again...I THINK that is the case. I am pretty sure that many problems have occurred because crohns is not as easy as some diseases to dianose properly. I think there is supposed to be a blood test that indicates crohns....but from what I have been told the doctors general diagnos based on what they see in the colon and where it is....
for me I was diagnosed by two seperate gastro's as having non-specific ulcerative colitis...then I went to another gastro and he was shocked thatthe other two had missed such an easy case to diagnos.....
My first gastro kept saying it was mostly diverticlosis and acid reflux....then the second guy said that about 60% of the population over 45 has some divertic and my acid tested normal or below....
I have been told by my current gastro that part of the delay in my diagnosis was that the scarring and ulcers were mostly in my small bowel and were not showing up in the large colon...any evidence of disease in my large colon was where you usually find UC so I got diagnosed as UC for the first couple of years
You really have to find a doctor who will work with you so as to get the correct diagnosis and then treatment
dx IBS 1999 UC 2000 CD 2001
Tested BIOGEN TYSABRI (gave me 2 years of remission)
tried Naltrexone Jan. 19, 2007 Stopped the Naltrexone July 28th...started Humira Aug 31st, 2007...current dose one shot every week. Also nightly dose of mesalamine.
Surgery Nov 4th, 2008 removed 30 inches of small bowel.
Crohns is currently active and has been since April of 2005
52 yrs old