pain killers besides pain killers?

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SaraOnThisSite
Regular Member


Date Joined Feb 2006
Total Posts : 211
   Posted 1/2/2009 10:16 PM (GMT -7)   
What can you suggest for pain?  Nothing works for me, except for the meds my doctor won't give me.  Actually, he refuses to give me anything for the pain.  Quite frustrating because I have pain daily.  I cried in his office while he refused to give it to me.  I know I really need to switch doctors I'm just not really in the position to right now.
 
I tried to be open minded and optimistic.  The only thing he gave me was levsin, which I thought might work since it helps my friend who has stomach issues (not Crohn's).  I've tried using it a bunch of times and it didn't help me at all.  I'm just getting nervous because I know it will effect me when I student teach, and I don't want my performance to suffer because of it.  Plus, I am scared because I am only allowed 2 absences (including latenesses...which I have been late to work a lot lately because of the Crohns!) or else I fail the program. 
 
I know I've asked before (hello to everyone, it's been awhile since I've been on the forums!) and I'm asking again because I'm in pain and I need not to be!
 
Some people last time suggested going to a pain management specialist but that didn't work...He wanted to give me some daily medicine that cost 80 bucks a month.  My mom said I should make an appointment with my primary care and she's gonna go with me, so hopefully she can convince him to prescribe them to me, but I just feel doubtfull, and kinda hopeless.  I feel like so much of my life is suffering because of all the pain/tiredness/lack of energy.  I don't go out as much with my friends/boyfriend because I'm just too tired, or too much pain, or too afraid that there's gonna be too much awkward bathroom situations going on. 
 
Meh, now I'm just venting, sorry.
Any pain relieving suggesting will be helpful! My gi just mentioned stuff like taking tylonel, which definite does not do the trick!

-Sara
 
23 year old female, diagnosed with Crohn's in 2002 after being misdiagnosed with Lyme Disease for a year.  Currently on 75 mg of Mercaptopurine.  Have been on Prednisone, Asacol, and Remicade in the past.


Nanners
Elite Member


Date Joined Apr 2005
Total Posts : 14995
   Posted 1/3/2009 7:30 AM (GMT -7)   
GI's are notorious for not giving out pain meds. I think you have a good idea about seeing your family doc and taking your mom with you. I get all my pain meds from my family doc not the GI.

Good luck,
Gail *Nanners*
Gail*Nanners* Co-Moderator for Anxiety/Panic Forum
Been living with Crohn's Disease for 33 years. Currently on Asacol, Prilosec, Estrace, Prinivil, Diltiazem, Percoset prn for pain, Zofran, Phenergan, Probiotics, and Calcium and Xanax as needed. Resections in 2002 and 2005. Also diagnosed with Fibromyalgia and Osteoarthritis and Anxiety. Currently my Crohns is in remission.
*Every tomorrow has two handles.  We can take hold of it by the handle of anxiety, or by the handle of faith"*

SaraOnThisSite
Regular Member


Date Joined Feb 2006
Total Posts : 211
   Posted 1/3/2009 9:08 AM (GMT -7)   
well at least it's not only mine! i guess i'll try to be optimistic about my primary, but he can be kind of a jerk (there were other words that came to mind...) I'm very doubtful his opinion would change with my mom there, but I guess there's no harm trying. . .I have an appointment Monday afternoon with him. At least after we exhausted that option we could try other areas, other doctors...My mom think that her being there is going to make a difference. Meanwhile I feel silly that at 24 years old I have to play these games....
 
24 year old female, diagnosed with Crohn's in 2002 after being misdiagnosed with Lyme Disease for a year.  Currently on 100 mg of Mercaptopurine.  Have been on Prednisone, Asacol, and Remicade in the past.


Kaycie
Regular Member


Date Joined Jan 2006
Total Posts : 449
   Posted 1/3/2009 2:49 PM (GMT -7)   
I think you are on the right track. My surgeon actually gives me the pain meds, but my next step was my family doc. She's far more understanding. She even gives me daily Xanax (which I find helps) and also gives me Ambien to get some sleep with the Pred. Nothing of which my GI has offered. I have the Levsin too, but I only find it works well WITH the narcotic.

That said, here's my surgeon's nurses theory on why GI's don't give pain meds (and makes sense to me). She said that GI's tend to be on the scope that they should be able to give you a NON-narcotic drug to get you in remission and make the pain go away. The feel giving a narcotic is only a temporary fix and that there should be something else to "fix" the problem. Unfortunately, I don't think GI's understand the severity of our pain. I find it very frustrating that I can pay my $100 copay to the ER or hop over to one of the convenient care after hours clinics and they will give me just about any pain meds I ask for, but my GI who KNOWS I have a severe underlying issue causing the pain isn't willing to control it.

Very frustrating, I agree. Hang in there. I"m on roughly 4 Norco a day to function and take care of my daughter and work. I hope your family doc is a little more helpful...
Kaycie - Age: 26
Crohn's - Dx Nov 05
Failed Remicade, moving onto a Clinical Trial called ABT-874 - Tentative start date - 10/2/08 - 10/16/08  - Infusion, every 4 weeks.
IVF #1 (In-Vitro Fertilization) - Failed
IVF #2 - IVIg, Heparin, Baby Aspirin - TWIN GIRLS!!!
Reagan Dawn - 8/2/07 - Lived 1 hour 27 minutes due to Cloaca, NOT affiliated with my Crohn's
Addison Maria - 8/2/07 - 13 months old


SaraOnThisSite
Regular Member


Date Joined Feb 2006
Total Posts : 211
   Posted 1/3/2009 4:08 PM (GMT -7)   
yeah, thanks for your input! I can understand GIs to an extent.  It seems like they just want to treat you and put you back in remission.  But exactly, they don't understand the pain you experience hinders your quality of life.  That's why I'm so scared about student teaching and that I'm not going to perform to the best of my ability and that just plain sucks.  I just feel like I'm missing out on life.  I didn't see friends yesterday who I haven't seen in years because I'm in pain.  Today I stayed home from work because I'm in so much pain.  Nothing is getting accomplished in my life and it's so frustrating.  And everytime I think okay, I'll take a painkiller so I can at least get work done at home, I don't want to take one because my supply is so limited since I don't know when I'll next be able to get them supplied so I feel like I need to save them for a future time.
 
I'm on a hunt for a new GI!  I thought I got one today from my mom's friend, I call and make the appointment, and then it turns out shes a GI that doesn't treat Chron's!  I thought all GIs treated it!  Oh well. :(



 
24 year old female, diagnosed with Crohn's in 2002 after being misdiagnosed with Lyme Disease for a year.  Currently on 100 mg of Mercaptopurine.  Have been on Prednisone, Asacol, and Remicade in the past.


imstillalive
New Member


Date Joined Dec 2008
Total Posts : 6
   Posted 1/3/2009 4:31 PM (GMT -7)   
Many Crohn's patients have varying forms of arthritis. I would ask to see a Rheumatologist.
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