pred resistant??????

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westat
Regular Member


Date Joined Jun 2008
Total Posts : 167
   Posted 1/6/2009 5:39 PM (GMT -7)   
Can one be pred resistant? Before my surgery I was up to 120 mg IV solumedrol. Still when they did the surgery they still found active Crohn's. I am now tapered down to 30mg pred.

Some of the pain I have been having lately is due to another abcess, but at the same time I seem to be having some of that familiar Crohn's pain and I am concerned that my Crohn's never went into remission with my surgery. GI seems to be in a bit of denial about it and thinks all of my pain is due to the abcess. Surgeon thinks the oposite. I think it is both as they are very different types of pain. You would think though that still being on 30mg of pred and surgery that it wouldn't be Crohn's so I am wondering if my body isn't presnisone resistant and the pred just isn't doing anything. If that is possible.

Any thoughts on that? Has anyone ever experienced pred absolutely not working?
Dx with Crohn's in 1997 after 5 years of worsening symptoms.
Resection a few months after dx after 1 month on TPN and IV steroids.
Resection October 2008.
Also have severe asthma.

Tried: Pentasa, Cholestyramine

Presently taking: now on 35 mg prednisone, probiotics, calcium, B12.
For asthma I take Advair 500, singulair, arieus


Nanners
Elite Member


Date Joined Apr 2005
Total Posts : 14995
   Posted 1/6/2009 5:46 PM (GMT -7)   
Somtimes you have to go down slower, maybe talk to your doc about going back up a little. I am so sorry that you have an abcess and are flaring again. Please know that I will definetly keep you in my prayers.

Hugs,
Gail *Nanners*
Gail*Nanners* Co-Moderator for Anxiety/Panic Forum
Been living with Crohn's Disease for 33 years. Currently on Asacol, Prilosec, Estrace, Prinivil, Diltiazem, Percoset prn for pain, Zofran, Phenergan, Probiotics, and Calcium and Xanax as needed. Resections in 2002 and 2005. Also diagnosed with Fibromyalgia and Osteoarthritis and Anxiety. Currently my Crohns is in remission.
*Every tomorrow has two handles.  We can take hold of it by the handle of anxiety, or by the handle of faith"*

westat
Regular Member


Date Joined Jun 2008
Total Posts : 167
   Posted 1/6/2009 6:59 PM (GMT -7)   
I am only dropping 5 mg every 2 weeks until I get to 20mg. I don't think I can go any slower or if it would be of any benefit. I had a few symptoms when I was at 40 mg too but everyone thought that was all due to the first abcess.
The dr really wants me off the pred since I have been at 40mg or much higher since September and on the pred for 12 months total with no break. Drs think the pred could be adding to the abcess problem.
Thanks for your prayers!
Dx with Crohn's in 1997 after 5 years of worsening symptoms.
Resection a few months after dx after 1 month on TPN and IV steroids.
Resection October 2008.
Also have severe asthma.

Tried: Pentasa, Cholestyramine

Presently taking: now on 35 mg prednisone, probiotics, calcium, B12.
For asthma I take Advair 500, singulair, arieus


belleenstein
Veteran Member


Date Joined Feb 2007
Total Posts : 1010
   Posted 1/6/2009 7:04 PM (GMT -7)   
Have your physicians talked with you about the possibility of being maintained on an immuno-suppressant like imuran? prednisone only masks symptoms. It does not treat the underlying disease.
Belleenstein:

30+ years living with Crohn's.


pb4
Elite Member


Date Joined Feb 2004
Total Posts : 20576
   Posted 1/6/2009 9:18 PM (GMT -7)   
Pred no longer does a thing for me, it worked the first few times I took it and then nothing...pred can do that.

:)
My bum is broken....there's a big crack down the middle of it! LOL :)


westat
Regular Member


Date Joined Jun 2008
Total Posts : 167
   Posted 1/7/2009 4:06 AM (GMT -7)   
belleenstein, I was on Imuran and Humira before surgery. They took me off both when I had surgery. The dr doen't want me on Imuran while I have an abcess because it will make getting rid of them even harder than it has been. I do plan on going on it when I can finally be rid of these abcesses though.
Dx with Crohn's in 1997 after 5 years of worsening symptoms.
Resection a few months after dx after 1 month on TPN and IV steroids.
Resection October 2008.
Also have severe asthma.

Tried: Pentasa, Cholestyramine

Presently taking: now on 35 mg prednisone, probiotics, calcium, B12.
For asthma I take Advair 500, singulair, arieus


gachrons
Veteran Member


Date Joined Mar 2007
Total Posts : 4527
   Posted 1/7/2009 4:47 AM (GMT -7)   
Hi Where is your abscess located and what are they doing to help you with it? lol gail
Hallarious woman over 50 ,CD ,IBS 27 years--resection,fistula's,obstructions,hemmies,and still alive.lol gail


westat
Regular Member


Date Joined Jun 2008
Total Posts : 167
   Posted 1/7/2009 5:24 AM (GMT -7)   
It is attached to the peritoneum (sp??) wall and the intestine (large or small I can't remember ) right where the large intestine bends on the right side. I am just on antiB right now as they say this one is too small to drain. But by golly it hurts a heck of a lot more than my last one did which was in close to the same area. I think that is why the drs are so stumped. Though now I can actually feel the bump of the abcess myself when I touch my belly.

Supposedly I have the best surgeon in the area. Whenever a nurse or anyone asks who my surgeon is and I tell them they are "well he's the best you are in good hands, you will be fine" I know it doesn't feel like it when noone can tell me how to get rid of this pain. Though I do understand that they can be stumped. I read the CT report myself and according tothat everything else looks fine.
Dx with Crohn's in 1997 after 5 years of worsening symptoms.
Resection a few months after dx after 1 month on TPN and IV steroids.
Resection October 2008.
Also have severe asthma.

Tried: Pentasa, Cholestyramine

Presently taking: now on 35 mg prednisone, probiotics, calcium, B12.
For asthma I take Advair 500, singulair, arieus


belleenstein
Veteran Member


Date Joined Feb 2007
Total Posts : 1010
   Posted 1/7/2009 6:56 AM (GMT -7)   
Westat

You had surgery three months ago. You mentioned another abscess. When did you last have an abscess? Was it before or after surgery?
Belleenstein:

30+ years living with Crohn's.


westat
Regular Member


Date Joined Jun 2008
Total Posts : 167
   Posted 1/7/2009 7:27 AM (GMT -7)   
I had the other abcess 5 1/2 weeks ago. Had a drain for a week and all was good.
Dx with Crohn's in 1997 after 5 years of worsening symptoms.
Resection a few months after dx after 1 month on TPN and IV steroids.
Resection October 2008.
Also have severe asthma.

Tried: Pentasa, Cholestyramine

Presently taking: now on 35 mg prednisone, probiotics, calcium, B12.
For asthma I take Advair 500, singulair, arieus


belleenstein
Veteran Member


Date Joined Feb 2007
Total Posts : 1010
   Posted 1/7/2009 9:07 PM (GMT -7)   
Have your medical team explained why they think you are developing abscesses? Do they think you may have a pinhole leak from the time of surgery? I just wonder what you are being told about the genesis of the abscesses.
Belleenstein:

30+ years living with Crohn's.

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