Pentasa worth it or not???

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dunny2
Veteran Member


Date Joined Jan 2007
Total Posts : 3200
   Posted 1/2/2009 10:22 AM (GMT -7)   
Ok, my GI wants me on pentasa again, because I can no longer take the "Big guns" meds, due to lupus. BUT, is it
worth the money. Last time I was on it, about 10 years ago, I ended up having surgery, very quickly followed by
a second!! So it was literally like putting money down the drain!!
What do you guys think???
Vicky

Too many years with CD
Two bowel resections, several obstructions.
Fibromyalgia and recently diagnosed with chronic pancreatitis and lupus.
B12 Shots bi-weekly

Laughter is the brush that sweeps the cobwebs from our hearts...


Nanners
Elite Member


Date Joined Apr 2005
Total Posts : 14995
   Posted 1/2/2009 11:36 AM (GMT -7)   
Vicky I am maintained solely by the sister med Asacol. I took it before my resections and after and seem to be doing better after the resections on the Asacol. Hope that helps.
Gail*Nanners*
Co-Moderator for Anxiety/Panic Forum
Been living with Crohn's Disease for 33 years. Currently on Asacol, Prilosec, Estrace, Prinivil, Diltiazem, Percoset prn for pain, Zofran, Phenergan, Probiotics, and Calcium and Xanax as needed. Resections in 2002 and 2005. Also diagnosed with Fibromyalgia and Osteoarthritis and Anxiety. Currently my Crohns is in remission.
 
*Every tomorrow has two handles.  We can take hold of it by the handle of anxiety, or by the handle of faith"*


dunny2
Veteran Member


Date Joined Jan 2007
Total Posts : 3200
   Posted 1/2/2009 12:05 PM (GMT -7)   
Thanks Gail, that helps a little. Do you have to pay a lot for Asacol?
Vicky

Too many years with CD
Two bowel resections, several obstructions.
Fibromyalgia and recently diagnosed with chronic pancreatitis and lupus.
B12 Shots bi-weekly

Laughter is the brush that sweeps the cobwebs from our hearts...


chroniemomx2
Veteran Member


Date Joined Apr 2005
Total Posts : 2346
   Posted 1/2/2009 12:11 PM (GMT -7)   
What matters is where your active disease is. If is is the small bowel, then you want to use pentasa, if it is the large bowel, then you want to use asacol.

Pentasa didn't do anything for me, but then I blame my bad gi on that...my disease was way past pentasa...needed a much stronger med. Got a new gi and she got things under control.

Jen77
Veteran Member


Date Joined Mar 2006
Total Posts : 2691
   Posted 1/2/2009 12:22 PM (GMT -7)   
I also take Asacol, and no it won't prevent flares entirely. Nothing does though. I do think it helps though, and helps keep me in remission longer. I decided to go off of it a few years ago, because I also thought it wasn't doing anything. I flared up pretty quickly, so I haven't missed a dose a since! I really do believe it's worth it.

With insurance I pay $30 a month for it, that's my copay.
~Jennifer
 
Diagnosed with Crohn's Disease 2/06 after sever GI bleed. Has been suffering since 1998. History of rectal fistula and gallbladder removal. Taking Asacol, Questran, Toprol XL (for high blood pressure).


Nanners
Elite Member


Date Joined Apr 2005
Total Posts : 14995
   Posted 1/2/2009 12:25 PM (GMT -7)   
Vicky with my insurance which is a HMO I only pay $15 for my Asacol. If there were a generic for it, I would only pay $5.
Gail*Nanners* Co-Moderator for Anxiety/Panic Forum
Been living with Crohn's Disease for 33 years. Currently on Asacol, Prilosec, Estrace, Prinivil, Diltiazem, Percoset prn for pain, Zofran, Phenergan, Probiotics, and Calcium and Xanax as needed. Resections in 2002 and 2005. Also diagnosed with Fibromyalgia and Osteoarthritis and Anxiety. Currently my Crohns is in remission.
*Every tomorrow has two handles.  We can take hold of it by the handle of anxiety, or by the handle of faith"*

inflamed
Veteran Member


Date Joined Nov 2005
Total Posts : 1340
   Posted 1/2/2009 12:45 PM (GMT -7)   
I think it is worth it for maintenance or to help a mild flare. I used to think it didn't do anything, but once I was in remission it alone seemed to help me stay there. I experimented a few months without it and noticed minor symptoms reappearing.
Hoping to stay in remission after the birth of a healthy baby girl. On Pentasa during my pregnancy, went med-free 2 months to nurse (stupid), but back on Pentasa and still nursing.


dunny2
Veteran Member


Date Joined Jan 2007
Total Posts : 3200
   Posted 1/2/2009 5:14 PM (GMT -7)   
I guess I could get it. At this point I haven't got much to lose. (smile)
Vicky

Too many years with CD
Two bowel resections, several obstructions.
Fibromyalgia and recently diagnosed with chronic pancreatitis and lupus.
B12 Shots bi-weekly

Laughter is the brush that sweeps the cobwebs from our hearts...


gachrons
Veteran Member


Date Joined Mar 2007
Total Posts : 4527
   Posted 1/2/2009 7:27 PM (GMT -7)   
Hi Vicky I was wandering since you already have the lupus and certainly don't have to worry about getting it what is your Dr.'s opinion on you taking Humira or the boilogics? Would it make your lupus worse when a person has that condition? lol gail
Hallarious woman over 50 ,CD ,IBS 27 years--resection,fistula's,obstructions,hemmies,and still alive.lol gail


dunny2
Veteran Member


Date Joined Jan 2007
Total Posts : 3200
   Posted 1/2/2009 8:44 PM (GMT -7)   
Hi Gail, once you have lupus, you can never have Humira etc; again. It worsens the condition quite badly...
Vicky

Too many years with CD
Two bowel resections, several obstructions.
Fibromyalgia and recently diagnosed with chronic pancreatitis and lupus.
B12 Shots bi-weekly

Laughter is the brush that sweeps the cobwebs from our hearts...

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