Anyone addicted to food despite the pain LOL

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Chronicallyill
Regular Member


Date Joined Apr 2008
Total Posts : 195
   Posted 12/18/2008 10:35 PM (GMT -7)   
I definitely am addicted to food LOL
 
Nessa.
Age:22/6"1'/146lb - Diagnosed: 2001 @ age 15 now 22
First time mom as of March 8th 2008
Past drugs: Pentasa, Flagyl, Budesonide, Prednisone, tons of Antibiotics, Didrocal, 6mp
Past herbal remedies and vitamins:Probiotics, Omega 3&6, Prenatal vitamins, B12, Calcium, iron, vit C, vit D, vit E, Selenium, mineral drops
Current drugs: Valtrex, Methotrexate as of October 2008
Problems:Fissure and Tags on rectum, blood clots, Chronic UTI's, Osteopenia, Ulcers in my decending Colon
No surgeries....yet. Gone through 5 G.I.'s found a 6th G.I. crossing my fingers
Procedures: 4 colonoscopies, 1 upper endoscopy, 2 barium swallows, 1 biopsy of the fissure and tag (chron's affected)


LMills
Veteran Member


Date Joined Apr 2008
Total Posts : 1753
   Posted 12/18/2008 10:37 PM (GMT -7)   
I think that might be part of what caused my diagnosis!! I'd eat and eat even when I was feeling terrible. Espresso, coffee, pizza, candy...it was the few moments in my life that I actually didn't take care of myself and eat healthy food. It might have just been a shock to my system...
Hadn't been eating much lately because of this illness, but lately I feel that appetite coming on again...
Here is to us practicing the right kind of self control :) I'm pretty good at avoiding food I should eat when I'm in a foul mood.
20 years old, Diagnosed with moderate to severe Crohn's and Colitis in May of 2008.
Currently taking:
Prednisone 30 mg, pentasa 2 pills 4x a day, bentyl as needed, prilosec in the morning, tandem plus, humira every other week, and good probiotics.
Surgery for ectopic pregnancy most likely the result of severe Crohn's inflammation in July of 2008.
Attempting the specific carbohydrate diet. Cheated once for Christmas.

"He who has a why to live for can bear with almost any how."


Chronicallyill
Regular Member


Date Joined Apr 2008
Total Posts : 195
   Posted 12/18/2008 10:45 PM (GMT -7)   
Hey there LMills. I am the opposite when it comes to being in a bad mood. Well it depends on how mad I am. When I am frustrated and stuff I eat and eat and eat and eat. :( I tend to over eat most of the time. Which is a double whammy on my system because most of the time it's cr*p food that I binge on. If I am royally p'd I forget to eat. I lose my appetite. I notice that when I am in a flare I tend to go for high sugar and carbed foods. Like bread and chocolate. Bad Bad bad. Instead of drinking water like I should.
Age:22/6"1'/146lb - Diagnosed: 2001 @ age 15 now 22
First time mom as of March 8th 2008
Past drugs: Pentasa, Flagyl, Budesonide, Prednisone, tons of Antibiotics, Didrocal, 6mp
Past herbal remedies and vitamins:Probiotics, Omega 3&6, Prenatal vitamins, B12, Calcium, iron, vit C, vit D, vit E, Selenium, mineral drops
Current drugs: Valtrex, Methotrexate as of October 2008
Problems:Fissure and Tags on rectum, blood clots, Chronic UTI's, Osteopenia, Ulcers in my decending Colon
No surgeries....yet. Gone through 5 G.I.'s found a 6th G.I. crossing my fingers
Procedures: 4 colonoscopies, 1 upper endoscopy, 2 barium swallows, 1 biopsy of the fissure and tag (chron's affected)


