recurring abses

New Topic Post Reply Printable Version
[ << Previous Thread | Next Thread >> ]

wicked wendy
New Member


Date Joined Oct 2008
Total Posts : 18
   Posted 1/3/2009 12:24 AM (GMT -7)   
mad  have not posted for a while been busy with the crohns. had another surgery a temp drain inserted to a perianal absess. this was to second surgery on this one and apart from some small setbacks seems to be healing but who knows? the problem i have at the moment is the other absess further forward that was free draining seemed to heal and disapeared before the last surgery but what do you know it is back smhair .
and it is back bigger than ever i am already on fladgyl and going to see surgeon on wednesday. it hurts so much that i am tempted to pop it myself and i must admit i have tried.
 
i live in new zealand and have not heard of this remicade treatment what is it? do these absesses ever stop. i know i sound like a whiner but i would really like my butt to be mine again, sharing with numerous doctors and nurses is just frustrating and is it too much to ask to sit or walk again with no pain?????
30 years old diagnosed august 07. bowel resection in febuary dehissed wound. absess drain in july 08 waiting for seton drain.
meds : mercaptopurine
          losec
          fluoxitine
          metronidazole
and lots of supplements
and i live in new zealand


gachrons
Veteran Member


Date Joined Mar 2007
Total Posts : 4527
   Posted 1/3/2009 10:12 AM (GMT -7)   
Hi Remicade is a biologic and yes it helped me with a small fistula it healed, and remained healed ,but it was in the abdominal area. It did not heal the large one from large to small bowel.

Hope you get some relief soon and are you doing any sitz baths to help your sore spots? We had another person on not long ago had one and she was in misery for awhile but have not heard how she made out with it.Apparently the antibiotics helped some. Are you running a temp.?lol gail
Hallarious woman over 50 ,CD ,IBS 27 years--resection,fistula's,obstructions,hemmies,and still alive.lol gail


wicked wendy
New Member


Date Joined Oct 2008
Total Posts : 18
   Posted 1/3/2009 10:59 PM (GMT -7)   
no temp at moment i just can feel the pressure continually as it grows. my fistula runs from my rectal wall to just next to my vajayjay last scan was about 7.5 centimeters.
im already on flagyl and im allergic to cipro.
i thought maybe this year i could avoid surgery but i suppose i should learn this disease does to our bodies what it wants but i can still dream of a holiday, right.........
30 years old diagnosed august 07. bowel resection in febuary dehissed wound. absess drain in july 08 waiting for seton drain.
meds : mercaptopurine
          losec
          fluoxitine
          metronidazole
and lots of supplements
and i live in new zealand


gachrons
Veteran Member


Date Joined Mar 2007
Total Posts : 4527
   Posted 1/4/2009 8:37 AM (GMT -7)   
Hi your right hoping is good but results are better. lol gail
Hallarious woman over 50 ,CD ,IBS 27 years--resection,fistula's,obstructions,hemmies,and still alive.lol gail


FallColors
Veteran Member


Date Joined May 2007
Total Posts : 1220
   Posted 1/4/2009 11:26 PM (GMT 0)   
Hello Wendy!

Sorry you are suffering from these abcesses. I've had a couple peri-rectal abcesses and they are most disagreeable! The abcesses came with two setons. I have seton drains in both and they really help. Do you have setons?
Diagnosed early 2007 with rectal Crohn's.  Several peri-rectal abscesses and two fistulas with setons.  Allergic to Remicade and Humira.  Currently on 6MP.


*Phoebe*
Veteran Member


Date Joined Sep 2005
Total Posts : 769
   Posted 1/5/2009 7:00 AM (GMT -7)   
Sorry to hear of your suffering. I can definitely identify with this pain. I was in hospital at the start of November with a peri-anal abscess which was apparently ‘self draining’ but refused to pop after a month of agony. I was put only antibiotics for a week (flagyl and another, both through IV) and was on these for a week before it miraculously popped, exposing a fistula. Depressing stuff, I know. It is so debilitating when you can’t move properly due to the pain and the pressure, and even more depressing when the antibiotics don’t work.

