I HURT....my body just aches.. Any home remedies?

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Kaycie
Regular Member


Date Joined Jan 2006
Total Posts : 449
   Posted 1/5/2009 10:15 PM (GMT -7)   
It's the Pred and the weaning off of it, mind you I'm quite heavy at the moment so it's not helping.. and it's winter, so you ache a lot.

It has to be the Pred Taper, but is there ANYTHING I can do? I'm trying so hard to keep the narcotics at a minimum, but if my body continues to ache so badly, I don't feel I have a choice.

I use a heated mattress pad in the evenings to get some sleep. On medium, it just gives my back and joints and all a nice warm feel and allows me a decent amount of rest. But, going up and down stairs, my knees hurt like heck. They already aren't the greatest (I was in Marching Band - I did a good bid of daily damage to them back in the day!) and being overweight certainly doesn't help.

I think I'm going to join Weight Watchers with my mom. Seems to be a diet I can follow while flaring. It'll allow me to choose if that makes sense. I may just follow my moms plan and not join as I could easily waste my money since a flare would interupt a diet at any moment.

Any other therapeutic things to help with all the joint pain? I'm sure my body is just trying to adjust, but I don't know how much longer I can take the pain of trying to stand up out of a chair and feeling like my hip or my knee is going to fall off...
Kaycie - Age: 26
Crohn's - Dx Nov 05
Failed Remicade, moving onto a Clinical Trial called ABT-874 - Tentative start date - 10/2/08 - 10/16/08  - Infusion, every 4 weeks.
IVF #1 (In-Vitro Fertilization) - Failed
IVF #2 - IVIg, Heparin, Baby Aspirin - TWIN GIRLS!!!
Reagan Dawn - 8/2/07 - Lived 1 hour 27 minutes due to Cloaca, NOT affiliated with my Crohn's
Addison Maria - 8/2/07 - 13 months old


spookyh
Veteran Member


Date Joined Oct 2008
Total Posts : 1342
   Posted 1/5/2009 11:16 PM (GMT -7)   
When I have pains, I like to take a hot bath with epsom salts in it. Usually makes me feel better.

gachrons
Veteran Member


Date Joined Mar 2007
Total Posts : 4527
   Posted 1/6/2009 6:01 AM (GMT -7)   
Hi Kaycie have you tried any body rubs for the pain? You could ask your pharamist if there is something they could recommend. You are right about weight being hard on the joints. Maybe after your better a exercise program might help .Exercise helps build bone and strong muscles help protect the joints. lol gail
Hallarious woman over 50 ,CD ,IBS 27 years--resection,fistula's,obstructions,hemmies,and still alive.lol gail


catpower
Regular Member


Date Joined Nov 2008
Total Posts : 192
   Posted 1/6/2009 9:39 AM (GMT -7)   
Ditto baths and epsom salts. It's relaxing and helps ease the pain.
Diagnosed with Crohn's Disease; Meds: Entocort & Asacol; female in late 20s.


Kaycie
Regular Member


Date Joined Jan 2006
Total Posts : 449
   Posted 1/6/2009 4:31 PM (GMT -7)   
Thanks guys! I think the bath will work out well... I need to get some epsom salt!

I find the Xanax helps me relax and not tense about it all, so that helps too..

Gail - I just got a Nintendo Wii Fit! :) I'm so excited and plan to start using it soon! Baby steps though!
Kaycie - Age: 26
Crohn's - Dx Nov 05
Failed Remicade, moving onto a Clinical Trial called ABT-874 - Tentative start date - 10/2/08 - 10/16/08  - Infusion, every 4 weeks.
IVF #1 (In-Vitro Fertilization) - Failed
IVF #2 - IVIg, Heparin, Baby Aspirin - TWIN GIRLS!!!
Reagan Dawn - 8/2/07 - Lived 1 hour 27 minutes due to Cloaca, NOT affiliated with my Crohn's
Addison Maria - 8/2/07 - 13 months old


HannieBell
New Member


Date Joined Jan 2009
Total Posts : 11
   Posted 1/6/2009 4:56 PM (GMT -7)   
Hi Kaycie,
Try the Edgar Cayce method--epsom salt baths and the diets. Check out the web page--has been invaluable to me:
http://www.edgarcayce.org/

gemini kiwi
Veteran Member


Date Joined Nov 2006
Total Posts : 1136
   Posted 1/6/2009 7:45 PM (GMT -7)   
Hi Kaycie,
Do you have a lot of Sugar in your Diet? If so trying to cut down may start to help with any kind of joint pain. Hope you start to feel better soon.
Tess

bektold
Regular Member


Date Joined Jul 2007
Total Posts : 456
   Posted 1/6/2009 10:39 PM (GMT -7)   

Former band member, currently overweight, whole body hurts... I think you are my secret twin! 

Massage helps me quite a bit.  Just be sure that the therapist is well trained and knowledgeable.  You don't want someone right out of school who only knows a basic "routine" and can't taylor the massage to your specific needs.  (I say this as a former massage therapist.  Some people know their stuff and others, not so much.)  To see real benefit you've got to go regularly.  Tonight was my first night back in a couple of months, and right now I hurt.  I'll be sore tomorrow, too.  Drink plenty of water in the 24 hours after the massage, and do some gentle stretching and whatever movement you can manage in the next day or two, and you'll hopefully start to loosen up and feel a little better.  I went every two weeks for about 6 months, and that's when I was feeling the best.  But it does take several visits to get to that point.  And you can't be shy with the therapist.  Let them know if something hurts.  You're probably going to be more sensitive than their other clients.  A little bit of achiness as they work is normal, major pain means they need to back off.

If you can't lay comfortably on your stomach, ask them if they know how to do pregnancy massage.  Pregnant women can't lay on their stomachs either.  The therapist should be able to position you comfortably on your side and work on your back from there.


Allison77
Regular Member


Date Joined Feb 2005
Total Posts : 421
   Posted 1/8/2009 3:57 PM (GMT -7)   
Ditto on the Arnica Montana!!!! So good!! 30c works wonders!!

-Allison
RX Crohn's 1999, over 30 surgeries, 3 strokes, still kickin!!
 
"The most unfortunate thing that happens to a person who fears failure is that he limits himself by becoming afraid to try anything new."

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