LMills
Veteran Member


Date Joined Apr 2008
Total Posts : 1753
   Posted 12/18/2008 11:25 PM (GMT -7)   
Exactly what I mean haha...hence being good at avoiding the good stuff! Gorging yourself on chocolate and bread or just all of the 'bad' things makes you feel so good...well, until it hits your gut. I guess that's another story.
20 years old, Diagnosed with moderate to severe Crohn's and Colitis in May of 2008.
Currently taking:
Prednisone 30 mg, pentasa 2 pills 4x a day, bentyl as needed, prilosec in the morning, tandem plus, humira every other week, and good probiotics.
Surgery for ectopic pregnancy most likely the result of severe Crohn's inflammation in July of 2008.
Attempting the specific carbohydrate diet. Cheated once for Christmas.

"He who has a why to live for can bear with almost any how."


MMMNAVY
Veteran Member


Date Joined Jul 2006
Total Posts : 6927
   Posted 12/19/2008 7:39 AM (GMT -7)   
I am so hungry all the time, that hunger pains wake me up at night. What is up with that?


Forum Co-moderator - Crohn's Disease
...I will find a way, or make one. -Philip Sidney 1554-1586
Make sure your suffering has meaning...
All suggestions/options/opinions are caveated with please consult with your local health care provider...


Mihee
Regular Member


Date Joined Jan 2005
Total Posts : 155
   Posted 12/19/2008 11:00 AM (GMT -7)   
I have the constant hunger pains, too.  Only I think it is just the rumblling of the Crohn's!!!  I just try and get used to it!!

LMills
Veteran Member


Date Joined Apr 2008
Total Posts : 1753
   Posted 12/19/2008 12:05 PM (GMT -7)   
Navy and Mihee...I know what you mean...it's really irritating sometimes. Especially when you just want something you can eat without being punished and you can't.
20 years old, Diagnosed with moderate to severe Crohn's and Colitis in May of 2008.
Currently taking:
Prednisone 30 mg, pentasa 2 pills 4x a day, bentyl as needed, prilosec in the morning, tandem plus, humira every other week, and good probiotics.
Surgery for ectopic pregnancy most likely the result of severe Crohn's inflammation in July of 2008.
Attempting the specific carbohydrate diet. Cheated once for Christmas.

"He who has a why to live for can bear with almost any how."


Nanners
Elite Member


Date Joined Apr 2005
Total Posts : 14995
   Posted 12/19/2008 1:05 PM (GMT -7)   
I use to be like that alot, eat whatever and deal with the pain later. But to be honest the pain and d just got to be too much, so now I stick with my low res diet. EXCEPT......times like this when I am on Pred, and I want to eat everything in sight. I try to be strong, but sometimes it gets the best of me.
Been living with Crohn's Disease for 33 years.  Currently on Asacol, Prilosec, Estrace, Prinivil, Diltiazem, Percoset prn for pain, Zofran, Phenergan, Probiotics, and Calcium.  Resections in 2002 and 2005.  Also diagnosed with Fibromyalgia and Osteoarthritis. Currently my Crohns is in remission.


sulleysullivan
Regular Member


Date Joined Dec 2008
Total Posts : 44
   Posted 12/19/2008 1:41 PM (GMT -7)   
my favorite food is chips and salsa and hot wings. hot wings put me in the hospital earlier this year i just cant handle them anymore :( sometimes i sneak some salsa tho just a little bit doesnt hurt too much ha ha
"I feel infinite." -the perks of being a wallflower


Chronicallyill
Regular Member


Date Joined Apr 2008
Total Posts : 195
   Posted 12/19/2008 2:13 PM (GMT -7)   
I totally get what you mean when you get constant hunger pains. I just fill up on water. It helps for a little bit. Usually gets rid of my sugar cravings, because what I think is sugar cravings is actually thirst.

