Pred monster starting dosage/time length

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catgiggles
Regular Member


Date Joined Sep 2003
Total Posts : 217
   Posted 12/27/2008 7:28 PM (GMT -7)   
So about 13 years ago I was on this stuff for about a year. Nine months at 60mgs then the taper. The 67 lb weight gain (45 of that in 6 weeks) and moon face eventually went away. The strechmarks and bone deteration never did. I swore up and down I would never take them again. I had a resection surgery and with asacol have been able to keep my crohn's to where I was comfortable and could enjoy most days. Now a I have a flare we cant get back undercontrol and I am back like I was when I first got sick. So tired I can't function, pooping tons, and now since the resection lots of neasue and some actual vomiting. I can not really even take care of my 22 month old son. The dr says I need to go back on pred. So to my question. What is the lowest dose that ever worked to help get you crohns in remission, how long were you on it, and what dose did you start out w/. The GI I have now came in on the tale end of the prednisone. I was a teenager then and mom changed me drs. He was the one that tapered me off it. I have to call him on tuesday. I have surgery on monday for something non crohns related and he said I couldnt do pred til after the surgery. Thanks folks for you help in advance!

sammies
Regular Member


Date Joined Feb 2008
Total Posts : 493
   Posted 12/27/2008 8:08 PM (GMT -7)   
I was off and on prednisone for around 15 years. I understand being hesitant to go back on it. Several times I went on 30mgs, tapered down by 2.5 mgs every 3 days, stayed on 15 for a while and then was able to stay on 5 every other day. Would bump back up when a flare occurred. Good luck. I hope things go well for you.
23 years with moderate Crohn's/colitis; fistulizing crohn's; pentasa; started humira 7/1/08; cipro; supplements: MSM, e, selenium, C, B complex, multi, iron


gachrons
Veteran Member


Date Joined Mar 2007
Total Posts : 4527
   Posted 12/28/2008 6:03 AM (GMT -7)   
Hi I was on a 5 day course of pred. of 40mgs and came off it Tuesday with no taper ,with not much sideeffects .A bit dizzy when I woke up but it passed quickly. The result was that my stools went firmer and lots of cleaning out and I haven't noticed any of the mucus I was having which was the reason I went on it. How long that last I don't know but it seemed to help a good deal. lol gail
Hallarious woman over 50 ,CD ,IBS 27 years--resection,fistula's,obstructions,hemmies,and still alive.lol gail


Nanners
Elite Member


Date Joined Apr 2005
Total Posts : 14995
   Posted 12/28/2008 8:20 AM (GMT -7)   
I have done quick 10 day bursts to quiet things down. I would start at 25 mg. for 2 days, 20 mg for 2 days, 15 mg. for 2 days, 10 mg for 2 days, 5 mg for 2 days. Sometimes that works to quickly quiet things down. I recently did that, but about a week later things started kicking up again, so I had to go back up to 25 mg and wean down 5 mg every 5 days, and that is working better for me. I do not like to go above 30 mg to start, when I do, I have alot more side effects. So give maybe 30 mg to start a try. It seems folks have more problems higher than that. Good luck!
Been living with Crohn's Disease for 33 years.  Currently on Asacol, Prilosec, Estrace, Prinivil, Diltiazem, Percoset prn for pain, Zofran, Phenergan, Probiotics, and Calcium.  Resections in 2002 and 2005.  Also diagnosed with Fibromyalgia and Osteoarthritis. Currently my Crohns is in remission.


catgiggles
Regular Member


Date Joined Sep 2003
Total Posts : 217
   Posted 12/28/2008 12:00 PM (GMT -7)   
Thanks yalls replies make me feel more optimistic about it. I was thinking that what I had did years before was "standard" but I guess not. I growl at my dr at the mention of them and after he got me off of them never again. He told me on the phone I know you don't want to do them but I feel we need to. SIGH...He didn't tell me what dosage or how long so I was trying to find out what others do. If he tries to go for 60mgs I'm gonna refuse and tell him I want to try less like 30 and see how that works. I really think that the stress from having this surgery tomorrow and the fact that my husband is going to have to care for my child for a week really has me stressed out. Plus last december I had surgery for the same thing (which obvosiouly wasnt a sucess) and I stopped breathing and I'm scared (i would say poopless but thats unfortunately not the case lol) of going under again. Thanks all!

gachrons
Veteran Member


Date Joined Mar 2007
Total Posts : 4527
   Posted 12/28/2008 2:32 PM (GMT -7)   
Hi all the best with your surgery tomorrow and hope things go good for you and yes I can see why your nervous and I'am sure your hubby will take good care of your little one. I didn't mind the 40 for 5 days and didn't get the side effects I used to tell my GI when he mentioned 40 I'd say 20 evevtually we would end up agreeing .I think the ored side effects depends on how long we are on them. Did they say what caused you to stop breathing before? lol gail
Hallarious woman over 50 ,CD ,IBS 27 years--resection,fistula's,obstructions,hemmies,and still alive.lol gail


CrohnsDaddy
Regular Member


Date Joined Oct 2007
Total Posts : 235
   Posted 12/28/2008 4:46 PM (GMT -7)   
For me, 30 mg/day is the "magic" dose. It's capable of keeping me in total remission. It takes 40 mg/day to put me in remission, but 30 will 100% keep me there. 25 doesn't do too bad, and 20 is a good balance between CD control and the mental/emotional issues pred causes me. 20 also doesn't cause me any moon face.

Got my fingers crossed for ya...
Just trying to be a "Regular Member".


Entocort 9 mg/day, Prednisone 20 mg/day, started Humira 1/22/08, started 100 mg of Azasan (Imuran) 2/20/08. Increased Azasan to 150 mg 10/15/08. Discontinued Humira 11/03/08 after extreme fatigue and moderate muscle aches. Started Cimzia 12/4/08. Down to 5 mg/day of Pred now, and will continue to taper until completely off as long as the other meds keep me off the porcelain.



I'm convinced that Prednisone is the root of all evil, and primarily responsible for global warming.


gachrons
Veteran Member


Date Joined Mar 2007
Total Posts : 4527
   Posted 12/29/2008 5:12 AM (GMT -7)   
Hi Hope your surgery goes good best of luck. and keep in touch when you can. I did listen to a topic last night on buesonide a steriod that is supposed to be gentler but wandered if it was entrocort. I guess I will look it up. lol gail
Hallarious woman over 50 ,CD ,IBS 27 years--resection,fistula's,obstructions,hemmies,and still alive.lol gail


Nanners
Elite Member


Date Joined Apr 2005
Total Posts : 14995
   Posted 12/29/2008 8:22 AM (GMT -7)   
Yes Gail Buesonide is Entocort.
Been living with Crohn's Disease for 33 years.  Currently on Asacol, Prilosec, Estrace, Prinivil, Diltiazem, Percoset prn for pain, Zofran, Phenergan, Probiotics, and Calcium.  Resections in 2002 and 2005.  Also diagnosed with Fibromyalgia and Osteoarthritis. Currently my Crohns is in remission.

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