Hi all, I'm new here

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DancrAlwaz
Regular Member


Date Joined Dec 2008
Total Posts : 38
   Posted 12/18/2008 11:06 AM (GMT -7)   
Hello everyone! I just found this site, and it's been a great help so far. I'm 24 years old, diagnosed Dec. 2005 with Crohn's disease. Luckily mine doesn't seem to be too terribly awful, but right now I'm going thru my 2nd flare since my diagnosis. Currently I am on 40 mg of Prednisone, Azathioprine, and Lialda. I have been on the Pred and Lialda for a week now, Azathiprine for 2 weeks.

This flare I take all responsibility for, being 24 I didn't want to accept that I have a chronic condition, and didn't take my medicine when I was feeling well, so it's my own fault I flared up.

I have a colonoscopy scheduled for Jan 9th, hopefully I haven't done too much damage.

Right now my symptoms are nausea, slight cramping, back ache, joint pain, sudden urges that usually don't result in much, some blood, and some mucus. The mornings are always the worst for me, I always have the most pain and most blood then. I haven't slept thru the night in about 3 weeks, getting up between 3 and 6 times to use the bathroom.

My question is, how long does prednisone usually take to kick in? The first time I got it, I was in the hospital so I was getting in thru an IV, and it seemed to work pretty quickly. I've been on it for a week now, and I guess I thought it would work before then. I haven't been able to find anything that gives a general idea of how long it will take (I know everyone reacts differently). I will be on the 40 mg at least until Jan 9th.

Also, is there anything I can do about the nausea? I've put in 2 calls to my GI's assistant, and she has yet to return my calls, or call in a Rx to the pharmacy. I would feel pretty well if I didn't feel like I was going to throw up all the time.

Thanks :)
Rachael - 24 years old, diagnosed with CD in Dec. of 2004.

Currently on 40 mg of Prednisone, Lialda, and Azathioprine.

I thank God every day for an amazing support network of family, my boyfriend who has been there since the beginning, and my amazing friends who never waver.

Post Edited (DancrAlwaz) : 12/18/2008 11:14:32 AM (GMT-7)


CrohnsDaddy
Regular Member


Date Joined Oct 2007
Total Posts : 235
   Posted 12/18/2008 11:17 AM (GMT -7)   
Prednisone still seems to be the one med that is really capable of knocking Crohn's down the most effectively. How long it takes to work depends on how bad your flare is. Since I have mild Crohn's, it works in about three days to get max effect, but I can tell a difference in a day. But if you have open sores (bleeding) and severe inflammation, there's alot more healing that needs to take place, and it can take alot longer for the pred to get you on the mend.

I've had good luck in managing nausea with Phenegran (promethazine).
Just trying to be a "Regular Member".


Entocort 9 mg/day, Prednisone 20 mg/day, started Humira 1/22/08, started 100 mg of Azasan (Imuran) 2/20/08. Increased Azasan to 150 mg 10/15/08. Discontinued Humira 11/03/08 after extreme fatigue and moderate muscle aches. Started Cimzia 12/4/08. Down to 10 mg/day of Pred now, and will continue to taper until completely off as long as the other meds keep me off the porcelain.



I'm convinced that Prednisone is the root of all evil, and primarily responsible for global warming.


DancrAlwaz
Regular Member


Date Joined Dec 2008
Total Posts : 38
   Posted 12/18/2008 11:22 AM (GMT -7)   
Thanks CrohnsDaddy. I'm pretty sure I have an open sore, as I was bleeding pretty heavily before I started all the meds, and I still have some bleeding, mostly in the mornings. Patience has never been my strong point :)

Now that you say promethazine, the ER doctor gave me a Rx of that a couple of weeks ago. It works pretty well for me, except that it completely knocks me out, so I can only take it right before bed. There is no way I could work, drive, or function while being on it. I'm wondering if something OTC would work better, since it would be milder (Pepto-Bismal or something)
Rachael - 24 years old, diagnosed with CD in Dec. of 2004.

Currently on 40 mg of Prednisone, Lialda, and Azathioprine.

I thank God every day for an amazing support network of family, my boyfriend who has been there since the beginning, and my amazing friends who never waver.


CrohnsDaddy
Regular Member


Date Joined Oct 2007
Total Posts : 235
   Posted 12/18/2008 11:27 AM (GMT -7)   
Yeah, unfortunately most all of the prescription anti-emetics make you sleepy. Personally, I can't take pepto-bismol as it aggravates my crohns really bad. Also, if you are taking Lialda (or any other form of mesalamine), make sure you talk to your doctor before taking pepto-bismol, as it contains bi****h subsalicylate, which is a close relative of mesalamine. Most doctors will tell you not to take mesalamine and pepto bismol together.

Sure hope that pred kicks in soon for you.
Just trying to be a "Regular Member".


Entocort 9 mg/day, Prednisone 20 mg/day, started Humira 1/22/08, started 100 mg of Azasan (Imuran) 2/20/08. Increased Azasan to 150 mg 10/15/08. Discontinued Humira 11/03/08 after extreme fatigue and moderate muscle aches. Started Cimzia 12/4/08. Down to 10 mg/day of Pred now, and will continue to taper until completely off as long as the other meds keep me off the porcelain.