Mmmmmmmmm chips and salsa. I will be thinking about that for a week now lol. Ya anything hot and made of tomato doesnt agree with me. :(
Age:22/6"1'/146lb - Diagnosed: 2001 @ age 15 now 22
First time mom as of March 8th 2008
Past drugs: Pentasa, Flagyl, Budesonide, Prednisone, tons of Antibiotics, Didrocal, 6mp
Past herbal remedies and vitamins:Probiotics, Omega 3&6, Prenatal vitamins, B12, Calcium, iron, vit C, vit D, vit E, Selenium, mineral drops
Current drugs: Valtrex, Methotrexate as of October 2008
Problems:Fissure and Tags on rectum, blood clots, Chronic UTI's, Osteopenia, Ulcers in my decending Colon
No surgeries....yet. Gone through 5 G.I.'s found a 6th G.I. crossing my fingers
Procedures: 4 colonoscopies, 1 upper endoscopy, 2 barium swallows, 1 biopsy of the fissure and tag (chron's affected)


Nanners
Elite Member


Date Joined Apr 2005
Total Posts : 14995
   Posted 12/19/2008 2:43 PM (GMT -7)   
Haha Sulley I love chips and salsa too. My husband always scolds me because I always have to dip a chip in the salsa just once to have a little taste. What does he expect of me, he's mexican so we are always eating at Mexican places:)
Been living with Crohn's Disease for 33 years.  Currently on Asacol, Prilosec, Estrace, Prinivil, Diltiazem, Percoset prn for pain, Zofran, Phenergan, Probiotics, and Calcium.  Resections in 2002 and 2005.  Also diagnosed with Fibromyalgia and Osteoarthritis. Currently my Crohns is in remission.


inflamed
Veteran Member


Date Joined Nov 2005
Total Posts : 1340
   Posted 12/19/2008 2:51 PM (GMT -7)   
You guys are making me hungry. :) I want chips and salsa now too!

I go in phases. Sometimes, even though I am sick, I still feel constantly hungry and eat non-stop. I still try to make good choices, but the cravings often overwhelm me. I think maybe during these times I'm having absorption issues or something b/c my weight tends to be low then too. Other times I totally forget about food and only realize I've had nothing to eat when someone else mentions it.
Hoping to stay in remission after the birth of a healthy baby girl. On Pentasa during my pregnancy, went med-free 2 months to nurse (stupid), but back on Pentasa and still nursing.


randynoguts
Veteran Member


Date Joined Jan 2003
Total Posts : 6049
   Posted 12/19/2008 10:08 PM (GMT -7)   
yep, i mean, couldnt ya just live on food!
randynoguts 



     http://www.geocities.com/randynogutsweb/


Sniper
Veteran Member


Date Joined Feb 2004
Total Posts : 6518
   Posted 12/19/2008 10:26 PM (GMT -7)   
Lets see, its been an hour or so sense I ate, must be time to eat again. Plus the alternative is not pretty..
If we would read the secret history of our enemies,we would find in each mans life sorrow and suffering enough to disarm all hostility.


LMills
Veteran Member


Date Joined Apr 2008
Total Posts : 1753
   Posted 12/19/2008 11:54 PM (GMT -7)   
I could really go for a brown sugar cinnamon frost poptart or pumpkin cake with cream cheese icing :( I miss holiday food!!!
I hear you about the Mexican Nanners...it used to be one of my absolute favorites, and I have quite a few friends whose families make WONDERFUL Mexican.
20 years old, Diagnosed with moderate to severe Crohn's and Colitis in May of 2008.
Currently taking:
Prednisone 30 mg, pentasa 2 pills 4x a day, bentyl as needed, prilosec in the morning, tandem plus, humira every other week, and good probiotics.
Surgery for ectopic pregnancy most likely the result of severe Crohn's inflammation in July of 2008.
Attempting the specific carbohydrate diet. Cheated once for Christmas.

"He who has a why to live for can bear with almost any how."


spookyh
Veteran Member


Date Joined Oct 2008
Total Posts : 1342
   Posted 12/20/2008 8:35 AM (GMT -7)   
Cream cheese frosting...drool...I will miss thee so cry! Before I started SCD, I had one last Funfetti cake with cream cheese frosting, and it was good.

