What're your CD-related pet peeves?

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inflamed
Veteran Member


Date Joined Nov 2005
Total Posts : 1340
   Posted 12/30/2008 2:39 PM (GMT -7)   
I'm currently annoyed by poorly designed tamper-proof seals. Why can't the manufacturer of Boost put a little tab on that foil seal so I don't have to use my teeth to open it? Similar thing for my off-brand pedialyte. It had an outer and inner seal and neither had perforations to help.
Hoping to stay in remission after the birth of a healthy baby girl. On Pentasa during my pregnancy, went med-free 2 months to nurse (stupid), but back on Pentasa and still nursing.


ladybug0709
Regular Member


Date Joined Dec 2008
Total Posts : 60
   Posted 12/30/2008 6:29 PM (GMT -7)   
Hi I am new to this forum. I am 33 and been diagnosed since 1992. No surgeries yet. I am happy to have found this forum (after almost 17 years of doing it alone and tired of it!) My biggest pet-peeve is the general population's lack of knowlege about the disease. I wish Crohn's could be more in the spot-light like other chronic diseases.

FitzyK23
Veteran Member


Date Joined May 2005
Total Posts : 4219
   Posted 12/30/2008 7:38 PM (GMT -7)   
Seriously, why is pedialyte child proof anyway? Is the kid going to get too hydrated? Weird.
27 Year old married female law student (last year!!). Diagnosed w/ CD 4 years ago, IBS for over 10 years before that, which was probably the CD. I am sort of lactose intollerant too but can handle anything cultured and do well w/ lactose pills and lactaid. For crohns I am currently on Pentasa 4 pills/4x day and hysociamine prn. I also have bad acid reflux and have been on PPI's since age 13. I have been through prilosec, prevacid, and nexium. Currently I am on Protonix in the morning and Zantac at night. I also take a birth control pill to allow some fun in my life.


LMills
Veteran Member


Date Joined Apr 2008
Total Posts : 1753
   Posted 12/30/2008 7:44 PM (GMT -7)   
The only reason I can see for the peels on certain drinks is that there are so many people who tamper before you buy...I'd rather have to poke it with a knife than wonder if someone has put something harmful in it :(
Pet peeves though..hm...I've been thinking about those a lot for someone reason but not too many are Crohn's related i.e. campus pedestrians, left turns while driving, men thinking they don't need to use toilet paper when they urinate(sorry if that's too much but it makes me MAD). I guess the fatigue would be what bothers me most. And the inability to plan too far ahead because you're not sure if you'll be physically up to the plans you made.
AH, and the inability to concentrate sometimes!
20 years old, Diagnosed with moderate to severe Crohn's and Colitis in May of 2008.
Currently taking:
Prednisone 30 mg, pentasa 2 pills 4x a day, bentyl as needed, prilosec in the morning, tandem plus, humira every other week, and good probiotics.
Surgery for ectopic pregnancy most likely the result of severe Crohn's inflammation in July of 2008.
Attempting the specific carbohydrate diet. Cheated once for Christmas.

"He who has a why to live for can bear with almost any how."


pb4
Elite Member


Date Joined Feb 2004
Total Posts : 20576
   Posted 12/30/2008 7:57 PM (GMT -7)   
dirty public toilet seats, no TP on the roll, people that don't flush, annoying kids that insist on slamming all the public bathroom door when you're in there trying to "go" and about a million more things.

:)
My bum is broken....there's a big crack down the middle of it! LOL :)


LMills
Veteran Member


Date Joined Apr 2008
Total Posts : 1753
   Posted 12/30/2008 9:04 PM (GMT -7)   
Okay, actually pb4 did mention a genuine Crohn's related pet peeve. I HATE when there is no toilet paper!!!
20 years old, Diagnosed with moderate to severe Crohn's and Colitis in May of 2008.
Currently taking:
Prednisone 30 mg, pentasa 2 pills 4x a day, bentyl as needed, prilosec in the morning, tandem plus, humira every other week, and good probiotics.
Surgery for ectopic pregnancy most likely the result of severe Crohn's inflammation in July of 2008.
Attempting the specific carbohydrate diet. Cheated once for Christmas.

