I didn't notice any effects from it at all. The terrible stomach and back pain came about 6 hours after I gave myself the 2nd dose. At first I was fine and even went to the gym within 2 hours. Later that day I started to have terrible pain in my stomach, going through my sides and into my middle back on both sides. I was bloated and heating pads helped with the pain slightly. This lasted for 2 days and finally let up. On the third day I had slight pain occasionally, but my stomach really started to bother me while I was at the gym and worsened on my way home, so that I vomited a few times and then started to finally get some relief.

I am currently on Humira, 3 pills of Lialda daily, Nexium, a mutli viatmin, an antibiotic for the drug induced acne, and vitamin D weekly. I had a scope over the summer, which didn't show any active disease and my blood results came in normal in Mid December. I had been on methotrexate for about 3 years and had stopped that 10 months ago, and my joint pain has come back with a vengeance in the last few months. My doctor put me on Humira for the joint pain and hoping it could get my bowels back under control ( it ranges from D to constipation), even though she still insists that I'm in remission due to the scope this summer and normal range blood work.

Has anyone noticed this side effect from Humira? Also, I know many of your have had "normal" scopes and bloodwork and am wondering if there is any thoughts on what could be going on. My GI says it's possible I have IBS as well, but I'm not sure I agree with her thinking, since the same foods never affect me the same way, it all depends on the day.

Thanks in advance,
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