I'm convinced that Prednisone is the root of all evil, and primarily responsible for global warming.


DancrAlwaz
Regular Member


Date Joined Dec 2008
Total Posts : 38
   Posted 12/18/2008 11:41 AM (GMT -7)   
Thanks for the information on the Pepto. I didn't know they could interact badly. I guess if my doctor would call me back, I could know these sorts of things.

I was able to eat today for the first time in a few days, and I had a banana-strawberry-yogurt smoothie BEFORE taking the prednisone, and that seemed to help a bit with the nausea. I think that was part of the problem - I didn't have anything to help with the absorption of all the meds. I'll do the same tomorrow and hopefully that will make some of it go away.
Rachael - 24 years old, diagnosed with CD in Dec. of 2004.

Currently on 40 mg of Prednisone, Lialda, and Azathioprine.

I thank God every day for an amazing support network of family, my boyfriend who has been there since the beginning, and my amazing friends who never waver.


CrohnsDaddy
Regular Member


Date Joined Oct 2007
Total Posts : 235
   Posted 12/18/2008 12:06 PM (GMT -7)   
Even on days when I know eating is going to be a bad idea (isn't it funny how you can just tell on the days where eating breakfast is going to have a lasting bathroom effect?), I still eat a full breakfast before taking prednisone and azathioprine, as both are known to make you very nauseated when taken on an empty stomach. My doc told me I could take the azathioprine at night along with a promethazine if the nausea got too bad. But again, that was my doc.... make sure you talk to yours before you do something similar.
Just trying to be a "Regular Member".


Entocort 9 mg/day, Prednisone 20 mg/day, started Humira 1/22/08, started 100 mg of Azasan (Imuran) 2/20/08. Increased Azasan to 150 mg 10/15/08. Discontinued Humira 11/03/08 after extreme fatigue and moderate muscle aches. Started Cimzia 12/4/08. Down to 10 mg/day of Pred now, and will continue to taper until completely off as long as the other meds keep me off the porcelain.



I'm convinced that Prednisone is the root of all evil, and primarily responsible for global warming.


mj8dokken
Regular Member


Date Joined Dec 2006
Total Posts : 149
   Posted 12/18/2008 12:49 PM (GMT -7)   
Yes, be careful with Pepto Bismol as I too had a bad reaction to it when I took it for the flu a few months ago.

Bad flare May '06 resulted in CD diagnosis
 
Asacol: 4800 mg/day; Entocort: 9mg/day; Metronidazol
Started seeing a Naturopath-Castor Oil Packs, Liquid B Complex, Floragen, Ribes Nigrum, Herbal GI, Chlorella
 
"Life isn't about how to survive the storm, but how to dance in the rain"


Nanners
Elite Member


Date Joined Apr 2005
Total Posts : 14995
   Posted 12/18/2008 1:57 PM (GMT -7)   
Hi Rachel and welcome to Healingwell. CrohnsDaddy is right you really need to take your meds with some type of food or the nausea will get you everytime. I found that the Imuran (brand name) really made me nauseaous, so they switched me to the sister med 6mp and I did much better on that. Also taking it at bedtime might help (the Imuran that is) ease some of the side effects. The Prednisone you should take first thing in the a.m., but also take it with some type of food i.e. bread/toast, because it can upset your tummy too. Also, I would suggest you ask your doc about Zofran for the nausea. That is another type of nausea med and it works great without all the drowsiness that you get with the Phenergan. You might want to ask for that. There is also Tigan for nausea, but I didn't find that one to work very well. Over the counter you can get Dramamine to help with nausea, but that can cause drowsiness too. As for the Pepto, I wouldn't take that either, as it has the same components of aspirin in it, and that can add to the bleeding. Aspirin, Ibruprofen, and Aleve are all no no meds for us Crohnies.

I hope I was of some help and again welcome to Healingwell. Its like a family here and I know you will come to love the site and folks too.

God Bless,
Gail *Nanners*
Been living with Crohn's Disease for 33 years.  Currently on Asacol, Prilosec, Estrace, Prinivil, Diltiazem, Percoset prn for pain, Zofran, Phenergan, Probiotics, and Calcium.  Resections in 2002 and 2005.  Also diagnosed with Fibromyalgia and Osteoarthritis. Currently my Crohns is in remission.


gachrons
Veteran Member


Date Joined Mar 2007
Total Posts : 4527
   Posted 12/18/2008 5:00 PM (GMT -7)   
Hi and welcome .I just started a short course of pred and did get a perscription of Novo -Ranitidine to take with it .I eat breakfast and take my meds half way threw the breakfast. I get killer heartburn with the pred. the Ranitidine cuts out the acid. So you might need a perscription for something to help I'd get back to your Dr. on it.. lol gail
Hallarious woman over 50 ,CD ,IBS 27 years--resection,fistula's,obstructions,hemmies,and still alive.lol gail

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