HORROR STORY! EVERYONE SHOULD READ THIS...

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ImAud
Regular Member


Date Joined Jul 2008
Total Posts : 113
   Posted 12/30/2008 2:12 PM (GMT -7)   
I am soooooo pissed off right now!! I just got out of the hospital from a 2 night stay. I was having more diarreah and pain and was running a low grade fever...they found a cyst on my ovary and did a quick scope of my colon with no prep (thank god lol) and they GI said he saw 50% of my intestines and that they looked great! We were worried the remicade wasn't working and what not, but he said it definitely is.  He said my pain and discomfort is most likely from the fact that my bowels aren't moving around properly.  Instead of making one big poop, it makes a bunch of little ones which causes me to go more often and have more pain because I'm getting no relief each time i go.  Well, my stupid primary care doctor came in this morning after i was given a ton of fiber, miralx, and even an enema to get me to go (i was so blocked up and didn't go for over 2 days straight..ouch lol) and he asked me what the GI said.  I told him that he said it was functional and that my bowels look great, it's just that the trauma they went through this past summer was so severe that they r having a hard time functioning normally again.  My primary care doctor said no.  He said he talked to the GI for 15 minutes about how this pain is all in my head and that i have anxiety disorder and that's why i feel this "pain."  He did this last time to me when I was in the hospital for over a month, he tried to get me to take xanax XR and i didnt cuz it made me sedated and non-functioning for days.  I tried to disagree with him, but assured him I totally believe there is a connection with mind and body and stress and anxiety can make it worse.  He kept saying my GI should have told me about my anxiety problem because he was the one who brought it up, but the GI never once said anything about anxiety or my emotional state!!  So he put me on some low grade anxiety pill and let me get discharged.  Well, my mom thought it was strange that my orders for miralax and fiber weren't on the med list to take home, so her and the nurse checked the GI's notes.  He did write down that i needed miralax and fiber supplements daily and how much to take, BUT MY PRIMARY PHYSICIAN DISCONTINUED THE GI'S ORDERS!!! He had it in his freeking head that it's anxiety that caused me to go to the ER with pain and not my disease! We r changing doctors and getting ahold of my GI and telling him about this bullcrap.  What my mom is more worried about is if next time I go in and they see in my charts that my primary care dr. said i have anxiety problems which r causing my "pain" then no one will listen to me or even help me.  this pisses me off soooooooooo much! I understand that mind and body go hand in hand, but there is a scientific explanation behind the pain I am still having.  I hate that man with a passion and am never going to see him again!!!!  I just cant believe this is happening to me! ok thanks for letting me vent, this is just terrible and i will be pissed for a very long time about this whole ordeal!!!!
21 year old female
Diagnosed with Moderate to Severe Crohn's August 2008 (hospitalized for over a month right after)
Taking...canasa, rowasa, 6mp, nexium, and Remicade every 6 weeks
As needed...zofran, lortab, tylenol 3, bentyl
Off of Prednisone!!!


justjenjen
Veteran Member


Date Joined Nov 2003
Total Posts : 518
   Posted 12/30/2008 3:11 PM (GMT -7)   
WOW! What a !#$&^%&^%&^%^$%%#%$(^&**(&)!!!!!!!!!!!! And every other evil, bad name that is out there!

gachrons
Veteran Member


Date Joined Mar 2007
Total Posts : 4527
   Posted 12/30/2008 3:53 PM (GMT -7)   
Hi I guess like you said a new Dr. might be in order .One good thing what they seen in there looked good .Hope now you got things moving you will start to feel better. lol gail
Hallarious woman over 50 ,CD ,IBS 27 years--resection,fistula's,obstructions,hemmies,and still alive.lol gail


ImAud
Regular Member


Date Joined Jul 2008
Total Posts : 113
   Posted 12/30/2008 4:22 PM (GMT -7)   
my mom got ahold of the GI...he said my intestines not working properly has NOTHING to do with anxeity or emotional issues and that he never said anything like that to my primary care dr... The GI said it's a functional problem because my bowels aren't functioning properly after the trauma they went through..we're getting a new doctor and filing a compliaint with his practice...im still pretty blocked up, extremely painful..but my doctor wouldn't know how that feels (JERK!!!)...my GI is making me take more laxatives and even another one of those fleet enemas..so hopefully i'll b cleared out in the next couple days!
21 year old female
Diagnosed with Moderate to Severe Crohn's August 2008 (hospitalized for over a month right after)
Taking...canasa, rowasa, 6mp, nexium, and Remicade every 6 weeks
As needed...zofran, lortab, tylenol 3, bentyl
Off of Prednisone!!!