Chronicallyill
Regular Member


Date Joined Apr 2008
Total Posts : 195
   Posted 12/20/2008 11:45 AM (GMT -7)   
Obviously food is our down falls. lol I just wish it didnt taste so darn good. wink   My bf and are opposites. He could care less about food and I would love to eat everything out there. If we could switch bodies everything would be good. LOL
 
Pickles Mmmmmmmm
Ice cream and chocolate syrup with sprinkles.
Nachos and cheese.
Spaghetti with garlic toast.
Lasagna.                                                                  All the things I will miss. I am determined to get
Chilli.                                                                       better and I will just have to give up the foods
Wraps.                                                                    that may kill me.
Pancakes and Eggs.
Waffles.
SALADS :(
Junk Food.
Candy.
Chocolate.
Steak with grilled onions.
Hot dog and Hamburgers.
Fettucini.
Granola Bars.
Cereal with milk.
Age:22/6"1'/146lb - Diagnosed: 2001 @ age 15 now 22
First time mom as of March 8th 2008
Past drugs: Pentasa, Flagyl, Budesonide, Prednisone, tons of Antibiotics, Didrocal, 6mp
Past herbal remedies and vitamins:Probiotics, Omega 3&6, Prenatal vitamins, B12, Calcium, iron, vit C, vit D, vit E, Selenium, mineral drops
Current drugs: Valtrex, Methotrexate as of October 2008
Problems:Fissure and Tags on rectum, blood clots, Chronic UTI's, Osteopenia, Ulcers in my decending Colon
No surgeries....yet. Gone through 5 G.I.'s found a 6th G.I. crossing my fingers
Procedures: 4 colonoscopies, 1 upper endoscopy, 2 barium swallows, 1 biopsy of the fissure and tag (chron's affected)


notsosicklygirl
Forum Moderator


Date Joined Dec 2008
Total Posts : 14149
   Posted 12/20/2008 1:16 PM (GMT -7)   

I can't stop snacking either. I notice that every time I eat corn or cream sauce, I am on the toilet indefinitely... I still keep eating this stuff. It's annoying becauce I think I can somewhat stomach it in moderation, like one tablespoon of cream but unfortunately I don't know when to stop.

I am seriously not eating this stuff anymore, I can't do it to myself. I can't be a slave to the toilet.


spookyh
Veteran Member


Date Joined Oct 2008
Total Posts : 1342
   Posted 12/20/2008 5:12 PM (GMT -7)   
Chronicallyill said...
Obviously food is our down falls. lol I just wish it didnt taste so darn good. [img]/community/emoticons/wink.gif[/img] My bf and are opposites. He could care less about food and I would love to eat everything out there. If we could switch bodies everything would be good. LOL


Pickles Mmmmmmmm - SCD recipe at http://www.scdiet.net/elainesrecipes.htm

Ice cream and chocolate syrup with sprinkles. Frozen yogurt if SCD (many recipes are on the web), or Soy Ice Cream if gluten/lactose free

Nachos and cheese. SCD chip recipe (uses almond flour) at http://bethsblog.typepad.com/bethsblog/2007/07/specific-carboh.html

Spaghetti with garlic toast. Supposedly, spaghetti squash tastes just like spaghetti, it just has a different texture. You can even buy a cool little gadget that turns your squash into one long strand of spaghetti. Lots of SCD bread recipes at http://www.scdiet.org/2recipes/bread01.html, and many gluten free ones too (here's one at http://glutenfreemommy.com/baking-gluten-free-bread-millet-oatmeal-bread/)

Lasagna. An SCD lasagna here: http://www.scdrecipe.com/recipes-pastalasagne/vegetable-and-meat-lasagne/

Chilli. Lots of SCD chili recipes. Here's one: http://www.scdrecipe.com/recipes-vegetable/dans-chili/

Wraps.

