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Regular Member

Date Joined Dec 2008
Total Posts : 57
   Posted 12/18/2008 4:36 PM (GMT -6)   
Hi Everyone, A Calfornia friend gave me this site to explore and as I scroll down , I feel like I am right at home from the Humira to the Opium to the the Lialald, etc.  I can.t wait to read what everyone has to say but I am so glad I took her advise and signed on.  I have been diagnosed with Crohn's and Chrhn's Colitis for almost a year but I know in my heart I have had them both for over 30 years.  The damage to  my colon is irrepabble and I take Humira, Opium, Lialda, Pamine, and 5 differnt vitamins that my GI perscribes for me.  Currently nothing is helping and I have lost 37 lbs. in a year.  My nights and my days are awful and I make very few plans.  I sleep on 4 towels and a plastic wrap that goes around our sheets.  All I can say is I am blessed with the most wonderful husband in the world.  I am sure we all feel that way about our spouses.  I also suffer from migraine headaches so some of the medicines counteract one another but that is a whole other issue.  I can't wait to chat with everyone and just learn and listen from each of you.  A hurting woman.

Veteran Member

Date Joined Feb 2003
Total Posts : 1811
   Posted 12/18/2008 4:41 PM (GMT -6)   
Gram - welcome to the site! I'm sorry you've had to find your way here, but this place IS great and there is a FABULOUS support system here. Feel free to post and we can't wait to get to know you!

Regular Member

Date Joined Dec 2006
Total Posts : 149
   Posted 12/18/2008 4:57 PM (GMT -6)   
Welcome! I hope you find as much support and comfort here as the rest of us. :)

Bad flare May '06 resulted in CD diagnosis
Asacol: 4800 mg/day; Entocort: 9mg/day; Metronidazol
Started seeing a Naturopath-Castor Oil Packs, Liquid B Complex, Floragen, Ribes Nigrum, Herbal GI, Chlorella
"Life isn't about how to survive the storm, but how to dance in the rain"

Regular Member

Date Joined Nov 2008
Total Posts : 192
   Posted 12/18/2008 5:18 PM (GMT -6)   
Diagnosed with Crohn's Disease; Meds: Entocort & Asacol; female in late 20s.

Veteran Member

Date Joined Mar 2007
Total Posts : 4527
   Posted 12/18/2008 6:09 PM (GMT -6)   
Hi Welcome to Healing Well and glad you joined us.I found it interesting when you mentioned you sleep on plastic and towels because I was having alot of incontinent problems before my resection in Jan. and it was hard to get any sleep because I was so imflamed and blocked that it was causing alot of problems that have gone away since my surgery that being one of them. Has your Dr. said how much of your colon is bad or mentioned if surgery would help? lol gail
Hallarious woman over 50 ,CD ,IBS 27 years--resection,fistula's,obstructions,hemmies,and still gail

Veteran Member

Date Joined Jan 2007
Total Posts : 3200
   Posted 12/18/2008 7:21 PM (GMT -6)   
Welcome, you really seem to be having problems, and I know what you mean about the migraine meds, I'm frightened to take mine
these days. Is your doctor aware of your weight loss and bedtime problems?

Too many years with CD
Two bowel resections, several obstructions.
Fibromyalgia and recently diagnosed with chronic pancreatitis and lupus.
B12 Shots bi-weekly

Laughter is the brush that sweeps the cobwebs from our hearts...

Veteran Member

Date Joined Apr 2008
Total Posts : 1753
   Posted 12/18/2008 9:10 PM (GMT -6)   
I just wanted to welcome you to this site!! I think you'll find an abundance of truly helpful information and never ending support. I know this place has helped preserve my sanity more than once..and the encouragement helps you keep going. I hope you keep posting!
20 years old, Diagnosed with moderate to severe Crohn's and Colitis in May of 2008.
Currently taking:
Prednisone 30 mg, pentasa 2 pills 4x a day, bentyl as needed, prilosec in the morning, tandem plus, humira every other week, and good probiotics.
Surgery for ectopic pregnancy most likely the result of severe Crohn's inflammation in July of 2008.
Attempting the specific carbohydrate diet. Cheated once for Christmas.

"He who has a why to live for can bear with almost any how."

Regular Member

Date Joined Feb 2008
Total Posts : 298
   Posted 12/18/2008 11:36 PM (GMT -6)   
Welcome omigrandma!!!

Regular Member

Date Joined Dec 2008
Total Posts : 42
   Posted 12/19/2008 12:09 AM (GMT -6)   
Hey Hi Hello omigrandma! It is only my second day on here and I starting to feel better because I finally have people to connect with.
Don't judge a book by its movie.
In the past I have taken Asacol, 6mp, Prednisone(3x),  Remicade, Flagyl, Cipro, Phenergan, Colazal(think there was others).                       
I am on Metoprolol for high blood pressure and heart beating too fast. On Citalopram for my anxiety and depression. Started taking fish oil capsule for my high cholesterol. On Calcium pills. On Remicade(its my second time being on it because a former doctor refuse to give it to me so I left) 
Diagnosed at age 14 in 2001, first started sick getting at age 13, Sept 2000. I am now 21

Veteran Member

Date Joined Oct 2004
Total Posts : 3042
   Posted 12/19/2008 3:42 AM (GMT -6)   
Hi and Welcome to HW.
Hi, I am teddybearweiser, I am a male.
I was diagnosed with crohns disease when i was admitted to the hospital

in 1992, in Jan of 1993 I was back in the hospital for surgery for my crohns. I had part of my right colon resectioned with ilecolonstomy.

My GI doctor has me on Asacol, Dicyclomine,Imuran,Celebrex and Remicade. B-12 injection once a month.
Also diagnosed with Osteoarthritis and Rheumatoid Arthritis

Elite Member

Date Joined Apr 2005
Total Posts : 14995
   Posted 12/19/2008 10:07 AM (GMT -6)   
Omigrandma so glad that you signed up. I am hoping you are the same lady I led to this site. As you can see already, we have some wonderful and supportive folks on this site who are suffering right along with you with this darn disease. I hope you will be able to take what you need from this site and to also share your own experiences. Welcome and we look forward to hearing more from you.

God Bless,
Gail *Nanners*
Been living with Crohn's Disease for 33 years.  Currently on Asacol, Prilosec, Estrace, Prinivil, Diltiazem, Percoset prn for pain, Zofran, Phenergan, Probiotics, and Calcium.  Resections in 2002 and 2005.  Also diagnosed with Fibromyalgia and Osteoarthritis. Currently my Crohns is in remission.

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