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redspot321
Regular Member


Date Joined Jan 2006
Total Posts : 303
   Posted 12/21/2008 7:50 PM (GMT -7)   
Hi folks.
 
I feel LDN ( Naltrexone ) has helped my CD. I have not had a flare for the longest peroid since diagnosis in 2005.
 
The problem. I cannot take Pain killers.....
 
Which NSAID is the eaisest on your stomach?
 
Ibprofen?
Advil?
Naproxen?
 
Im having a miserable time with arthritis......


30yo male
Currently on LDN for Crohn's with good results
 
63cm resection in '08, exausted all meds except pred :)
Avascular necrosis of both hips, Degenerative Disk disease with 5 herniated disk, Asthma, etc etc....


MMMNAVY
Veteran Member


Date Joined Jul 2006
Total Posts : 6927
   Posted 12/21/2008 7:55 PM (GMT -7)   
tylenol?
 
 

Inflammatory Bowel Disease (IBD)

NSAIDs are never to be used in individuals with Inflammatory Bowel Disease (e.g., Crohn's Disease or Ulcerative Colitis) due to its tendency to cause gastric bleeding and form ulceration in the gastric lining. Drugs such as Advil should be avoided in persons afflicted with IBD. Pain relievers such as Tylenol (containing acetaminophen) ...are safer medications than ibuprofen for pain relief in IBD.


Forum Co-moderator - Crohn's Disease
...I will find a way, or make one. -Philip Sidney 1554-1586
Make sure your suffering has meaning...
All suggestions/options/opinions are caveated with please consult with your local health care provider...

Post Edited (MMMNAVY) : 12/21/2008 7:58:47 PM (GMT-7)


lovepink
Regular Member


Date Joined Sep 2007
Total Posts : 182
   Posted 12/21/2008 8:01 PM (GMT -7)   
Gosh, honestly when I take the medications for my pain, I am usually in so much pain AND sick anyways, that I really do NOT notice the difference, side-effect wise, does that make sense? I actually have to take actual pain medications (percocet) when I have such bad pain :( and even those do not really work, but take the edge off. So in otherwards, they really don't make a difference, but we are all so different, sometimes I wish we were all the same.
Good Luck To You!
Lovepink
I have had Crohn's since I was 21 years old and I am now almost 28....

I am currently on Prednisone and have tired literally every drug available.

Unfortunately, nothing has worked for me. But I will keep on going and trying everything possible!

Also recovering from a blood clot in my lung and of course the blood thinners really messed up my bleeding from my Crohn's....


nawlinscate
Veteran Member


Date Joined Jan 2007
Total Posts : 656
   Posted 12/21/2008 8:18 PM (GMT -7)   
No, you may not notice the side effects of NSAIDs, but they're happening inside your body--and they're dangerous! Even the rheumatologist I've gone to for my arthritis and rotator cuff injury has told me that, because I have Crohn's, he will absolutely not prescribe any Advil, Ibuprofen, Naproxen, etc., because of the harm they'll do to my insides. The only OTC pain reliever prescribed for CD is Tylenol--or stronger versions of it, like hydrocodone or Percoset. From everything I've read and everything my doctors have explained, taking an NSAID is a recipe for disaster--whether you feel the effects or not.

pb4
Elite Member


Date Joined Feb 2004
Total Posts : 20576
   Posted 12/21/2008 10:00 PM (GMT -7)   
I know, it kills me when people with IBD know that NSAIDs are to be avoided but they insist on taking it believing it doesn't affect them in a bad way...you can lead a horse to water...

:)
My bum is broken....there's a big crack down the middle of it! LOL :)


Nanners
Elite Member


Date Joined Apr 2005
Total Posts : 14995
   Posted 12/22/2008 7:19 AM (GMT -7)   
The lasttime I took a NSAID it caused me to have the worst flare ever. Stay far far away from them, as stated above they are big no no's for us.
Been living with Crohn's Disease for 33 years.  Currently on Asacol, Prilosec, Estrace, Prinivil, Diltiazem, Percoset prn for pain, Zofran, Phenergan, Probiotics, and Calcium.  Resections in 2002 and 2005.  Also diagnosed with Fibromyalgia and Osteoarthritis. Currently my Crohns is in remission.


redspot321
Regular Member


Date Joined Jan 2006
Total Posts : 303
   Posted 12/22/2008 10:26 AM (GMT -7)   
redspot321 said...
The problem. I cannot take Pain killers..... Due to LDN
 
Which NSAID is the eaisest on your stomach?
 
Ibprofen?
Advil?
Naproxen?
 
Im having a miserable time with arthritis......

I Guess I up the creek then??? Its either stop LDN and take narcotics or Stay on LDN and  Take NASIDS...
 
 
Either way MY gut will suffer.
30yo male
Currently on LDN for Crohn's with good results
 
63cm resection in '08, exausted all meds except pred :)
Avascular necrosis of both hips, Degenerative Disk disease with 5 herniated disk, Asthma, etc etc....


Cookie's Wife
Regular Member


Date Joined Aug 2005
Total Posts : 299
   Posted 12/22/2008 11:01 AM (GMT -7)   
My GI or Primary doc don't like to prescribe painkillers to me and Tylenol doesn't cut it when it comes to my joints (or Crohn's for that matter). Ibprofen (besides painkillers, which I do not have) is the only thing that let's me get an kind of rest some days. I know it's bad for me but what other choice do I have besides being miserable and not able to rest.

