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Date Joined Sep 2008
Total Posts : 41
Posted 1/1/2009 10:10 AM (GMT -6)
I am having a lot of health issues the past month and missed a month of work in December. It first started with a rash on my neck that the first diagnosed as shingles (all of this started after a couple weeks of Imuran which i now have quit taking) the shingles diagnosis changed to MRSA as it developed all over my neck, next I had influenza which lead to pneumonia and staph sepsis. I was gravely ill. All of this is during a moderate crohns flare that seems to be mainly concentrated in the rectum. I am supposed to start Tysrabri in two weeks. My first concern is starting this treatment when I have been so sick, secondly my supervisor has been somewhat supportive but I have a co worker that thought it was alright to go off on me yesterday at work, he proceeded to tell me long story short that when I am asking for time off of work and donated leave I should not be shopping for Christmas presents and basically was trying to say that I abuse my leave. I had a very bad year and actually was probably off work more than at work. He has no right first of all to judge me and has no idea what it is like to live with a chronic illness. I would love to always feel well enough to work. He is a bully and I am not sure what I should do about
him....any suggestions would be appreciated, I am even thinking about
looking for a part time job and leaving the current job. I dont need any additional stress from some jerk that doesnt have a clue. Thanks in advance!!
Crohns since 1994, inflammatory arthritis
Allergic to Remicade which helped me so much for about 3 years
Allergic to Imuran
Taking Asacol and Aciphex, rowasa enemas, prempro, synthroid, xanax, darvocet, elavil, cymbalta, folic acid and vitamin D
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Date Joined Apr 2005
Total Posts : 14995
Posted 1/1/2009 11:30 AM (GMT -6)
Don't let the ignorant get you down. I just wish there was a way we could make people feel as bad as we do, for just one day, and then see what they have to say. Maybe you should try to explain the disease to him or maybe even give him some literature to read. That is what I have been doing with my bosses and coworkers, its has helped some.
Also, I think after my having the emergency resection, they realized that what I had was pretty serious. I always tell people, "have you ever had the stomach flu so bad you just wanted to die?" I tell them when my Crohns is flaring that is what I feel like, only it doesn't get better in a few days.
I also go to work many times I shouldn't because of attacks like you received, but since educating people more about
the disease, has helped alot.
Moderator for Anxiety/Panic Forum
Been living with Crohn's Disease for 33 years. Currently on Asacol, Prilosec, Estrace, Prinivil, Diltiazem, Percoset prn for pain, Zofran, Phenergan, Probiotics, and Calcium and Xanax as needed. Resections in 2002 and 2005. Also diagnosed with Fibromyalgia and Osteoarthritis and Anxiety. Currently my Crohns is in remission.
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