Been having some problems down there

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mirandadawn
Regular Member


Date Joined Apr 2008
Total Posts : 90
   Posted 1/8/2009 10:32 AM (GMT -7)   
Ever sense they told me I have crohn's . Been having some problems and I don't know what say to the doctor about it. I told them before that been having gall stones come out then they said well if it becomes a problem do something about it. Now keep getting them all the time with some blood and one day I woke up around Christmas both of ribs hurt so bad felt like someone broke them and little ways down from them to hurt like hell. I don't know what going on because also been experiencing this stuff with my muscles and joints. Where all the sudden the muscle and joint get so tight and joint that I can't move when it happens and get worse pain then after it goes away sometimes still so sore afterwards and I don't know what be causing this. Also down there on my vagina . I have notices that all red and feel swollen and itch's like crazy and every now and then get these bumps they come and go and also sometimes hurt like hell and burn . I dont know what to do. Or how explain this to a doctor because they come and go so if they don't see them might not know what to do.Also been getting worse mirance headachs . Does crohn's cause them? I know I have so many questions am new this whole crohn thing so if anyone help me sure appeariate it

daisyrambler
Regular Member


Date Joined Jan 2009
Total Posts : 126
   Posted 1/8/2009 12:04 PM (GMT -7)   
I have muscle and joint problems too .... I get charlie horse all the time and sometimes my fingers swell up and hurt real bad ... they feel like they are broken. I also have the the problem you have down there red and swollen and itch's like crazy ... plus the bumps they hurt so bad sometimes I want to go crazy lol but yeah they come and go and the drs cant get you in when you have them so how can you show them what is going on ???? I have a dr apt on monday and I'm goin to talk to him about it. I dont get the mirance so much any more but i did when i was first dx with cd. I think cd can cause any thing from the mirances to the muscle and joint pain to rashes. I have been told that you can have sores from your mouth to your anus. I have alway had the sores in my nose but the sore around my anus area is a new thing to me ... maybe we can keep each other up to date on what drs say about that ....
> 27 year old female < 
 
> Diagonsed with Crohns disease in 2000 <
 
> Medication - pentasa, imuran, prednisone, potassium, vitamin C, multivitamin, and iron <


mirandadawn
Regular Member


Date Joined Apr 2008
Total Posts : 90
   Posted 1/8/2009 12:32 PM (GMT -7)   
Yeah sent me email at babeandangel88@yahoo.com to keep each other post daisyrambler

LoveBeingSAHM
Regular Member


Date Joined Nov 2004
Total Posts : 52
   Posted 1/8/2009 9:42 PM (GMT -7)   
I would love to know what your Dr's say - for years I have gotten sores down around my vagina and have never said anything - put to call them painful is an understatement!!! I had the open ulcers in mouth back in 1989 and have been told that it was because of Crohn's (wasn't diagnosed wtih Crohn's at the time but GI mentioned it right away when looking at my medical records) - that is what the sore looks like around my vagina - can't wait to hear what your Dr's say - I am going to ask my GYN next week when I go to see her.

Good luck!!
Michelle
Diagnosed with CD in 2000.  Currently taking 150mg Azasan adn Remicade every 7 weeks. 
In 2004 suffered from Hypersensitivity to Prednisone and can no longer take it.
Hand surgery due to Prednisone use in 2005 
Diagnosed with Endometriosis in 1984; one surgery in 1998 followed by Lupron treatment for 6 months (was put in drug induced menopause)
Diagnosed with Fibromialgia in 2004


LMills
Veteran Member


Date Joined Apr 2008
Total Posts : 1753
   Posted 1/8/2009 9:51 PM (GMT -7)   
I'd be interested to know as well. I don't get sores, but it does get dry and painful so that even showering bothers me. And of course it's extremely painful after intercourse...could dehydration have anything to do with some of it do you think? All I know is that I miss being able to be with my fiance, and I'm tired of it being so uncomfortable sometimes!
Keep us updated. I hope you find something to help ease that irritation...not fun.
20 years old, Diagnosed with moderate to severe Crohn's and Colitis in May of 2008.
Currently taking:
Prednisone 20 mg, pentasa 2 pills 4x a day, bentyl as needed, omeprazole in the morning, multivitamin, humira every other week, and good probiotics.
Surgery for ectopic pregnancy most likely the result of severe Crohn's inflammation in July of 2008.
Attempting a diet without refined sugars, high fat content, bleached or bromated flour, most dairy, red meat, and avoiding anything spicy like the plague. Also refuse to eat anything with trans fat or high fructose/corn syrup.
"He who has a why to live for can bear with almost any how."


mirandadawn
Regular Member


Date Joined Apr 2008
Total Posts : 90
   Posted 1/8/2009 9:53 PM (GMT -7)   
My doctor said that crohn's cause it be very painful when have intercourse even more when going through flares. He said make sure take it easy when doing that and to use KY see if it helps if having dryness.

daisyrambler
Regular Member


Date Joined Jan 2009
Total Posts : 126
   Posted 1/12/2009 2:28 PM (GMT -7)   
I had my dr appt today .... of course i dont have the sores any more so he couldnt look at them but he did say he thinks it is form cd. he gave me a rx for it if it comes back some kind of cream. he said nex time they come back call him and he'll try to get me in ......
> 27 year old female < 
 
> Diagonsed with Crohns disease in 2000 <
 
> Medication - pentasa, imuran, prednisone, potassium, vitamin C, multivitamin, and iron <

In John 14:18 Jesus tells us ~ "I will not leave you orphans; I will come to you". He is always there for us even when we think noone else is.

Romans 8:28 And we know that all thing work together for good to those who love God, to those who are the called according to His purpose.  

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