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jmb11880
Regular Member


Date Joined Apr 2007
Total Posts : 22
   Posted 12/20/2008 10:03 PM (GMT -7)   
I haven't been on here in a while but it's been an interesting year. The last time I was on here i had the capsule stuck in my TI. I went to my GI's office to have it removed but he couldn;t get to it thru my rectum. I ended up going to the local hospital and being sedated so they could go thru my throat to get it. The good news is they were able to get the capsule out. The bad news is i have a laundry list of bad news.
 
While my GI was removing the capsule he noticed i had at least 4 different strictures in my TI. Plus i had a yeast infection in my throat and i was malnurished. I ended up being admitted into the hospital that day and put on a clear liquid diet(i won't eat jello or broth for a long time lol) and TPN. After a few tests he decided that there was no surgeon at that hospital good enough to handle my "special case" as he called it, i spent the next 5 days waiting to be transfered to a hospital with a surgeon that could handle my case. By the way the hospital i was transfered to was Barnes Jewish Hospital in St. Louis, and i cannot sing their praises enough. I did end up waiting another week before the actual surgery because they wanted to make sure my nurishment and blood cells were high enough to handle the actual surgery. During the surgery i had 2 1/2 feet of my TI removed and a stricturoplasty and it took about 2 hrs to complete. After the surgery i was doing fine until the sedation started wearing off. that's when all h*** broke loose. I started to feel extreme pain and the pain pump i had was not working. The nurse, who was fairly new, couldn't understand me(i had a tube stuck down my throat) and after i started throwing things at her(cups or whatever else was in my limited reach) she went and got another nurse who understood what i was saying and said she would get me one. After an hour i started screaming again and she said she had to get the doctors approval. At this point i was starting to get VERY irrate and the lead nurse came in and found out what i needed within 15 min i had a new pump with the highest dose of morphine they would allow and i felt SO much better and passed out.
 
The next morning the doctors came in and said i high heart rate from a low blood count that wasn't caused by the surgery and they feared my incision on the inside split open. I went and had a MRI after getting 2 pints of blood and luckily it did not split open. The next day i got 2 more pints of blood then had an endo and they discovered i had 3 ulcers which was causing the loss of blood. fom then on every thing went pretty good and 6 days after my surgery i was able to go home and my home nurse said i was healing very quickly. I thank my fiancee for that because when the hospital said eating protein will help me heal she went a little overboard but it worked and i have not had any abdomin pain since.
 
That was Feb and March but i won't get into the rest of the year right now becauce this has been a long letter already i just thought everybody would like to know how the stuck capsule ended up and thanks to everybody for their support.
28 yr old male, father of 3yr old daughter and 17 old son.
 
Dx'd in 1998 w\ chohn's
resection of TI & stricturoplasty on Feb. 26, '08
MEDS: Remicade every 4 weeks, Pentasa 2000mgs/day,entocort 6mgs/day,Imuran 100mg/day, 1 multivitamin a day and fosamax once a week, nexium 40 mg/day, imuran 150mg/day


gachrons
Veteran Member


Date Joined Mar 2007
Total Posts : 4527
   Posted 12/21/2008 3:24 AM (GMT -7)   
Hi Thanks for the update and I have been pretty much pain free since my resection too. You were only in for 6 days that's about how long I was in . It has been great for me not having the pain any more not always worrying about having to run to outpatients has been great for my mental outlook as well. Hope you continue to improve. They recommended I keep my protein up after I had my abscess surgery 2 years ago. Sounds like your cam gave you some problems but I am glad you got your surgery behind you. lol gail
Hallarious woman over 50 ,CD ,IBS 27 years--resection,fistula's,obstructions,hemmies,and still alive.lol gail


jmb11880
Regular Member


Date Joined Apr 2007
Total Posts : 22
   Posted 12/21/2008 8:41 AM (GMT -7)   

Thanks and i am so glad i had the surgery. I feel like a new person and with me staying on top of the protein has been making a world of difference for me. I just hope it stays this way, for awhile anyway. 

  PEACE TO ALL AND HAPPY HOLIDAYS!


28 yr old male, father of 3yr old daughter and 17 old son.
 
Dx'd in 1998 w\ chohn's
resection of TI & stricturoplasty on Feb. 26, '08
MEDS: Remicade every 4 weeks, Pentasa 2000mgs/day,entocort 6mgs/day,Imuran 100mg/day, 1 multivitamin a day and fosamax once a week, nexium 40 mg/day, imuran 150mg/day


Nanners
Elite Member


Date Joined Apr 2005
Total Posts : 14995
   Posted 12/21/2008 9:01 AM (GMT -7)   
Wow you have been thru a rough year!! Hopefully the upcoming new year brings better and healthier days for you.

Merry Christmas,
Gail *Nanners*
Been living with Crohn's Disease for 33 years.  Currently on Asacol, Prilosec, Estrace, Prinivil, Diltiazem, Percoset prn for pain, Zofran, Phenergan, Probiotics, and Calcium.  Resections in 2002 and 2005.  Also diagnosed with Fibromyalgia and Osteoarthritis. Currently my Crohns is in remission.


jmb11880
Regular Member


Date Joined Apr 2007
Total Posts : 22
   Posted 12/23/2008 10:16 PM (GMT -7)   
Well it got worse after that. Some of my bloodwork came back so i had to go see a hepatologist to find out why. He had me do an ERCT and the results  came back with me having Primary Schrelosing Colangitis(PSC) cry  . It's a form of liver disease with no treatment available(not even medication). The doc said 70% of the patients with PSC also have crohns. He also said i will have to have a liver transplant in 15-25 yrs, depending on how fast the disease progresses, which there is no way tell. When i had the ERCT they put a stent in and it was supposed to come out on it's own. I was thinking "oh great i remember the last time i had a doctor put something in me that was supposed to come out on it's own" lol. Luckily when i had the x-ray the stent came out on its own. that was the first good news i had all year! But i'm holding my own and i'm looking forward to a fresh new, exciting year(getting married in March) yeah .
28 yr old male, father of 3yr old daughter and 17 old son.
 
Dx'd in 1998 w\ chohn's
resection of TI & stricturoplasty on Feb. 26, '08
MEDS: Remicade every 4 weeks, Pentasa 2000mgs/day,entocort 6mgs/day,Imuran 100mg/day, 1 multivitamin a day and fosamax once a week, nexium 40 mg/day, imuran 150mg/day


gachrons
Veteran Member


Date Joined Mar 2007
Total Posts : 4527
   Posted 12/25/2008 3:16 AM (GMT -7)   
Wow getting married in March good news. Good to see you have a good attitude towards your future it helps. lol gail
Hallarious woman over 50 ,CD ,IBS 27 years--resection,fistula's,obstructions,hemmies,and still alive.lol gail

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