Nanners
Elite Member


Date Joined Apr 2005
Total Posts : 14995
   Posted 12/30/2008 4:28 PM (GMT -7)   
Sorry you had to deal with such an ignorant doctor. Hopefully you can find a more sympathic family doc soon. (((BUG HUGS)))
Been living with Crohn's Disease for 33 years.  Currently on Asacol, Prilosec, Estrace, Prinivil, Diltiazem, Percoset prn for pain, Zofran, Phenergan, Probiotics, and Calcium.  Resections in 2002 and 2005.  Also diagnosed with Fibromyalgia and Osteoarthritis. Currently my Crohns is in remission.


ImAud
Regular Member


Date Joined Jul 2008
Total Posts : 113
   Posted 12/30/2008 5:01 PM (GMT -7)   
thanks...yes we are looking for a new doctor immediately..i cant deal with doctors who are like that...if im going to be in the ER or hospital often I'm not dealing with that man!
21 year old female
Diagnosed with Moderate to Severe Crohn's August 2008 (hospitalized for over a month right after)
Taking...canasa, rowasa, 6mp, nexium, and Remicade every 6 weeks
As needed...zofran, lortab, tylenol 3, bentyl
Off of Prednisone!!!


LMills
Veteran Member


Date Joined Apr 2008
Total Posts : 1753
   Posted 12/30/2008 5:31 PM (GMT -7)   
I'm glad to hear you're changing doctors. That simply is not right what he did...what a terrible ordeal :( I hope you find someone better soon.
20 years old, Diagnosed with moderate to severe Crohn's and Colitis in May of 2008.
Currently taking:
Prednisone 30 mg, pentasa 2 pills 4x a day, bentyl as needed, prilosec in the morning, tandem plus, humira every other week, and good probiotics.
Surgery for ectopic pregnancy most likely the result of severe Crohn's inflammation in July of 2008.
Attempting the specific carbohydrate diet. Cheated once for Christmas.

"He who has a why to live for can bear with almost any how."


Bible
Regular Member


Date Joined Jul 2007
Total Posts : 188
   Posted 12/30/2008 6:14 PM (GMT -7)   
I too am glad that your'e changing Dr.s
GoodLuck!!

spookyh
Veteran Member


Date Joined Oct 2008
Total Posts : 1342
   Posted 12/30/2008 8:07 PM (GMT -7)   
I hope your GI doctor gives that guy the what for as well!

bookworm21
Veteran Member


Date Joined Mar 2008
Total Posts : 1766
   Posted 12/30/2008 8:11 PM (GMT -7)   
Wow! I'm glad you're switching doctors.

The funny thing is that I have the same problem as you (making a bunch of little poos instead of just a big one) but my *GI* thinks it's caused by my emotional state.
Female, Age 20
9 Asacol, Rowasa1000 mg Canasa, Proctofoam, Rifaximin 2/day
Digestive Advantage (Crohn's & Colitis)1 Florastor, 50 mg 6MP,1 Primadophilus reuteri, Remicade (5 infusions), 2.4 g Lialda, Forvia, 6 Colazal, 1 Anucort, Culturelle, Fish Oil, Calcium/Vit D supplement, 10 mg Prozac, VSL #3
 


ivy6
Elite Member


Date Joined Sep 2005
Total Posts : 10404
   Posted 12/30/2008 8:23 PM (GMT -7)   
Oh boy. I'm glad you're trying to get a new doctor. I can't imagine you or anyone having to cope with that year after year...
Co-Moderator Crohn's Forum.


ImAud
Regular Member


Date Joined Jul 2008
Total Posts : 113
   Posted 12/30/2008 8:47 PM (GMT -7)   
ComedyDork said...
Wow! I'm glad you're switching doctors.

The funny thing is that I have the same problem as you (making a bunch of little poos instead of just a big one) but my *GI* thinks it's caused by my emotional state.

I honestly don't think it's caused by my emotional state...my GI said my bowels r just so messed up they aren't moving my poop around like a normal bowel should...he said it has nothing to do with emotions or anxiety..i can understand maybe having diarreah or constipation when you are extremely excited, stressed out, or whatever, but not all the time like this..we have real conditions with real underlying causes..its an autoimmune disease for goodness sake lol! my dr. doesn't even really understand that still..what an idiot!
21 year old female
Diagnosed with Moderate to Severe Crohn's August 2008 (hospitalized for over a month right after)
Taking...canasa, rowasa, 6mp, nexium, and Remicade every 6 weeks
As needed...zofran, lortab, tylenol 3, bentyl
Off of Prednisone!!!


