my gluten-free check in

New Topic Post Reply Printable Version
[ << Previous Thread | Next Thread >> ]

yogaprof
Veteran Member


Date Joined Apr 2006
Total Posts : 1665
   Posted 12/29/2008 9:24 AM (GMT -7)   
hi all, I haven't been around the last few weeks--the storms in the northwest are sucking the life outta me! but I wanted to chime in, as it has been a year since I stopped gluten and I am still doing great. My GI now considers me to not have crohn's and I guess I will never know what that two years of them thinking I DO have CD is about, but I feel great and am finding lots to eat while still not eating gluten. I am really lucky and I am aware of that every day. happy new year to you all and as always, you have my deepest gratitude for being there when I had no one to talk to or learn from. many hugs, yp
49 y/o woman.  Diagnosed 4/06 after colonscopy, SBFT, CT-scan all showed crohns. 3 months later, after pred and remicade, all tests showed no crohns. December '06 had adhesions cut through a laparoscopy. Now taking Glycolax, Ultra Fiber Plus, Florastor, and DHEA. Have become gluten-free diet per naturopath's tests.


Nanners
Elite Member


Date Joined Apr 2005
Total Posts : 14995
   Posted 12/29/2008 10:58 AM (GMT -7)   
So glad that the gluten free diet is working so well for you. Don't be such a stranger, you were missed!!! I have a friend at work that kept having IBS problems and she went on a gluten free diet and is doing really well now too.
Been living with Crohn's Disease for 33 years.  Currently on Asacol, Prilosec, Estrace, Prinivil, Diltiazem, Percoset prn for pain, Zofran, Phenergan, Probiotics, and Calcium.  Resections in 2002 and 2005.  Also diagnosed with Fibromyalgia and Osteoarthritis. Currently my Crohns is in remission.


Celey
Veteran Member


Date Joined May 2007
Total Posts : 1284
   Posted 12/29/2008 4:02 PM (GMT -7)   
Wow... //O.O\\'.... Your doctor actually said you don't have CD??? Sheesh... //@.@\\'....
I think I am being picked on by life, sometimes. But's that okay. Life and I are good buddies... I know life doesn't mean no harm. It just is the way it is. I can accept that.


ivy6
Elite Member


Date Joined Sep 2005
Total Posts : 10404
   Posted 12/29/2008 5:22 PM (GMT -7)   
Wow, yp. That's such fantastic news.
Co-Moderator Crohn's Forum.


broomhilda
Veteran Member


Date Joined May 2007
Total Posts : 1488
   Posted 12/29/2008 8:05 PM (GMT -7)   
Great Job Yoga...wish I had your will power! So very glad it's working for you!
Dx'd Jan'06, 1st Resection 7/06, Humira, Imuran, B12 injections, Nexium, Lexapro, Nulev, Glucosamine, Multi-Vitamin, Calcium Citrate, Ultracet. Secondary conditions: Psorasis, Osteoarthritis, Fibromyalgia, Lactose Intolerant, gallstones, kidney stones & peri-menopausal.


spookyh
Veteran Member


Date Joined Oct 2008
Total Posts : 1342
   Posted 12/29/2008 8:18 PM (GMT -7)   
Congrats! I've been gluten free for one month now. I hope I can match your progress!

yogaprof
Veteran Member


Date Joined Apr 2006
Total Posts : 1665
   Posted 12/29/2008 9:06 PM (GMT -7)   
thanks you guys! yes, Celey, I was totally positively diagnosed and then undiagnosed. pretty weird. spooky, I hope it works well for you. and Broom, I don't feel like it takes too much will power. it helps that I feel so good; it makes not eating worth it. yp
49 y/o woman.  Diagnosed 4/06 after colonscopy, SBFT, CT-scan all showed crohns. 3 months later, after pred and remicade, all tests showed no crohns. December '06 had adhesions cut through a laparoscopy. Now taking Glycolax, Ultra Fiber Plus, Florastor, and DHEA. Have become gluten-free diet per naturopath's tests.


bektold
Regular Member


Date Joined Jul 2007
Total Posts : 456
   Posted 12/29/2008 10:10 PM (GMT -7)   
Congrats on doing so well!  I agree that once you get the hang of eating gluten-free it's not too hard.  Tinkyada makes an excellent brown rice pasta and Whole Foods has a gluten-free bread mix that I throw in the bread machine once or twice a month.  Those two products more or less handle any cravings I might have.  And now that I've mostly eliminated wheat products, I find crave them less.  (I don't believe I have a true wheat allergy.  The blood test came up negative and occasional small amounts don't bother me.  But I do feel better without it, so I generally leave it alone.)

Osprey101
Regular Member


Date Joined Apr 2008
Total Posts : 227
   Posted 12/30/2008 12:30 AM (GMT -7)   
Not to hijack the thread, but the 19th of December was my one year mark.

