Prednisone disaster.

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Easier2Run
Regular Member


Date Joined Nov 2008
Total Posts : 62
   Posted 1/6/2009 3:53 PM (GMT -7)   
All of December was a flare up mess for me. My doctor did a high dose prednisone taper, which fixed the Crohns, but caused other hellish problems. I've been having horrible stomach pains after eat, my stomach is bloated and hard- to the point where people notice it, and I really can't do anything past dinner time but lay in bed. This has been going on for several weeks, but I figured it would just go away. I did finish the prednisone taper. I called my doctor today after having a bowel movement with a good amount of blood in it. After taking one look at me, I got, my god you look awfully pale, my BP was low, and walked in doubled over. They scheduled me for an emergency endoscope tommorow morning. They think it might be an ulcer in my stomach from the prednisone. They also took a ton of blood. I feel kind of defeated, and irritated that if its not one thing with my body its another. Has anybody ever had this problem from pred? I could really use some support. Thanks!
-Heather, 23 yrs. old
____________

- Crohns disease since 1995, officially diagnosed in 2003.

- Bowel resection in Dec. 07, Crohns reoccurred July 08.

- Medications - Entocort 9mg, Wellbutrin SR 150mg, Lexapro 20mg, Bentyl 10mg, Levsin, Trazadone 50mg, Prednisone taper


gachrons
Veteran Member


Date Joined Mar 2007
Total Posts : 4527
   Posted 1/6/2009 4:12 PM (GMT -7)   
Hi Heather no never had the blood from pred. and sure hope you feel better soon. Sure hope your endoscope goes well and that they are able to get you feeling better. I know how you feel sometimes it seems to take a long time to get better but at least now you will get some care and things should improve.Hang in there .Have you had a endoscope before? lol gail
Hallarious woman over 50 ,CD ,IBS 27 years--resection,fistula's,obstructions,hemmies,and still alive.lol gail


Kaycie
Regular Member


Date Joined Jan 2006
Total Posts : 449
   Posted 1/6/2009 4:23 PM (GMT -7)   
Never had those problems on Pred, but I've had my fair share (high blood pressure, cataracts, crippingly body pain from taper, etc.)

GL with your endoscopy. I hope it goes well. I'm flaring pretty miserably as well. I'm sorry you are in so much pain. I am usually anemic, so my Crohn's only magnifies that issue. It's so tough.

Hang in there! KUP on how you are doing.
Kaycie - Age: 26
Crohn's - Dx Nov 05
Failed Remicade, moving onto a Clinical Trial called ABT-874 - Tentative start date - 10/2/08 - 10/16/08  - Infusion, every 4 weeks.
IVF #1 (In-Vitro Fertilization) - Failed
IVF #2 - IVIg, Heparin, Baby Aspirin - TWIN GIRLS!!!
Reagan Dawn - 8/2/07 - Lived 1 hour 27 minutes due to Cloaca, NOT affiliated with my Crohn's
Addison Maria - 8/2/07 - 13 months old


Nanners
Elite Member


Date Joined Apr 2005
Total Posts : 14995
   Posted 1/6/2009 4:33 PM (GMT -7)   
I just got off a 4 week round of Pred. It worked wonderfully to stop my flare, but now I have a sinus infection from Hades. Worse I have ever experienced. The doc said my immune system was weakened from the Pred so I developed a antibiotic resistant infection. I am on a really strong anti-b now, so hopefully it starts working soon. Sorry you are having problems too. I kind of consider Pred as a necessary evil sometimes. But always hate how I am going to feel when I get off it. Its like whats next????

HUGS!
Gail*Nanners* Co-Moderator for Anxiety/Panic Forum
Been living with Crohn's Disease for 33 years. Currently on Asacol, Prilosec, Estrace, Prinivil, Diltiazem, Percoset prn for pain, Zofran, Phenergan, Probiotics, and Calcium and Xanax as needed. Resections in 2002 and 2005. Also diagnosed with Fibromyalgia and Osteoarthritis and Anxiety. Currently my Crohns is in remission.
*Every tomorrow has two handles.  We can take hold of it by the handle of anxiety, or by the handle of faith"*

catpower
Regular Member


Date Joined Nov 2008
Total Posts : 192
   Posted 1/6/2009 4:43 PM (GMT -7)   
I just wanted to say good luck tomorrow!
Diagnosed with Crohn's Disease; Meds: Entocort & Asacol; female in late 20s.


HannieBell
New Member


Date Joined Jan 2009
Total Posts : 11
   Posted 1/6/2009 4:49 PM (GMT -7)   
hey heather,
it sounds like you may have an obstruction and need a dilation with a colonoscopy. I had a resection in 1992 and have had scar tissue obstruct me a number of times. Definitely get a colonoscopy set up because you may have a blockage. I had the symptoms you are having. Just don't wait too long because you do not want a rupture.

HannieBell
New Member


Date Joined Jan 2009
Total Posts : 11
   Posted 1/6/2009 4:50 PM (GMT -7)   
You may want to have a CT or MRI along with the scope!

gachrons
Veteran Member


Date Joined Mar 2007
Total Posts : 4527
   Posted 1/7/2009 4:43 AM (GMT -7)   
Hi Heather hope you are doing alright and keep in touch when you can. lol gail
Hallarious woman over 50 ,CD ,IBS 27 years--resection,fistula's,obstructions,hemmies,and still alive.lol gail


Easier2Run
Regular Member


Date Joined Nov 2008
Total Posts : 62
   Posted 1/7/2009 5:05 PM (GMT -7)   
Thank you for all of your support! It really makes a difference. I'd never had an endoscope before, but medical procedures don't really get to me anymore.... with Crohns, unfortunaltly we all get used to being poked and proded. They didn't find anything. My stomach, esophagus, a duodenum were all normal. My doctor apparently did a rectal exam... thank god I don't remember that haha. But he did find blood. I've had 2 bloody stools today. He thinks I'm bleeding from the site where my resection was done a year ago, and thats where my crohns came back. Sooooooo.... altho I told him NO COLONOSCOPY. I lost. I'm going in for a colonoscopy on Monday at 730 am. I asked him what they do to stop the bleeding, and he really didn't give me an answer. Does anybody know? So now I sit a home, paranoid that my bleeding will get worse and i'll end up in the hospital. I wish there was something for this pain though, its terrible!
-Heather, 23 yrs. old
____________

- Crohns disease since 1995, officially diagnosed in 2003.

- Bowel resection in Dec. 07, Crohns reoccurred July 08.

- Medications - Entocort 9mg, Wellbutrin SR 150mg, Lexapro 20mg, Bentyl 10mg, Levsin, Trazadone 50mg, Prednisone taper


daisyrambler
Regular Member


Date Joined Jan 2009
Total Posts : 126
   Posted 1/7/2009 9:35 PM (GMT -7)   
I have not had that problem with taken predisone but ... I have had many many other problems with it. I want to suggest a heating pad for the pain. That used to be the only thing that would help me. Hope the colonoscopy goes well ... oh and in my exerience we almost always lose to the drs. lol I said no predisone ..... I have been takin 40 mg a day for a month with no sign of tapering. good luck and god bless
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