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Wolfie40
Veteran Member


Date Joined Dec 2008
Total Posts : 947
   Posted 12/28/2008 10:42 AM (GMT -7)   
I'll be having surgery in Feb for a resection of my TI.
They will take out 4-5" of sm intestine and of course my appendix.The surgeon also said that they would remove my Ileocecal Valve.
From what I have been reading, some people will have "D" after surgery.
I really for the most part have never had to much of an issue with "D" other than when I would eat something and it didn't agree or I when I would drink to much coffee.
What are the odds of me having "D" all the time?
I'm wondering if I should do the surgery knowing I'd have a new problem to deal with.I know that elective surgery is better than emergency surgery, but I'm on the fence right now.

Any help would be great!!!

Wolfie

DebbieCrohns
Regular Member


Date Joined Nov 2005
Total Posts : 174
   Posted 12/28/2008 10:59 AM (GMT -7)   

Hi Wolfie,

I don't know what the chances are of having "D" all the time after surgery.  Have you asked your doctor?  My daughter had surgery that seems similar to what you are thinking of having almost 4 years ago, and, if I remember correctly, her bowel activity returned to normal after a few weeks.  But everyone is different and one person's experience may be different than another person's.

You said you are thinking of having the surgery.  Why are you thinking of having it?  What would your situation be if you have surgery and if you don't have surgery. 

Debbie

 


Wolfie40
Veteran Member


Date Joined Dec 2008
Total Posts : 947
   Posted 12/28/2008 12:13 PM (GMT -7)   
My doctor told me in Sept when I was in the hospital that because of the significant scar tissue that no medication would fix it. He gave me the option but noted that the hospital stays would probably come more frequently. I tried to wean off the Pred and the pain came back so he told me to go back on Pred. I'm now weaning off again. My doctor also knows that I'm not a big on all the medication.

Wolfie

gachrons
Veteran Member


Date Joined Mar 2007
Total Posts : 4527
   Posted 12/28/2008 2:13 PM (GMT -7)   
Hi I do not have D all the time and it is so much better living with no pain since my resection and when I do get some D I don't have pains with it so hope this helps. lol gail
Hallarious woman over 50 ,CD ,IBS 27 years--resection,fistula's,obstructions,hemmies,and still alive.lol gail


Wolfie40
Veteran Member


Date Joined Dec 2008
Total Posts : 947
   Posted 12/28/2008 4:26 PM (GMT -7)   
Thanks for the replies!
Did you have to take any other special meds after surgery?

gachrons
Veteran Member


Date Joined Mar 2007
Total Posts : 4527
   Posted 12/29/2008 5:06 AM (GMT -7)   
Hi I tapered off the pred. after surgery and was off them till before xmas I went on aa 5 day pred. doing pretty good now.I was put on Imuran but had to go off it due to a rash. I did get a infection and was on antibotics for to clear it up which it did. lol gail
Hallarious woman over 50 ,CD ,IBS 27 years--resection,fistula's,obstructions,hemmies,and still alive.lol gail


Nanners
Elite Member


Date Joined Apr 2005
Total Posts : 14995
   Posted 12/29/2008 8:26 AM (GMT -7)   
It is normal to have some explosive D for the first weeks after surgery. This happens until your bowels adjust to the changes. Some will have more D afterward, but not all. I agree with above, why suffer with the constant blockages and pain and just have the surgery? You will probably feel so much better afterwards. Good luck!
Been living with Crohn's Disease for 33 years.  Currently on Asacol, Prilosec, Estrace, Prinivil, Diltiazem, Percoset prn for pain, Zofran, Phenergan, Probiotics, and Calcium.  Resections in 2002 and 2005.  Also diagnosed with Fibromyalgia and Osteoarthritis. Currently my Crohns is in remission.


JakeB
Regular Member


Date Joined Dec 2008
Total Posts : 69
   Posted 12/30/2008 2:20 AM (GMT -7)   
I must say, my experience with the same type of surgery (Took out about 15 inches of my sm. intestine, that valve, and a small part of the large intestine. Was originally supposed to be about 6 inches. I guess it fistulized and created a big mess) has been quite different. It has actually not provided me much relief at all....

