Better results on a lower Pred dose?

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DancrAlwaz
Regular Member


Date Joined Dec 2008
Total Posts : 38
   Posted 1/7/2009 11:54 AM (GMT -7)   
Hi all,

I was on 40 mg of Pred for 22 days when I finally got in with my doctor. He was surprised that I was still in pain, so he gave me something for that, but shocked I was still having 15+ BM a day. He lowered my Pred to 20 mg a day, and told me I could also take Immodium. Now, I don't know if it's the Immodium, or the lower Pred dose, but my flare has been MUCH better. I went from 5+ times a night to 1 or 2 times a night, and down to about 4 or so BM during the day.

Has anyone experienced their flare getting better on a lower dose of Pred?
Rachael - 24 years old, diagnosed with CD in Dec. of 2004.

Currently on 20 mg of Prednisone, 2.4mg Lialda, and 100mg Azathioprine.

I thank God every day for an amazing support network of family, my boyfriend who has been there since the beginning, and my friends who never waver.


Jen77
Veteran Member


Date Joined Mar 2006
Total Posts : 2687
   Posted 1/7/2009 12:11 PM (GMT -7)   
Not sure that I've heard of that. Most people flare back up (if they are going to) once they start weaning down. A lot of people do well on 20 mg still though, it's once they get down real low that the problems can kick in.
'
I know immodium helps me though, so I wonder if that's it for you.
~Jennifer
 
Diagnosed with Crohn's Disease 2/06 after sever GI bleed. Has been suffering since 1998. History of rectal fistula and gallbladder removal. Taking Asacol, Questran, Toprol XL (for high blood pressure).


Nanners
Elite Member


Date Joined Apr 2005
Total Posts : 14995
   Posted 1/7/2009 12:29 PM (GMT -7)   
I never like to use more than 30 mg Pred at the max. I seem to get more horrible side effects if I get much higher. I guess some of us do better on lower doses and some of us need higher doses. Shows the individuality of the disease.
Gail*Nanners* Co-Moderator for Anxiety/Panic Forum
Been living with Crohn's Disease for 33 years. Currently on Asacol, Prilosec, Estrace, Prinivil, Diltiazem, Percoset prn for pain, Zofran, Phenergan, Probiotics, and Calcium and Xanax as needed. Resections in 2002 and 2005. Also diagnosed with Fibromyalgia and Osteoarthritis and Anxiety. Currently my Crohns is in remission.
*Every tomorrow has two handles.  We can take hold of it by the handle of anxiety, or by the handle of faith"*

Jen77
Veteran Member


Date Joined Mar 2006
Total Posts : 2687
   Posted 1/7/2009 2:15 PM (GMT -7)   
That's certainly true of the side effects, the higher the dose, and the longer your on it for that matter! But for me it worked better when I was on a higher dose as far as diarrhea and flare symptoms go. As long as I was on 40-25 mg I was actually feeling like my "pre-crohn's" self again. Eating and going wherever I wanted. It was wonderful. Once I got down to around 15 mg, that all ended. :( I was in "remission," but my remissions are never like I used to be. :(
~Jennifer
 
Diagnosed with Crohn's Disease 2/06 after sever GI bleed. Has been suffering since 1998. History of rectal fistula and gallbladder removal. Taking Asacol, Questran, Toprol XL (for high blood pressure).


SydneyJo
Veteran Member


Date Joined Mar 2006
Total Posts : 1354
   Posted 1/7/2009 4:18 PM (GMT -7)   
Usually when I lower the pred I get worse D, perhaps its the Imodium working for you.
Jo
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