You sound like you've had a very rough time for sure. Sometimes it's hard to sort everything out, and get it all under some sort of control. I know it sounds like lame advice, but really try to take one day (or one hour sometimes) at a time. You will see the specialists, and then hopefully you will know more. It might help to write down any questions you have as you are worrying, then bring the list to the appointments. That way you won't forget to ask that nagging question. One thing for sure--we are all on your side, and many members have had very bad times, and do understand alot about suffering. Keep posting!!! Tell us what is happening
I agree with Gacrohn's reply... there is no specific "test" for Crohns--it is diagnosed by biopsy, if you have the ulcers to biopsy. If your area of involvement is in your small intestine, then they couldn't get to it in the colonoscopy anyway. Crohns is also diagnosed by a symptom pattern, and it sure sounds like it could be. Of course, I'm just speculating, and your doctors are the ones to listen to....
One problem with these forums, though, is all the opinions you will get, from all the different people. Sometimes it is supportive, and sometimes it can drive you crazy. We all speak our own truth, out of wanting to help. Good luck tomorrow!
So lets take it day by day then. When are your appointments? How are you feeling now? what is your plan for tomorrow?
My appointments are January 5&6th so I'm hoping I can hang in there till then. I'm still having alot of pain and have had diahrea and no appitite for the last 2 days. I'm just going to take it easy tomorrow. No big party plans.
Do you have any medication for D or pain? ("D" is our short-hand for diarrhea...clever,huh?.....;-) . Please be sure to keep drinking water, because dehydration makes everything worse. If you can keep your energy up with fluids that have calories, that is good, too.
No big party plans, huh? I guess that makes you a ........ready.?........real party pooper~! (ouch, ouch--sorry....)
Get lots and lots of rest. Just lay around, for real. You don't want to get more infections, and a rested body fights better.
Good luck on Mon and Tues!!!!!!!!!
Do you have your questions ready for the doctors?
The food intolerance varies, and you might be able to eat bananas again when you are feeling better. Man, it sure sounds like Crohn's to me....Just obey your body!!
Only today and sun to get through, and then maybe some help and relief.