I had this surgery last December when I was on school break, about halfway through the month. I was very optimistic about this, since I have been on all sorts of medication without much relief. I was on Remicade, however it had stopped working properly, providing little relief for about a year before the surgery. I am thankful for it, however, since I was in remission almost continually for about 4-5 years. We then tried Humira for a bit, until I switched doctors about 4 months after my surgery.

When the surgery arrived, I was totally fine, went into it.. got out of it, and was in the hospital for about 3 days. I forced myself to get well enough to be able to eat something and leave on the 3rd day, as I had to share a room and the kid on the other side kept taking his heart monitor off.. causing beeping every hour, even in the middle of the night. Not good to try to recover from a strong surgery!

I was up and going about a week later, which was Christmas. I kind of forced myself to get well enough to go to my then-girlfriend's house for the evening. about a week after Christmas, I was feeling well enough to get back to work.

So I waited for it.. the recovery, to feel normal again. A month passed, two months passed, no luck.. was still ill... still had frequent D in which I attributed to my intestines moving to fast without that valve. I am currently on a drug to slow it down, still have D but go a lot less...

So overall, while it did remove that part that was scared, barely letting much food through, and very inflamed, I still am flared up and not getting much relief. I am currently on Cimzia, which only allowed me to gain about 6 or 7 lbs, and once again I am having health issues...

Nanners
Elite Member


Date Joined Apr 2005
Total Posts : 14995
   Posted 12/30/2008 9:13 AM (GMT -7)   
Wolfie I think Jake's story is an extreme. The majority of folks get alot relief from surgery. Also, I think he did not rest properly after his surgery and may be the reason for "some" of his problems. You have to remember that this is major surgery and it is a shock to the body as well as takes your body a while to recover. (Not attacking you Jake). Some will have D, some won't. I also think maintainence meds after surgery are a must, (my personal opinion). Its best to keep the inflammation down at all times to try to help avoid further surgeries. Good luck!
Been living with Crohn's Disease for 33 years.  Currently on Asacol, Prilosec, Estrace, Prinivil, Diltiazem, Percoset prn for pain, Zofran, Phenergan, Probiotics, and Calcium.  Resections in 2002 and 2005.  Also diagnosed with Fibromyalgia and Osteoarthritis. Currently my Crohns is in remission.


Wolfie40
Veteran Member


Date Joined Dec 2008
Total Posts : 947
   Posted 12/30/2008 4:51 PM (GMT -7)   
Whew!! I was running for the hills!! (Just kidding)
I know no 2 people are alike, thats why I was posting to see if it was 50/50 or 20/80. I trust my surgeon, and I will ask more questions a week before surgery. I now know that I should rest and not rush back to work.My job entails alot of lifting,turning,bending,running around and being on my feet most of the day.My wife keeps telling me that it is only a job and that my health is more important, but do I listen? No!!
If there is anything else that I should know about surgery or after surgery let me know.
Thank you!
Wolfie

gachrons
Veteran Member


Date Joined Mar 2007
Total Posts : 4527
   Posted 12/30/2008 5:51 PM (GMT -7)   
Hi I know they say 6 weeks no lifting but I think it takes alot longer before lifting.I got a hernia now and didn't do much lifting till June so I don't know my surgery was in Jan. Some on here say it takes a year to get your strength back but ask your Dr. about those abs muscles and if they get strong again.Mind you I am a stay at home Mom and don't do too much for exercise but something to ask about. lol gail
Hallarious woman over 50 ,CD ,IBS 27 years--resection,fistula's,obstructions,hemmies,and still alive.lol gail


JakeB
Regular Member


Date Joined Dec 2008
Total Posts : 69
   Posted 12/31/2008 2:18 AM (GMT -7)   
I guess my disease is just very much a rarity, probably why no meds are working currently for me, even the strongest ones....

What I heard from my doctor is that lifting restrictions are about a month. That is what they put me on for restrictions after my surgery.