"He who has a why to live for can bear with almost any how."


gachrons
Veteran Member


Date Joined Mar 2007
Total Posts : 4527
   Posted 12/31/2008 2:49 AM (GMT -7)   
When the dog wants to go out about 15 times on the coldest days of winter or when I am on my way to the bathroom. Got him off human food now but he is always running to the microwave now and barking ,that's where his treats are and the more you give him the more he wants. As for toiletpaper LMills I always carrying some in my purse so I never get somewhere without a roll .Has saved me a few times.lol gail
Hallarious woman over 50 ,CD ,IBS 27 years--resection,fistula's,obstructions,hemmies,and still alive.lol gail


tenbaseg
Regular Member


Date Joined Aug 2005
Total Posts : 32
   Posted 12/31/2008 9:26 AM (GMT -7)   
Thanks inflamed.

The boost seal never bothered me, but now it does. I've always used my teeth and never thought twice about it. Now I will. LOL

My CD pet peeve is: all the stuff I have to travel with. Meds, wipes, butt lotion, etc.

Nanners
Elite Member


Date Joined Apr 2005
Total Posts : 14995
   Posted 12/31/2008 9:44 AM (GMT -7)   
My pet peeves would be having to always make sure I have everything I need everytime I leave the house. Others might be, no toilet paper, people just hanging out in the bathroom when I desparately need to go (can't stand others in the br when I go). All the meds we have to take, and all the gross up your butt tests we have to do:) Not being able to eat whatever I want is a biggie too.
Been living with Crohn's Disease for 33 years.  Currently on Asacol, Prilosec, Estrace, Prinivil, Diltiazem, Percoset prn for pain, Zofran, Phenergan, Probiotics, and Calcium.  Resections in 2002 and 2005.  Also diagnosed with Fibromyalgia and Osteoarthritis. Currently my Crohns is in remission.


inflamed
Veteran Member


Date Joined Nov 2005
Total Posts : 1340
   Posted 12/31/2008 1:03 PM (GMT -7)   
sorry tenbaseg.
Hoping to stay in remission after the birth of a healthy baby girl. On Pentasa during my pregnancy, went med-free 2 months to nurse (stupid), but back on Pentasa and still nursing.


ozonehole
Veteran Member


Date Joined Dec 2006
Total Posts : 559
   Posted 12/31/2008 4:02 PM (GMT -7)   
When I need to desperately use the toilet in a public place (such as a restaurant), and somebody is hogging the one toilet stall. People have died for less.

Or even worse, a public restaurant, supermarket, etc, where toilets are for "employees only."

cheers,
Robert
Crohn's since 1988
3 resections


FitzyK23
Veteran Member


Date Joined May 2005
Total Posts : 4219
   Posted 12/31/2008 5:21 PM (GMT -7)   
Ozone - anytime I am stuck waiting to use the bathroom I always wonder if there is an IBD'r inside lol. Whenever my wait is longer than 5 minutes I think "oh, that's not normal, it is going to be stinky in there" lol.  I should be the one doing the stinkin not smelling the stinken.


27 Year old married female law student (last year!!). Diagnosed w/ CD 4 years ago, IBS for over 10 years before that, which was probably the CD. I am sort of lactose intollerant too but can handle anything cultured and do well w/ lactose pills and lactaid. For crohns I am currently on Pentasa 4 pills/4x day and hysociamine prn. I also have bad acid reflux and have been on PPI's since age 13. I have been through prilosec, prevacid, and nexium. Currently I am on Protonix in the morning and Zantac at night. I also take a birth control pill to allow some fun in my life.


Nanners
Elite Member


Date Joined Apr 2005
Total Posts : 14995
   Posted 12/31/2008 6:37 PM (GMT -7)   
LOL Fitzy!!! That's right, who the heck do the healthy people think they are stinkin up the bathroom, that's one good thing we have about having Crohns, we can stink everybody out:)
Gail*Nanners*
Moderator for Anxiety/Panic Forum
Been living with Crohn's Disease for 33 years. Currently on Asacol, Prilosec, Estrace, Prinivil, Diltiazem, Percoset prn for pain, Zofran, Phenergan, Probiotics, and Calcium and Xanax as needed. Resections in 2002 and 2005. Also diagnosed with Fibromyalgia and Osteoarthritis and Anxiety. Currently my Crohns is in remission.