I scanned in all my blood panels from the time when I first got sick, to October (my last doctor's visit). I also wrote up an explanation as to what you're looking at.

The summary:
http://www.crohnsboy.com/linked/scdreport25dec2008.pdf

The .pdf's of my blood results:
http://www.crohnsboy.com/linked/ajlab.pdf

Note in particular how my blood iron levels go from "low" and even "alert" (on iron saturation levels) when tested on 6/30/08 to well within norms by 10/18/08, on page 10. In fact, only two values were out of norms for that last report- both were just *barely* outside norms, and one was BETTER than it should be- my blood glucose (as expected on a carbohydrate-restricted diet) was a hair LOWER than the low end of normal.

In the meantime, C-reactive protein- always well within norms- dropped from 1.2 to 1.0 in the same time frame, indicating acceptable (and even dropping) levels of inflammation.

I followed the SCD, and most recently the only thing I seek to eliminate is starch. I occasionally have a small amount of starch as rice, but suffer no ill effects (rice from Chipotle, as part of a bol). In the meantime, my doctor is finally listening to me and asking, "So- what is it precisely that you're doing?"

patientspiders
Veteran Member


Date Joined Jul 2005
Total Posts : 733
   Posted 1/8/2009 4:10 PM (GMT -7)   
I must have missed this thread while I was out of town for the holidays, because I was just thinking I hadn't seen any posts from YogaProf in a long time and was starting to worry... I'm SO glad I found this post.

Congratulations to all the other gluten-free people! I was stupid enough to abandon the diet for the holidays and am slowly catching back up... it's hard, but like bek said... the longer I go without gluten - the fewer cravings I have. And feeling so much better is excellent motivation for avoiding gluten... it's not so much like a punishment anymore so much as it is a tangible way for me to actively improve my own health. I went crazy over x-mas and stuffed my face full of pizza and it was SOOOOO NOT worth it.

And Osprey, I'm going to go peek at your links now. It sounds like I need to take some organizational lessons from you - you're so on top of your bloodwork and everything... it's inspiring!

All of you are inspiring! I don't know what I'd do without this place!

Good luck to everybody... ((((hugs))))
27f, dx'd CD July '05 after 6 fistula/abscess surgeries
(miscarried at 13 weeks, now waiting to heal before trying again)
Stopped Humira August 22nd, 2008.
Went Gluten-Free, noticing some definite improvement.
Started LDN October 27th, and already LOVING IT.

"Our greatest fear is not that we are inadequate, but that we are powerful beyond measure."


yogaprof
Veteran Member


Date Joined Apr 2006
Total Posts : 1665
   Posted 1/8/2009 5:14 PM (GMT -7)   
you can work around pizza. last night I went for pizza with my family and ordered a salad (yes, I can actually eat salad now!) and I peel the top off a couple slices and stick it in my salad. or at home I stick the top on GF crackers or corn tortillas.
good luck getting back on track, patient, and thanks for thinking of me!
49 y/o woman.  Diagnosed 4/06 after colonscopy, SBFT, CT-scan all showed crohns. 3 months later, after pred and remicade, all tests showed no crohns. December '06 had adhesions cut through a laparoscopy. Now taking Glycolax, Ultra Fiber Plus, Florastor, and DHEA. Have become gluten-free diet per naturopath's tests.


gachrons
Veteran Member


Date Joined Mar 2007
Total Posts : 4527
   Posted 1/8/2009 8:42 PM (GMT -7)   
Hi yp Glad to hear that you are crohn's free that is great news and so very glad you have found what is going on with you. Hope you continue on your way to better health and happiness. lol gail
Hallarious woman over 50 ,CD ,IBS 27 years--resection,fistula's,obstructions,hemmies,and still alive.lol gail


Sniper
Veteran Member


Date Joined Feb 2004
Total Posts : 6518
   Posted 1/8/2009 10:32 PM (GMT -7)   
Soooo glad to hear you are doing so well. Happy new year to you and please watch out for the storms. I'm hopeing this new year will be better here and no more hurricanes...Stay healthy...
If we would read the secret history of our enemies,we would find in each mans life sorrow and suffering enough to disarm all hostility.

New Topic Post Reply Printable Version
Forum Information
Currently it is Thursday, December 08, 2016 7:05 PM (GMT -7)
There are a total of 2,735,097 posts in 301,275 threads.
View Active Threads


Who's Online
This forum has 151370 registered members. Please welcome our newest member, calvin1242.
413 Guest(s), 10 Registered Member(s) are currently online.  Details
Tnmproject, JJ2511, 0311, Fl Drifter, getting by, LG13, DennisinNY, platinumpixie, bdavis, julymorning


Follow HealingWell.com on Facebook  Follow HealingWell.com on Twitter  Follow HealingWell.com on Pinterest
Advertisement
Advertisement

©1996-2016 HealingWell.com LLC  All rights reserved.

Advertise | Privacy Policy & Disclaimer