diagnosed 3 months ago with severe Crohn's

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Jack from SF
New Member


Date Joined Dec 2008
Total Posts : 10
   Posted 12/29/2008 7:39 PM (GMT -6)   
I tried the standard treatment with prednisone and azathioprine, but when I went off the prednisone I got really sick and vomited violently for hours on the azathioprine. So, I am now trying cimzia. Second dose was a week ago, go to the monthly soon. No side effects to note, but as I taper off the prednisone, the Crohn's symptoms return. Cramps and loose stool, need to get to toilet. No blood yet. I went back on the prednisone (40mg). I was shocked how quickly my body responded to the reduction/retaking of prednisone.


Am I to be taking this steroid stuff forever?
I see a lot of mention of prednisone, and taking stuff to help your bones.
I guess my never being sick a day in my life was just over active white cell production.
I attacked my self while feeling invincible. Irony abounds.

This has been humbling.
So far, I don't know if the Cimzia is working.

I think the test will be going off the steroid and seeing how I fare. So far, I may have jumped the gun.
Meet with GI doc in a few weeks.

I can't seem to find out which foods affect me badly. I think the prednisone masks the symptoms. I am unsure how to proceed. Should I just wait a few months, then go off the steroids once the Cimzia is completely in my system?

Am I destined to be taking prednisone forever?

gachrons
Veteran Member


Date Joined Mar 2007
Total Posts : 4527
   Posted 12/29/2008 7:48 PM (GMT -6)   
Hi and Welcome to Healing Well .I follow a low residue diet easy to chew easy to digest. Where is your crohn's located? I know some seem to find it hard to taper off the pred what kind of taper are you doing ? Yes crohn's people are pron to osteo so we take calcium and pred. can soften sometimes in the hips and knees. Foods that I syay away from are corn,nuts ,raw veggies and fruit except bananas ,seeds,peppers,whole wheat,turnip. I am sure others will be along to help, some cain't tolerate milk and others can, I seem to do ok on it. lol gail
Hallarious woman over 50 ,CD ,IBS 27 years--resection,fistula's,obstructions,hemmies,and still alive.lol gail


Rider Fan
Veteran Member


Date Joined May 2008
Total Posts : 1445
   Posted 12/29/2008 9:02 PM (GMT -6)   
Yes you may have jumped the gun. No you wont be on pred forever. Try to give the Cimzia a few months to see if it works for you.
Dx'ed in 1999. No surgeries.

Current meds: 25mg Methotrexate. 12.5mg prednisone. Udo's Choice Probiotics (30 billion).

Tried SCD, didn't work, now avoiding gluten and dairy.


ivy6
Elite Member


Date Joined Sep 2005
Total Posts : 10404
   Posted 12/29/2008 9:13 PM (GMT -6)   
I agree with Rider.

Welcome!
Co-Moderator Crohn's Forum.

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