Believe me, I did take it easy. I am also a young'n (20), and healthy besides for my crohns, so my body can recover faster. Believe me, when my body was tired, I went back to sit down and rest. It was very painful for about a week or 2 for me sitting down, then trying to stand. I am guessing this is because the muscles were still very much in distress. It also took until about Christmas to see the bloating leave my body, once again from the distress on the body.

After about 2 weeks, I didn't have much pain at all remaining. Some issues with having a stool, but overall didn't have much of an issue. I met with my surgeon about a month and a half after surgery, and he said I was recovering very well, and SHOULD be seeing normal stools return soon.. however said that I should be put on something to slow down the intestines.

I will say, my work is not very stressful. Working in radio broadcasting, there is mostly sitting, so that is the reason that I could get back to work so fast. If you have a more strenuous job, I probably wouldn't recommend going back to work after 2 weeks.

Last night, when I posted, I was having major issues with my Crohns, including very bloody stools, so I didn't mean to make it sound soo harsh. In all honesty, having this surgery does indeed help many besides the select rarities (like me), and recovery time is very fast.

Don't worry, and go for it, and here's to hoping it brings you relief like many who have it!

Wolfie40
Veteran Member


Date Joined Dec 2008
Total Posts : 947
   Posted 12/31/2008 4:32 AM (GMT -7)   
Jake, i understand. I know how this disease hits us, matter fact I feel like s**t right now. My first "D" in over a month now. My muscles,joints hurt really bad, it's hard to get moving. I'm blaming that on the Pred.
So no worries.
I was hoping to go back to work after 2 weeks. I really don't want to burn all of my vacaton and sick time up so early in the year. I have 4 weeks vacation and 5 sick days. The surgeon said I could go back to work at 3 weeks, but like you I personally feel that it will be to early. I guess I'll have to see how the body feels afterwards. Did I mention my surgery will be done Lapro? If that helps in recovery or not, I don't know.

Thanks

Nanners
Elite Member


Date Joined Apr 2005
Total Posts : 14995
   Posted 12/31/2008 10:22 AM (GMT -7)   
If your surgery is done via lapro you recovery will be a little quicker. But Wolfie40, I want you to be aware of one thing. They may have to go to full open if they find more than they expected during the surgery. That happened to me. I expected a lapro and came out with a full open incision due to more damage than they expected. They won't be able to tell that until they are in there. Not all of it shows up on the tests sometimes. But if you are able to have the lapro, you should recover a little quicker. But please do not push yourself, take the time needed to heal. Whether lapro or open it is still major surgery, so be kind to yourself as you recover. I am sure you will do fine, many of us have had resections, and are still here and most are feeling sooooo much better. Good luck!
Been living with Crohn's Disease for 33 years.  Currently on Asacol, Prilosec, Estrace, Prinivil, Diltiazem, Percoset prn for pain, Zofran, Phenergan, Probiotics, and Calcium.  Resections in 2002 and 2005.  Also diagnosed with Fibromyalgia and Osteoarthritis. Currently my Crohns is in remission.


Wolfie40
Veteran Member


Date Joined Dec 2008
Total Posts : 947
   Posted 1/1/2009 5:50 PM (GMT -7)   
All I want is to feel better.
My New Tears resoloution is to exercise more and I'm going to try the SCD diet.
I'm hoping that all goes well this year.

A question about surgery. Will I or should I be bending over to say tie my shoes or pick something up? Can I do stairs? Any tips getting out of bed.
Also I have 2 labs that do not have any rules about going on the furniture or beds. Do I need to be careful about them as they are very clingy to me.

Thank you!

Dagger
Veteran Member


Date Joined Apr 2008
Total Posts : 1522
   Posted 1/1/2009 7:04 PM (GMT -7)   
I had my IC valve, some small and large intestine, plus my appendix removed almost 3 years ago because there was a tumor near the valve. I had D for a few weeks after my surgery and it took a few months to get back to normal, usually C. My surgery was laproscopic with a 3 inch incision under my belly button where they took the piece out.