Joie1
Regular Member


Date Joined Oct 2008
Total Posts : 376
   Posted 1/1/2009 12:12 PM (GMT -7)   
LOL...no kidding about the smell. Mine would be related to the medical community. The "Oh its a Crohns related problem" look on a dr's face.
27/f/CD. 4 CD related surgeries: 2 resections, 2 JP drains, 3 NG tubes, many absesses (including the one my most recent surgery scraped off my ovary) and fistulas.
Currently trying to figure out hip and knee joint pain.
Have lost in these surgeries: appendix, 8 in. intestine, R fallopian tube, gallbladder, 10 in. intestine
Crohns Dx'd: February 2008.
Pentasa (and much mental screaming)

Trying to hang in there until January so I'll have some insurance and can visit a rheumy, neuro, GI, primary, pain control, and possibly a shrink so I could stop crying and living in my own lil pity party. :-P


Crohn'snme
Veteran Member


Date Joined Feb 2007
Total Posts : 734
   Posted 1/1/2009 4:06 PM (GMT -7)   
People staring into the bathroom stalls! What's up with that?

CrohnnieMan
Regular Member


Date Joined Aug 2008
Total Posts : 190
   Posted 1/1/2009 8:57 PM (GMT -7)   
The foil seal on the Pentasa bottle irritates me.

Kaycie
Regular Member


Date Joined Jan 2006
Total Posts : 449
   Posted 1/1/2009 9:04 PM (GMT -7)   
Only 3 flavors of boost.

Boost costs WAY too much, SERIOUSLY!

GIs treating you like drug addicts for taking 4 pain pills a day

My husband pissing on the seat...seriously, I sit on that thing a LOT! (he raises the lid, but still, it's GROSS!)

The general populations lack of understanding of this disease (and therefore their lack of understanding of why I am tardy and off work so much - like I WANT to be this way!)

Toilet paper ON the toilet paper holder an tissue ALWAYS available for back-up... is it REALLY that hard? LOL!

Restaurants not always having a CD friendly menu...I hate being limited to like 2 items everywhere I go!

The pharmacists inability to answer my medication related questions. Like, the max dose of this and that. I get too detailed on questions and mixing certain drugs....

Why is it okay that they CONTROL your pain in the hospital, but once you are released and you ask for pain medicine, you might as well be a drug addict?

Man, I'm starting to sound crabby! ;) LOL! I'm going to stop now!
Kaycie - Age: 26
Crohn's - Dx Nov 05
Failed Remicade, moving onto a Clinical Trial called ABT-874 - Tentative start date - 10/2/08 - 10/16/08  - Infusion, every 4 weeks.
IVF #1 (In-Vitro Fertilization) - Failed
IVF #2 - IVIg, Heparin, Baby Aspirin - TWIN GIRLS!!!
Reagan Dawn - 8/2/07 - Lived 1 hour 27 minutes due to Cloaca, NOT affiliated with my Crohn's
Addison Maria - 8/2/07 - 13 months old


lamb61
Veteran Member


Date Joined Jan 2005
Total Posts : 1719
   Posted 1/2/2009 4:40 AM (GMT -7)   
The fact that I can't get a systemic CD med (Humira) without going into another major flare. I have CD from my former TI up through my throat and other than prednisone nothing helps my stomach and throat. I had NO throat issues on Remicade which I had to stop due to antibodies.
 


dunny2
Veteran Member


Date Joined Jan 2007
Total Posts : 3200
   Posted 1/2/2009 10:17 AM (GMT -7)   
I would be hard pushed at the moment to find something I wasn't peeved about!!!
Vicky

Too many years with CD
Two bowel resections, several obstructions.
Fibromyalgia and recently diagnosed with chronic pancreatitis and lupus.
B12 Shots bi-weekly

Laughter is the brush that sweeps the cobwebs from our hearts...

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