Pancakes and Eggs. Eggs are a pretty healthy food. Why are you giving them up? These SCD pancakes are supposed to be great. Can't wait to try them when I add almond flour to my diet: http://nomorecrohns.blogspot.com/2008/10/review-of-jims-fluffy-pancakes.html

Waffles. SCD waffles - http://www.scdrecipe.com/recipes-pancake/nancys-waffles/

SALADS :( Once you get healed, salads are okay

Junk Food.

Candy. Honey is a good substitute for making candy. Here's one recipe: http://milkforthemorningcake.blogspot.com/2008/06/honey-toffee-lollipops.html

Chocolate.

Steak with grilled onions.

Hot dog and Hamburgers.

Fettucini.

Granola Bars.

Cereal with milk.


Many of the items you list you can have on the Specific Carbohydrate diet, as well as if you just went gluten/lactose free. You just have to make some substitutions. I added a few links in bold above (didn't have time to go over all your foods). Chocolate is the only thing that there is no substitution for, although there are some dessert recipes that claim to taste like chocolate (haven't tried them yet). Look around for some gluten free or SCD sites, and you will find many yummy looking foods. This one here has great pictures of all the foods she's made: http://milkforthemorningcake.blogspot.com/ . She has everything categorized in a menu at the right, so you can look at cakes, candies, breads, etc. There's also a lot of good pictures at http://nomorecrohns.com/deliciousrecipes.aspx . For me, it helps when you can actually see the food, so I love the sites that have pictures.

Chronicallyill
Regular Member


Date Joined Apr 2008
Total Posts : 195
   Posted 12/20/2008 5:40 PM (GMT -7)   

Thanks spookyhurst for the links:)

Sicklygirl I know what you mean. I always think that just a tablespoon or just a bite is ok, but I know it isn't. I'm in such denial like I have said and when I eat that one bite it leads to the whole bowl or bag kind of thing.


Age:22/6"1'/146lb - Diagnosed: 2001 @ age 15 now 22
First time mom as of March 8th 2008
Past drugs: Pentasa, Flagyl, Budesonide, Prednisone, tons of Antibiotics, Didrocal, 6mp
Past herbal remedies and vitamins:Probiotics, Omega 3&6, Prenatal vitamins, B12, Calcium, iron, vit C, vit D, vit E, Selenium, mineral drops
Current drugs: Valtrex, Methotrexate as of October 2008
Problems:Fissure and Tags on rectum, blood clots, Chronic UTI's, Osteopenia, Ulcers in my decending Colon
No surgeries....yet. Gone through 5 G.I.'s found a 6th G.I. crossing my fingers
Procedures: 4 colonoscopies, 1 upper endoscopy, 2 barium swallows, 1 biopsy of the fissure and tag (chron's affected)


LMills
Veteran Member


Date Joined Apr 2008
Total Posts : 1753
   Posted 12/20/2008 9:15 PM (GMT -7)   
Grrr...just made chocolate chip cookies, apricot cream cheese cookies, and now have a lasagna in the oven(I'm wiped out...).
The best part? I won't be eating any of it hah...ah well, someday after things calm down and I find the safe and healthier alternatives.
Spookyhurst-thank you for posting that!
20 years old, Diagnosed with moderate to severe Crohn's and Colitis in May of 2008.
Currently taking:
Prednisone 30 mg, pentasa 2 pills 4x a day, bentyl as needed, prilosec in the morning, tandem plus, humira every other week, and good probiotics.
Surgery for ectopic pregnancy most likely the result of severe Crohn's inflammation in July of 2008.
Attempting the specific carbohydrate diet. Cheated once for Christmas.

