How can you lose weight with Crohn's?

New Topic Post Reply Printable Version
[ << Previous Thread | Next Thread >> ]

sassymom
New Member


Date Joined May 2005
Total Posts : 9
   Posted 1/8/2009 10:37 AM (GMT -7)   
 I went and saw a  nutritionist this summer and all she said was up your veggies and fruits. I tired I lost 3 lbs in a month an 5 weeks in the bathroom.  So what am I suposed to do. I have gained 20 lbs since I was Diagnosed  in 2005.
 
 
Taking 12 400mg asacol, 3 3mgs entocort, 75mgs maxzide plus mulitvitiams.
"A smile is the light in your window that others there is a caring, sharing person inside"


MAG102886
Veteran Member


Date Joined Jul 2008
Total Posts : 674
   Posted 1/8/2009 10:53 AM (GMT -7)   
Not really sure to be honest.  The only time I ever lose weight is when I'm flaring and not able to eat anything at all. I try to eat as healthy as possible, but my body cant tolerate a lot of fruits and veggies. I try to exercise but it seems when I do that, I stir up things in my tummy and it ends up not good and me running to the bathroom.  I was down to my lowest weight ever that I can remember in April due to a flare, which still left me 30lbs overweight, but to me and everyone else I looked good because I have a big bone structure...then started prednisone and gained 50lbs, so now Im at my highest weight ever. Haha...I honestly dont know...some people cant keep weight on with this disease and some people cant get rid of the weight.

Dianogsed with Crohns: At 16 years old. 22 years old now.
Surgeries:2 Bowel Resections, Gallbladder Removed.
Current Meds: Humira (bi-weekly)
 

sassymom
New Member


Date Joined May 2005
Total Posts : 9
   Posted 1/8/2009 11:04 AM (GMT -7)   
I am the type that gains the weight. I also joined a gym for a year that didnt work either.
 
 
12 400mgs asacol, 3 3mgs entocort, 75mg maxzide and mulitvitiams.
 
 
"A smile is the light in your window that others there is a caring, sharing person inside"


chelsea_doll
Regular Member


Date Joined May 2006
Total Posts : 229
   Posted 1/8/2009 11:10 AM (GMT -7)   
I can't lose weight even when I am in a flare... i have tried but nothing seems to work

Allison77
Regular Member


Date Joined Feb 2005
Total Posts : 421
   Posted 1/8/2009 11:34 AM (GMT -7)   
My first serious flare up sent me down to 92lbs, from 128lbs. Im in the middle of a really bad flare up right now and have been sub-sisting on Ensure and Booster Juice for 4 days. I've lost about 9lbs. Honestly and I tell EVERYONE who will listen, I would rather be overweight then underweight because when a flare hits, I lose a massive amount of weight, and if im too thin then it's dangerous. The downside to losing that much weight so quickly? I have stretch marks everywhere (though have never had a child) and I gain the weight back pretty quick.  Oh, and I have a closet that ranges from size 2-12. My wedding dress was ordered in a 12 and by the time it came down to the event, I was a 4. At least my shoes always fit!!!!

-Allison
RX Crohn's 1999, over 30 surgeries, 3 strokes, still kickin!!
 
"The most unfortunate thing that happens to a person who fears failure is that he limits himself by becoming afraid to try anything new."


pb4
Elite Member


Date Joined Feb 2004
Total Posts : 20576
   Posted 1/8/2009 12:14 PM (GMT -7)   
Portion control, avoiding refined sugar and bread especially, drink lots of water and exercise regularly is the best and safest way to lose weight...you also need patience, losing weight this way (the right way) takes a little longer that's why it's the healthy way.

:)


My bum is broken....there's a big crack down the middle of it! LOL :)

Post Edited (pb4) : 1/8/2009 12:20:33 PM (GMT-7)


kam#7
Regular Member


Date Joined Jun 2008
Total Posts : 125
   Posted 1/8/2009 12:43 PM (GMT -7)   
sassymom -

I totally relate. I have every size from size 8-24. When I first was being diagnosed, I lost a ton of weight and that was when i was a size 8 (I started as a 14). Once I hit remission, it all came back and then some. Now I am in a size 20. People cannot believe I have crohn's because I spend so much time in the bathroom, but still am overweight.

I think it is hard for me, cause I have food issues to begin with....I am an emotional eater. Because of the crohn's, I have told myself that I should eat whatever I can tolerate and try not to worry about the weight. Well, that has not worked, cause I am eating unhealthy and I am carrying a lot of extra weight and feel really badly about that.