Sniper
Veteran Member


Date Joined Feb 2004
Total Posts : 6518
   Posted 12/30/2008 9:39 PM (GMT -7)   
Hope you find a real doctor and not a quack like this one. By the way the mind and the body are one, so says any doctor worth a dime. Real pain is real pain....
If we would read the secret history of our enemies,we would find in each mans life sorrow and suffering enough to disarm all hostility.


Julie1014
Veteran Member


Date Joined Oct 2005
Total Posts : 1245
   Posted 12/31/2008 2:56 AM (GMT -7)   
I'm so sorry to hear this has happened to you. I would also find another doctor right away. The best of luck to you. Blessings, Julie
Diagnosed with Crohn's March 2006, Fibromyalgia November 2008
Asacol 3 times a day, Remicade 10mg/kg every 4 weeks, Prednisone 12 mg, Miralax,  Prevacid 30mg, Vit B12, Vitamin D, Slow-FE (Iron), Hydrocortisone enemas
Imuran stopped 9/8/08 (possible Pancreatitis)
Paxil 40mg daily (for Panic disorder)
Xanax .5mg as needed (for anxiety attacks)
 
 
 
 
 


Celey
Veteran Member


Date Joined May 2007
Total Posts : 1284
   Posted 12/31/2008 6:02 AM (GMT -7)   
Man... that kind of almost sounds like what I had to go through not too long ago... *It wasn't nearly as bad... err... well the pain-wise, it definitely was, but doctor-wise, I don't think it was...* Having this disease can certainly cause anxiety... so later on, it might actually be a good idea to take something for anxiety...

But yeah... I completely agree with you... Pain is pain... Oh, and besides bowel pain... Have you considered maybe the pain is being caused by the cyst on your ovary? *Might be time for you to visit a gynecologist about that* //@.@\\'... Like deja vu.... I had cysts on my right ovary.... and then it developed into a mass.... and then I had to have the mass and the whole ovary taken out... Talk about painful...

*Hugs* Hope things get better for you...
I think I am being picked on by life, sometimes. But's that okay. Life and I are good buddies... I know life doesn't mean no harm. It just is the way it is. I can accept that.


ImAud
Regular Member


Date Joined Jul 2008
Total Posts : 113
   Posted 12/31/2008 3:43 PM (GMT -7)   
Celey said...


But yeah... I completely agree with you... Pain is pain... Oh, and besides bowel pain... Have you considered maybe the pain is being caused by the cyst on your ovary? *Might be time for you to visit a gynecologist about that* //@.@\\'... Like deja vu.... I had cysts on my right ovary.... and then it developed into a mass.... and then I had to have the mass and the whole ovary taken out... Talk about painful...
 
They told me that the cyst on my ovary is normal and nothing to worry about...strangely thats where alot of my pain was/is coming from..but as long as im not bent over in pain right now from it i'm not going to worry to much about it..i saw my gyno a few months ago and she said i looked healthy :) so, so far, so good lol...by the way..my mom has already written up a letter to this nasty dr. and the board complaining about what he did...it's very scary that he cancelled the GI's orders for fiber and miralax, because that's what the GI said will finally get me to feel better and decrease the pain...my mom said his neglegence could have really made me sick...my whole family used to go to his office, but we're all pulling out of his practice because if something happens to someone else in my family they now know how unsafe it is to have him provide us with health care...im still sooooooooooooooooooooooo mad about this whole thing! i wish i could tell him off lol :)
21 year old female
Diagnosed with Moderate to Severe Crohn's August 2008 (hospitalized for over a month right after)
Taking...canasa, rowasa, 6mp, nexium, and Remicade every 6 weeks
As needed...zofran, lortab, tylenol 3, bentyl
Off of Prednisone!!!


ozonehole
Veteran Member


Date Joined Dec 2006
Total Posts : 559
   Posted 12/31/2008 3:53 PM (GMT -7)   
Most of my doctors have been good, but there have been a few duds. Sometimes I wish that these unsympathetic doctors could feel what it's like once in a while, so they know what we go through.

I never wanted to wish Crohn's disease on anyone, but for ImAud's primary care physician I'll make an exception. Then perhaps his subsequent bowel resection will also be "all in his head."

With that cheery thought,
Happy New Year's to all.