"He who has a why to live for can bear with almost any how."


spookyh
Veteran Member


Date Joined Oct 2008
Total Posts : 1342
   Posted 12/20/2008 9:54 PM (GMT -7)   
If you need any SCD resources, let me know. I scoured the web throughout October and November to prepare for my December 1st start date. I'm now in the process of organizing 5 gajillion recipes that I found. I'm never been into cooking much, but hopefully I'll grow to love it. I believe EMom also knows of quite a few SCD resources.

Margie11
Regular Member


Date Joined Aug 2008
Total Posts : 467
   Posted 12/21/2008 9:04 AM (GMT -7)   
Ummmm FUDGE Oh, sorry, you guys just got me started. One holiday meal my boss made and brought about 5Lbs of fudge. I think I ate half a pound then was sugar drunk till I stumbed home from work. Good thing the cops didn't stop me. Then there's the lady I told you about who makes homemade toffie, nut brittles, and all things sugar. but never eats sugar. Yes, they will all laugh Wednesday when they bring the goodies, and one more time I will indulge. The first of the year, I will be a good girl and start the SCD once again. Not because of Crohn's GI symptoms, but the joint and soft tissue stuff is eating me up!


              Never go faster than your guardian angel can fly!                  
     Be Patient And Tough, Someday This Pain Will Be Useful To You 
 
 Crohn's for life, symptoms included terrible joint and soft tissue pain, just met first cousin who suffers from Reactive Arthritis-explains sooo much. Great control on SCD (when I'm good) and I get by with a lotta help from my friends!
                                                Margie11


spookyh
Veteran Member


Date Joined Oct 2008
Total Posts : 1342
   Posted 12/21/2008 8:01 PM (GMT -7)   
Tonight I had a cheeseburger (used cheddar cheese and a little mustard) on a souffle bread. It was pretty tasty, and the souffle bread was a really good substitute for a regular bun. Hopefully, I'll be able to add pickles, tomato, bacon, and lettuce to it sometime next year.

hspenser
Veteran Member


Date Joined Dec 2005
Total Posts : 544
   Posted 12/22/2008 6:59 AM (GMT -7)   

I was born into a restaurant family...worked the family business starting at age 7 and then went to the Culinary Institute of American and trained as a chef.

I grew up with a father whose only rule about food was that you had to try everything at least once before you said you wouldn't eat it.  So there is hardly any food I won't eat. 

Possibly to the harm of my health I have refused to let this DD slow down my love of all things food and drink.  The only concession I have made is that I try to eat more natural foods and less processed.  Certainly any foods that consistently cause me discomfort come off the list...such as TVP and processed frozen eggs and frozen egg patties (can't eat an Egg McMuffin to save my life)

But...sushi, eel, snake, raw oysters, clams, fresh shrimp raw or cooked, sea urchin, cactus, steak tartare (beef or horse)....dishes with goat, gator, or turtle.  It just doesn't matter...i love it all.

My greatest temptation is spicy food....YOU CAN'T MAKE IT HOT ENOUGH!!!  I love all kinds of spices...hot curry dishes....mexican or jamacian dishes...doesn't matter...I love them.  My fridge at home has about 2 doz hot sauces in it and my spice cabinet houses more kinds of pepper or curry than I can count.   There has never really been any specific food or spice (other than the TVP and processed egg products) that I can say positively hurts me or cause distress.

The only real positve thing about this disease and my tatse for foods is that where I once a huge fan of breads and desserts....I can take them or leave them.  If I order a dessert or make one...I try one or two bites...and that is it.  I enjoy them...I just don't crave them or desire to eat more than a few bites.

 


dx IBS 1999   UC 2000   CD 2001
Tested BIOGEN TYSABRI (gave me 2 years of remission)
tried Naltrexone Jan. 19, 2007 Stopped the Naltrexone July 28th...started Humira Aug 31st, 2007...current dose one shot every week. Also nightly dose of mesalamine.
Surgery Nov 4th, 2008 removed 30 inches of small bowel.
 Crohns is currently active and has been since April of 2005
52 yrs old

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