I didn’t have a seton inserted and have been on antibiotics ever since, to try and keep inflammation down. I know this is not a long term solution and to be honest I am scared as anything of coming off these antibiotics. The flagyl made me SO SO sick, I was on it a couple of days before going into the hospital and it had me bed-ridden and nauseas. In the hospital, it made my blood pressure drop so low I was on the verge of passing out every time I stood up. I have started on the flagyl again today and hope that it is not so severe on me this time. I have heard flagyl is good for healing fistulas, so desperation has led me to try the killer-med again. I know it does not have a negative effect on everyone, but it made me so sick during and prior to hospital!
My GI is pretty hopeless with the abscess, and has not even taken a look at it, let alone referred me to a surgeon. I hope you have a better doctor take care of you, and that you have some relief soon, via a seton or drugs that work. I am with you and feel your pain, I am similarly miserable and scared, especially since I am job hunting for a new job at the moment too.

P

wicked wendy
New Member


Date Joined Oct 2008
Total Posts : 18
   Posted 1/5/2009 10:50 PM (GMT -7)   
no seton drains at the mo. i had a temp drain called a malcot drain inserted and hated it. between the rubbing when i walked and the time i bumped it going to the toilet i was miserable. r seton drains like this?
phoebeskye86 you have just explained to me why the nausea seems worse i am now back on fladgyl and have had a bad headache and nausea for days now i wonder can anyone suggest any remedies? i use nux vomica a natural remedy alot that helps(more than those anti nausea pills the docs give me) and i do have a very good doc, specialist and surgeon looking after me.
30 years old diagnosed august 07. bowel resection in febuary dehissed wound. absess drain in july 08 waiting for seton drain.
meds : mercaptopurine
          losec
          fluoxitine
          metronidazole
and lots of supplements
and i live in new zealand


FallColors
Veteran Member


Date Joined May 2007
Total Posts : 1220
   Posted 1/6/2009 11:40 AM (GMT -7)   
Hi Wendy,

A seton is a thin flexible plastic rod that goes through the fistula in the rectum and out the fistula opening in the skin. The doctor ties the ends together. Kind of like a loose twist-tie that you use to close trash bags. What the seton does is keep the fistula from closing. Unfortunately, peri-rectal fistulas typicaly don't close cleanly -- meaning fecal stuff gets trapped in the fistula as it gets smaller and you get another abscess. Not fun at all, as we know too well.

Setons can be in long-term -- like mine. I'm not a good candidate for surgery because my two fistulas starts too high in the rectum. I would be incontinent if they did the normal surgical procedure (cutting open the fistula and letting it heal), and the advancement flap technique is only 60-70% sucessful in CD. So I will live with my two setons rather than risk surgery. In fact, I am rather fond of them now because they keep me from abscessing in those spots.

As to living with them, I wrap a piece of guaze around the seton ends to pad them and prevent rubbing. Within two weeks of getting the setons, the whole area was much, much better. What was happening before was infection was getting trapped and I had massive cellulitis. Constant infections left me feeling like one big ball of pus. The setons let the ***** stuff drain and antibiotics took care of the rest. I am now off antibiotics and the whole areas has really calmed down. I really can do just about anything. My family just visited relatives for Christmas and I just sat in the car for two days straight with no discomfort at all -- before I literally couldn't sit for more than 15 minutes (if that long!) and felt like crap. I do love my seton friends!! Several others on this forum have setons too. There have been several posts in the past where we have talked about living with setons. If you get a seton, check out those posts.

Take care.
Diagnosed early 2007 with rectal Crohn's.  Several peri-rectal abscesses and two fistulas with setons.  Allergic to Remicade and Humira.  Currently on 6MP.

New Topic Post Reply Printable Version
Forum Information
Currently it is Friday, December 02, 2016 11:14 AM (GMT -7)
There are a total of 2,731,692 posts in 300,951 threads.
View Active Threads


Who's Online
This forum has 151123 registered members. Please welcome our newest member, Joyce Apuzzo.
342 Guest(s), 13 Registered Member(s) are currently online.  Details
JayMot, tickbite666, mtm3461, ArtAngel, Girlie, reminder, panicgirly, Duffykani, ks1905, Mustard Seed, Nosila, straydog, Lisa-Dionne


Follow HealingWell.com on Facebook  Follow HealingWell.com on Twitter  Follow HealingWell.com on Pinterest
Advertisement
Advertisement

©1996-2016 HealingWell.com LLC  All rights reserved.

Advertise | Privacy Policy & Disclaimer