I understand how you feel, red but I don't have a good answer!
Good luck!
~April~
 
"A woman's heart should be so lost in God that a man needs to seek Him in order to find her..." <3

 



DancrAlwaz
Regular Member


Date Joined Dec 2008
Total Posts : 38
   Posted 12/22/2008 11:48 AM (GMT -7)   
That's interesting. With my back completely cramped up, pelvic pain, and joint pain, the only OTC meds that seem to affect it is IBprofen. Tylenol won't touch the pain.

Unfortunately I just talked to my Dr's assistant to get some pain meds, and it's unlikely I'll get them as my Dr is out of town until Dec. 29th and since he's never written me a pain Rx before, I probably won't get them. So I'll have to suffer through Christmas
Rachael - 24 years old, diagnosed with CD in Dec. of 2004.

Currently on 40 mg of Prednisone, Lialda, and Azathioprine.

I thank God every day for an amazing support network of family, my boyfriend who has been there since the beginning, and my amazing friends who never waver.


FitzyK23
Veteran Member


Date Joined May 2005
Total Posts : 4219
   Posted 12/22/2008 2:37 PM (GMT -7)   
Well my CD was misdiagnosed for years. In that time I had two injuries that caused me to be put on rx NSAIDS (not narcotics just high dose). One time was rx Ibuprofin the other was rx Alleve. The alleve was MUCH worse on my gut than the Ibuprofin. Advil is ibuprofin and naproxin is alleve. If someone put a gun to my head and made me take an nsaid I would choose a coated Advil and only take it on a totally full stomach. I hope you find relief!
27 Year old married female law student (last year!!). Diagnosed w/ CD 4 years ago, IBS for over 10 years before that, which was probably the CD. I am sort of lactose intollerant too but can handle anything cultured and do well w/ lactose pills and lactaid. For crohns I am currently on Pentasa 4 pills/4x day and hysociamine prn. I also have bad acid reflux and have been on PPI's since age 13. I have been through prilosec, prevacid, and nexium. Currently I am on Protonix in the morning and Zantac at night. I also take a birth control pill to allow some fun in my life.


MMMNAVY
Veteran Member


Date Joined Jul 2006
Total Posts : 6927
   Posted 12/23/2008 6:34 AM (GMT -7)   
tylenol is ok
Forum Co-moderator - Crohn's Disease
...I will find a way, or make one. -Philip Sidney 1554-1586
Make sure your suffering has meaning...
All suggestions/options/opinions are caveated with please consult with your local health care provider...


Jen77
Veteran Member


Date Joined Mar 2006
Total Posts : 2691
   Posted 12/23/2008 11:52 AM (GMT -7)   
Well they landed me in the hospital with a massive GI bleed, I could have died. So I don't touch them, only Tylenol.
~Jennifer
 
Diagnosed with Crohn's Disease 2/06 after sever GI bleed. Has been suffering since 1998. History of rectal fistula and gallbladder removal. Taking Asacol, Questran, Toprol XL (for high blood pressure).


Chronicallyill
Regular Member


Date Joined Apr 2008
Total Posts : 195
   Posted 12/23/2008 6:03 PM (GMT -7)   
Wow I didnt know that pain meds caused damage to our insides.  Just wondering what exactly is NSAIDS? 
Age:22/6"1'/146lb - Diagnosed: 2001 @ age 15 now 22
First time mom as of March 8th 2008
Past drugs: Pentasa, Flagyl, Budesonide, Prednisone, tons of Antibiotics, Didrocal, 6mp
Past herbal remedies and vitamins:Probiotics, Omega 3&6, Prenatal vitamins, B12, Calcium, iron, vit C, vit D, vit E, Selenium, mineral drops
Current drugs: Valtrex, Methotrexate as of October 2008
Problems:Fissure and Tags on rectum, blood clots, Chronic UTI's, Osteopenia, Ulcers in my decending Colon
No surgeries....yet. Gone through 5 G.I.'s found a 6th G.I. crossing my fingers
Procedures: 4 colonoscopies, 1 upper endoscopy, 2 barium swallows, 1 biopsy of the fissure and tag (chron's affected)


MMMNAVY
Veteran Member


Date Joined Jul 2006
Total Posts : 6927
   Posted 12/24/2008 6:51 AM (GMT -7)   
Non Steriodal Anti Inflammitory Drugs
like advil, alleve, etc they are labeled as such
Forum Co-moderator - Crohn's Disease
...I will find a way, or make one. -Philip Sidney 1554-1586
Make sure your suffering has meaning...
All suggestions/options/opinions are caveated with please consult with your local health care provider...


catgiggles
Regular Member


Date Joined Sep 2003
Total Posts : 217
   Posted 12/26/2008 5:30 PM (GMT -7)   
In Feb of 08' i got paracarditis (sp) and they put me on 800mgs ib 3x's a day for 2 weeks then 500mgs naproxen 3x's a day for 2 weeks. Off two weeks of all of them then back on for 2 weeks. Off a month back on 2 weeks then finally off them all. I had been in not in true remission but where I was content. I only had about 3 bms a day, not water d, minimal stomach pain. I talked to the GI b/c I was concerned of a bad flare. He said the paracarditius trumped Crohn's and I had to take the treatment. I have been battling a flare ever since. I can relate to what you saying about going ahead and taking it tho. I am also dealing with endometriosis in the scar of my c-section (that I had 22 months ago) I took 1 ib today and one naproxen as well b/c of it hurting me. I have surgery on that monday to try for a second time to have it removed. So I def think they are terrible for us but sometimes we have to do it? Best wishes! Tara
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