Update (the other "C" word)

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emrose
Regular Member


Date Joined Oct 2008
Total Posts : 63
   Posted 1/3/2009 12:18 AM (GMT -7)   
Hey everyone!

As many of you know, my husband was diagnosed with crohns but it turned out to be colon cancer - only discovered during a resection surgery last month. And the abcess he had drained in October was actually the tumor breaking through! At one point I was worried we were rushing into surgery and maybe we should try more meds... I sometimes think things happen for a reason and now know that surgery saved his life just in the nick of time!

Anyway, This forum has been an amazing support system. it was sad and scary to have to find a new community of support, let alone a new disease to learn about! I had become an expert on crohns thanks to you guys, but I was researching the wrong disease the entire time!! Uhg. I have found a wonderful new forum for colon cancer survivors but you have been very important to me and I wanted to give you an update.

After surgery, 1 of 26 lymph nodes was positive so we knew we were facing at least a stage III diagnosis and chemotherapy. We were terrified of a stage IV diagnosis, meaning it had spread to other organs. Because of the abcess, the oncologist was also concerned. This week he had a PET scan, which detects cancer cell activity rather than just masses seen on a CT scan. We got the results today and they were Fantastic!!! The surgery got it all!!! There is no detectable cancer in him!! He feels good, bowel movements are back to normal, and he's completely tapered off the prednisone that he never needed to be on!! He'll be med free until we get back from our much needed vacation in Mexico when he'll do 6 months of chemotherapy to increase the liklihood the cancer NEVER comes back!! I'm SO relieved!! We may even start trying to have the baby we've thinking about :)

This journey is far from over for us; but its made me appreciate the little things again. He's so young so colon cancer seemed impossible. But i was reminded that every day is special and we never know what tomorrow might bring. For us, it brought cancer - but he's a fighter. And a surviver. I am thankful to have more time with my husband, to be able to try to start a family with him, and to wake up every morning with good friends and family. A stressful day at work is just not THAT stressful anymore :) it's all about perspective and taking advantage of every good day!

I'm so glad you are all here. I check in often. The day they found the cancer, I posted here and got the warmest and most supportive and encouraging responses. I read those in a dark hospital room sitting next to my sleeping husband and cried. I simply can't express how much that meant to me. Thank you.

Julie1014
Veteran Member


Date Joined Oct 2005
Total Posts : 1245
   Posted 1/3/2009 2:35 AM (GMT -7)   
What WONDERFUL news! I'm so happy for you both! Sending big hugs and happy prayers your way for continued good health and wellness.:-)
Diagnosed with Crohn's March 2006, Fibromyalgia November 2008
Asacol 3 times a day, Remicade 10mg/kg every 4 weeks, Prednisone 12 mg, Miralax,  Prevacid 30mg, Vit B12, Vitamin D, Slow-FE (Iron), Hydrocortisone enemas
Imuran stopped 9/8/08 (possible Pancreatitis)
Paxil 40mg daily (for Panic disorder)
Xanax .5mg as needed (for anxiety attacks)
 
 
 
 
 


gachrons
Veteran Member


Date Joined Mar 2007
Total Posts : 4527
   Posted 1/3/2009 6:11 AM (GMT -7)   
Hi I am happy to hear that no cancer has showed up and I am wishing you both all the best with the New Year. It was very touching to know that we have brought you some comfort and will be hoping things just get better. lol gail
Hallarious woman over 50 ,CD ,IBS 27 years--resection,fistula's,obstructions,hemmies,and still alive.lol gail


Nanners
Elite Member


Date Joined Apr 2005
Total Posts : 14995
   Posted 1/3/2009 7:08 AM (GMT -7)   
So glad to hear that they didn't find anymore cancer. Looks like 2009 is going to be a great year for you both. Congratulations!
Gail*Nanners* Co-Moderator for Anxiety/Panic Forum
Been living with Crohn's Disease for 33 years. Currently on Asacol, Prilosec, Estrace, Prinivil, Diltiazem, Percoset prn for pain, Zofran, Phenergan, Probiotics, and Calcium and Xanax as needed. Resections in 2002 and 2005. Also diagnosed with Fibromyalgia and Osteoarthritis and Anxiety. Currently my Crohns is in remission.
*Every tomorrow has two handles.  We can take hold of it by the handle of anxiety, or by the handle of faith"*

emrose
Regular Member


Date Joined Oct 2008
Total Posts : 63
   Posted 1/4/2009 12:58 AM (GMT -7)   
Thanks guys. I hope 2009 brings good times and healthy days for all of you! I'm feeling very hopeful :)

MMMNAVY
Veteran Member


Date Joined Jul 2006
Total Posts : 6927
   Posted 1/4/2009 9:13 AM (GMT -7)   
So glad to know they found no more cancer!
Forum Co-moderator - Crohn's Disease
...I will find a way, or make one. -Philip Sidney 1554-1586
Make sure your suffering has meaning...
All suggestions/options/opinions are caveated with please consult with your local health care provider...


dunny2
Veteran Member


Date Joined Jan 2007
Total Posts : 3200
   Posted 1/4/2009 1:42 PM (GMT -7)   
Emrose, thanks for the lovely post, it was not only an update, but you seem to let us into your heart...
Don't forget you're a very special & brave young lady, it's a pleasure to have you here.

I wish you & your husband a wonderful vacation, one where you can just leave your troubles behind!! LOL
Vicky

Too many years with CD
Two bowel resections, several obstructions.
Fibromyalgia and recently diagnosed with chronic pancreatitis and lupus.
B12 Shots bi-weekly

Laughter is the brush that sweeps the cobwebs from our hearts...


Margie11
Regular Member


Date Joined Aug 2008
Total Posts : 467
   Posted 1/4/2009 8:48 PM (GMT -7)   
Pardon my butting in but... I can't find the left over noise makers anywhere! Congratulations on a cancer free Hubby and a Mexican get away!!!!
              Never go faster than your guardian angel can fly!                  
     Be Patient And Tough, Someday This Pain Will Be Useful To You 
 
 Crohn's for life, symptoms included terrible joint and soft tissue pain, just met first cousin who suffers from Reactive Arthritis-explains sooo much. Great control on SCD (when I'm good) and I get by with a lotta help from my friends!
                                                Margie11

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