- Robert
Crohn's since 1988
3 resections

Post Edited (ozonehole) : 12/31/2008 3:58:09 PM (GMT-7)


ImAud
Regular Member


Date Joined Jul 2008
Total Posts : 113
   Posted 12/31/2008 5:47 PM (GMT -7)   
ozonehole...so true lol...i always say i would never wish the pain of crohn's on my worst enemy...but my primary dr. really needs a freeking wake up call! thanks everyone for the support..i hope no one else experiences this crap, and if u do..DONT PUT UP WITH IT! he tried to make me believe i was crazy and that my pains were basically phantom pains..what an ass! grrrrrrrrrrrrrrrrrrrr........
21 year old female
Diagnosed with Moderate to Severe Crohn's August 2008 (hospitalized for over a month right after)
Taking...canasa, rowasa, 6mp, nexium, and Remicade every 6 weeks
As needed...zofran, lortab, tylenol 3, bentyl
Off of Prednisone!!!


pix
Regular Member


Date Joined Mar 2008
Total Posts : 134
   Posted 12/31/2008 6:02 PM (GMT -7)   

let me add my 2 cents.  I agree with you all.  It is one thing to have two doctors have different opinions, but to have the generalist cancel the specialist's orders is unacceptable.  I'm glad everyone jumped on it so effectively.  Does this doctor have any place on line where you can register a complaint?  Maybe the boss of his group, or something like that?

Hang in there.  most doctors are at least trying to do the best they can, I think.

 

Pix


ImAud
Regular Member


Date Joined Jul 2008
Total Posts : 113
   Posted 1/1/2009 10:06 AM (GMT -7)   
yeah i know he means well...he just doesnt know alot, or well anything about crohn's...he's told me numerous times when i was in the hospital for a month that he's not a specialist and cant comment much on my case because he doesn't know much about it..yet he continues to tell me the pain i have and all my bathroom problems are "all in my head." I'm looking into more ways to get this guy in trouble..he deserves to be punished for this!
21 year old female
Diagnosed with Moderate to Severe Crohn's August 2008 (hospitalized for over a month right after)
Taking...canasa, rowasa, 6mp, nexium, and Remicade every 6 weeks
As needed...zofran, lortab, tylenol 3, bentyl
Off of Prednisone!!!


bentwistle
Regular Member


Date Joined Jul 2006
Total Posts : 330
   Posted 1/1/2009 3:48 PM (GMT -7)   
Wow,

I'm sorry you're having to go throught his...what a jerk! I hope the doctor you find next turns out to be wonderful.

Good luck,

Bev

Crohn'snme
Veteran Member


Date Joined Feb 2007
Total Posts : 734
   Posted 1/1/2009 3:55 PM (GMT -7)   
I would file a complaint with the head of the hospital. Tell him you read the notes of the Primary Care Doctor canceling out the Specialist notes and that you checked with your GI and everything the Primary Care doctor said wasn't true. He needs to be stopped!

broomhilda
Veteran Member


Date Joined May 2007
Total Posts : 1488
   Posted 1/1/2009 6:42 PM (GMT -7)   
I wouldn't wish Crohns on my best enemy....but I would desire that the 'Ol Primary Doc" had a good run of constipation oh...let's say about a weeks worth! That'll said "his" head straight!

As for you the fleet should do it. Hope you're feeling well again real soon!
Dx'd Jan'06, 1st Resection 7/06, Humira, Imuran, B12 injections, Nexium, Lexapro, Nulev, Glucosamine, Multi-Vitamin, Calcium Citrate, Ultracet. Secondary conditions: Psorasis, Osteoarthritis, Fibromyalgia, Lactose Intolerant, gallstones, kidney stones & peri-menopausal.


ImAud
Regular Member


Date Joined Jul 2008
Total Posts : 113
   Posted 1/2/2009 12:11 PM (GMT -7)   
yeah..my mom is filing a complaint with the board and sending the same letter to him...people like that should not be practicing medicine!

as for the fleet enema..it has definitely helped lol..but im still having some issues thats for sure...hopefully this fiber filled diet will set me straight in a few days...thanks everyone!!!
21 year old female
Diagnosed with Moderate to Severe Crohn's August 2008 (hospitalized for over a month right after)
Taking...asacol 1 2xs/day, 6mp, nexium, miralax, benefiber, and Remicade every 6 weeks
As needed...zofran, lortab, tylenol 3, bentyl
Off of Prednisone!!!


belleenstein
Veteran Member


Date Joined Feb 2007
Total Posts : 1010
   Posted 1/2/2009 2:07 PM (GMT -7)   
Hi ImAud:

Every state and province has a board/college that regulates the practice of medicine. Your physician will be registered with that state board and it is the board's responsibility to handle complaints involving malpractice, negligence or incompetence. You should be able to find your state's licensing authority online and find out how to file a complaint.

Your GP really does need to understand this disease a little better. The last thing your body needs right now is anti-anxiety medicine, which will only slow down the bowel even more, perhaps increasing the risk of ileus.

If you decide to register a complaint with the licensing authority, my suggestion is that you couch the complaint in terms of your concerns for the broader public good. You've dealt with his ignorance appropriately, but other patients may not have your courage, resources or understanding of their condition to deal with it as you have.
Belleenstein:

30+ years living with Crohn's.

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