Bending over wasn't fun at first but it wasn't restricted. I had to unplug my IV pain pump whenever I got up to use the bathroom and some sadist put the wall socket about 6 inches up from the floor. I would pull it out with my toes but I had to bend over to plug it back in.

I had to go up stairs to get into my apartment. We were worried about this so I found some stairs at the hospital and tried them. I had no problems with stairs.

I didn't have much of a problem getting in and out of bed. If you have a pain pump in the hospital, give yourself a shot just before you get up. The pain was never really bad. It was worse when I got home but I quickly realized I was overdoing it and took it easy.

I was surprised by how tired I was after the surgery. I had 6 weeks off and was still napping when it was time to go back to work. I needed to take the full 6 weeks because of my job.

I was very careful with the lifting restrictions but still ended up with a hernia 4 months later. Now that surgery was MISERABLE!

Good Luck.

Wolfie40
Veteran Member


Date Joined Dec 2008
Total Posts : 947
   Posted 1/2/2009 4:23 AM (GMT -7)   
4 months later and you still had a hernia! I would have thought that your body would have been healed by then. The way it sounds is that I should not to much lifting for at least a month. But how much is too much (5lbs,25lbs,50lbs,etc). I usually lift anywhere from 1lb to 200 lbs. 1-80lbs over my head to put on shelves.

Thank you, I'm sorry for all of the questions. I'm just trying to get everything figured out so nothing bad happens.

gachrons
Veteran Member


Date Joined Mar 2007
Total Posts : 4527
   Posted 1/2/2009 5:13 AM (GMT -7)   
Hi That sounds to me like a lot of lifting and when your Dr. tells you to go back to work make sure he realizes the work requirements. I think lapo will probably save some of your muscles from getting cut but as too how much you need to ask about that. lol gail
Hallarious woman over 50 ,CD ,IBS 27 years--resection,fistula's,obstructions,hemmies,and still alive.lol gail


Nanners
Elite Member


Date Joined Apr 2005
Total Posts : 14995
   Posted 1/2/2009 7:12 AM (GMT -7)   
I bet when you go back to work, since your job entails alot of lifting, that you will go back with some restrictions, at least for awhile.
Gail*Nanners*
Moderator for Anxiety/Panic Forum
Been living with Crohn's Disease for 33 years. Currently on Asacol, Prilosec, Estrace, Prinivil, Diltiazem, Percoset prn for pain, Zofran, Phenergan, Probiotics, and Calcium and Xanax as needed. Resections in 2002 and 2005. Also diagnosed with Fibromyalgia and Osteoarthritis and Anxiety. Currently my Crohns is in remission.
 
*Every tomorrow has two handles.  We can take hold of it by the handle of anxiety, or by the handle of faith"*


Dagger
Veteran Member


Date Joined Apr 2008
Total Posts : 1522
   Posted 1/2/2009 5:35 PM (GMT -7)   
I'd say you are going to be restricted for more than a month, probably at least 6 weeks. I was told not to lift anything more than 20 lbs for the first 6 weeks. I'd bet I didn't lift more than 10 lbs for the first 4 months, then I lifted some heavy boxes and boom, a hernia.

Be really careful how you lift when you do go back. Hernias are awful.

Wolfie40
Veteran Member


Date Joined Dec 2008
Total Posts : 947
   Posted 1/3/2009 8:01 AM (GMT -7)   
Thanks for all the replies, I will take it really easy..

Thanks

Roni
Veteran Member


Date Joined May 2003
Total Posts : 2480
   Posted 1/3/2009 12:55 PM (GMT -7)   
Since my resec. in 05, I have had constant d. It started almost immediately after surgery and hasn't stopped since, except at times when I was pregnant.
 
Most people get some relief after surgery. I just wasn't one of those people. The only relief I got was the obstruction was fixed until the crohn's got so inflamed a year later.
 
You will likely be okay at least for a while and maybe longer. Some people go years and years without symptoms after surgery. I hope you'll be one of those.
 
Best wishes and Happy New Year!
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