9 down crapload to go! ( i hope!)

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randynoguts
Veteran Member


Date Joined Jan 2003
Total Posts : 6049
   Posted 12/31/2008 2:54 AM (GMT -7)   
devil  ok everyone, i have a week or so ago completed 9 years on TPN. wow time flies. i have read about some folks on it much longer than me, but i have never actually met one. ( maybe they dont get out much?) any way just sort of tooting my own horn for this accomplishment. smilewinkgrin    when 10 years comes next year maybe i should have a party. tongue
randynoguts 



     http://www.geocities.com/randynogutsweb/


Julie1014
Veteran Member


Date Joined Oct 2005
Total Posts : 1245
   Posted 12/31/2008 2:59 AM (GMT -7)   
Randy, 9 years on TPN??!! smhair   And, now you're finally done?  How wonderful!!!!! yeah    The best of luck to you!!  Blessings, Julie
Diagnosed with Crohn's March 2006, Fibromyalgia November 2008
Asacol 3 times a day, Remicade 10mg/kg every 4 weeks, Prednisone 12 mg, Miralax,  Prevacid 30mg, Vit B12, Vitamin D, Slow-FE (Iron), Hydrocortisone enemas
Imuran stopped 9/8/08 (possible Pancreatitis)
Paxil 40mg daily (for Panic disorder)
Xanax .5mg as needed (for anxiety attacks)
 
 
 
 
 


gachrons
Veteran Member


Date Joined Mar 2007
Total Posts : 4527
   Posted 12/31/2008 4:01 AM (GMT -7)   
Toot Toot and party anytime you want that is quite a feat hope it continues to do you loads of good.Happy New Year . lol gail
Hallarious woman over 50 ,CD ,IBS 27 years--resection,fistula's,obstructions,hemmies,and still alive.lol gail


Sniper
Veteran Member


Date Joined Feb 2004
Total Posts : 6518
   Posted 12/31/2008 4:30 AM (GMT -7)   
I guess from your timeing that you began TPN as a new years present 9 years ago. May it help you through many more years my friend. Happy new year to you...
If we would read the secret history of our enemies,we would find in each mans life sorrow and suffering enough to disarm all hostility.


pb4
Elite Member


Date Joined Feb 2004
Total Posts : 20576
   Posted 12/31/2008 10:07 AM (GMT -7)   
Good for you and toot away (meant in all senses of the word of course) LOL!

:)
My bum is broken....there's a big crack down the middle of it! LOL :)


Nanners
Elite Member


Date Joined Apr 2005
Total Posts : 14995
   Posted 12/31/2008 10:13 AM (GMT -7)   
Wow 9 years on TPN, what an accomplishment. Are you able to eat regular food too? Do they think you will be on this forever? If it means you having some type of life, I say toot away my friend.
Been living with Crohn's Disease for 33 years.  Currently on Asacol, Prilosec, Estrace, Prinivil, Diltiazem, Percoset prn for pain, Zofran, Phenergan, Probiotics, and Calcium.  Resections in 2002 and 2005.  Also diagnosed with Fibromyalgia and Osteoarthritis. Currently my Crohns is in remission.


dolphin424
Regular Member


Date Joined Mar 2005
Total Posts : 39
   Posted 12/31/2008 3:18 PM (GMT -7)   
Happy New Year! Wow that is one heck of a long time. May 2009 bring you many blessing and good health.

randynoguts
Veteran Member


Date Joined Jan 2003
Total Posts : 6049
   Posted 1/1/2009 1:33 AM (GMT -7)   
julie1014, nope im not done, i will be on it the rest of my life... we figured that out this year while trying to cut back in little increments.. my blood labs went way wacky and we had to go back up.

all, i guess it could be worse huh? and sniper yes i started dec 17th 1999.

i try not to toot to much as it may be a shart!
randynoguts 



     http://www.geocities.com/randynogutsweb/


dunny2
Veteran Member


Date Joined Jan 2007
Total Posts : 3200
   Posted 1/1/2009 12:41 PM (GMT -7)   
Randy, do you know if you hold some kind of record. We could have your name in the Guiness book of records....

Happy New Year to you, Homie and your family x
Vicky

Too many years with CD
Two bowel resections, several obstructions.
Fibromyalgia and recently diagnosed with chronic pancreatitis and lupus.
B12 Shots bi-weekly

Laughter is the brush that sweeps the cobwebs from our hearts...


randynoguts
Veteran Member


Date Joined Jan 2003
Total Posts : 6049
   Posted 1/1/2009 6:38 PM (GMT -7)   
oh no, dunny,, there are people been on TPN for 25-30 years now..
randynoguts 



     http://www.geocities.com/randynogutsweb/


FitzyK23
Veteran Member


Date Joined May 2005
Total Posts : 4219
   Posted 1/1/2009 7:42 PM (GMT -7)   
Do you get to eat w/ the TPN? Does it just supplement your nutrition? Can you explain a little more why you are on it? Thanks!
27 Year old married female law student (last year!!). Diagnosed w/ CD 4 years ago, IBS for over 10 years before that, which was probably the CD. I am sort of lactose intollerant too but can handle anything cultured and do well w/ lactose pills and lactaid. For crohns I am currently on Pentasa 4 pills/4x day and hysociamine prn. I also have bad acid reflux and have been on PPI's since age 13. I have been through prilosec, prevacid, and nexium. Currently I am on Protonix in the morning and Zantac at night. I also take a birth control pill to allow some fun in my life.


randynoguts
Veteran Member


Date Joined Jan 2003
Total Posts : 6049
   Posted 1/2/2009 1:24 AM (GMT -7)   
sorry fitzy, forgot...
1. yes i do eat... i call it recreational eating
2. the reason i have been on TPN for so long is i have short bowel syndrome. meaning i have about 2.5 feet of total bowel left... ( pet peeve, people saying they have or a dr told them they have SBS after having only a couple feet removed.)
3. it is my main source of nutrition, i get something from the food i consume but not enough to maintain health or weight. or to get the proper nutrients or enzymes and electrolites. or hydration.
4. the part i have left is the duodenum, a small part of jujenum and the left side of my colon. so basically a direct connection from the stomach to the colon. whats left of it.
5. whats left is stuck to the front abdominal wall in a knot type shape with sharp turns and switch backs. giving me oh so wonderfull sounds of movement.
6. this may complicate my upcoming hopeful fix of my new hernia "homie" seeing as all this would need to be cut loose etc.. to fix it . i will know more after seeing the surgeons later this month.
7. thats why i picked the name randynoguts.
randynoguts 



     http://www.geocities.com/randynogutsweb/

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