I think I am afraid to eat healthy, because in the past, I have had bad luck with fruits and veggies. Plus, I am super lazy when it comes to planning my meals and cooking. I eat on the go and eat what is convenient. That is NOT the best way to live.

Now that we are in the new year, I am trying to walk more....I am still not eating well, but I am starting to get the urge to try.

I wish you the best of luck and i look forward to hearing what works for you -
35 year old female (newly married) - Diagnosed w/Crohn's 2002 - Surgery 2004

Currently taking: Pentasa, Entocort, Imuran, Zoloft, Seroquel & Ativan as needed


pb4
Elite Member


Date Joined Feb 2004
Total Posts : 20576
   Posted 1/8/2009 2:55 PM (GMT -7)   
Baby steps Kam#7, that's how I did it with my diet altering...I weened myself off the junk and believe me it works and it's worth it...I was a junk food junky because I could always eat what I wanted and as much as I wanted without gaining an ounce (this was before CD as well), of course that caught up with me because of age so I had to start being careful how I ate not just for the CD and IBS purposes but because I was always used to being thin and I DID NOT like the way extra weight felt on me it was sooooo annoying but I got some extra weight off through portion control, proper foods and regular exercise which not only benefit the CD and my IBS but over all health...I have a lot more energy now then I really ever did.

:)
My bum is broken....there's a big crack down the middle of it! LOL :)


ivy6
Elite Member


Date Joined Sep 2005
Total Posts : 10404
   Posted 1/8/2009 3:06 PM (GMT -7)   
Perhaps it would help to make a mental shift away from losing weight, and focus instead on wanting to live as healthy a lifestyle as you can. Exercise, good diet, stress management all help with weight control, but, more importantly, they help with our overall health.

My suggestion would be to simply try to look after yourself. The weight loss may follow... but if it doesn't, you'll still get lots of health benefits.

Ivy.
Co-Moderator Crohn's Forum.


chroniemomx2
Veteran Member


Date Joined Apr 2005
Total Posts : 2346
   Posted 1/8/2009 5:38 PM (GMT -7)   
I am using weight watchers right now. I like it because I can eat whatever I want...they don't put restrictions on what you can eat....if you tell me I can't have something....that just makes me want it 10 times more!

Chronicallyill
Regular Member


Date Joined Apr 2008
Total Posts : 195
   Posted 1/8/2009 5:49 PM (GMT -7)   
Im on the opposite end of the spectrum. When I get sick I lose the weight like there is no tomorrow. When I was pregnant I was in a horrible flare and only gained 11lbs. They were worried about the baby because I wasnt gaining enough wait. She was a healthy 7 lbs 13 oz baby so that was all good. She is still thriving and is off the charts. :) At the moment I weigh 145 lbs at 6 feet 1 inches which classifies me as underweight. They heaviest I have ever been was 170 3 years ago. I dont even remember what it was like to have some meat on my bones :(. I agree with Allison about being overweight rather than underweight. When you lose weight rapidly like we do and you are underweight it can be very dangerous. There are no reserves to fall back on when your thin which really sucks.
Age:22/6"1'/146lb - Diagnosed: 2001 @ age 15 now 22
First time mom as of March 8th 2008
Past drugs: Pentasa, Flagyl, Budesonide, Prednisone, tons of Antibiotics, Didrocal, 6mp
Past herbal remedies and vitamins:Probiotics, Omega 3&6, Prenatal vitamins, B12, Calcium, iron, vit C, vit D, vit E, Selenium, mineral drops
Current drugs: Valtrex, Methotrexate as of October 2008
Problems:Fissure and Tags on rectum, blood clots, Chronic UTI's, Osteopenia, Ulcers in my decending Colon
No surgeries....yet. Gone through 5 G.I.'s found a 6th G.I. crossing my fingers
Procedures: 4 colonoscopies, 1 upper endoscopy, 2 barium swallows, 1 biopsy of the fissure and tag (chron's affected)


daisyrambler
Regular Member


Date Joined Jan 2009
Total Posts : 126
   Posted 1/8/2009 11:30 PM (GMT -7)   
i'll say the same just eat as health as you can and try to say away from pops ... drink as much water as you can. If you do start to try to exerise start off real slow and dont do crunches or situps they will make things worse. try walking and cardio stuff.

good luck and God bless
> 27 year old female < 
 
> Diagonsed with Crohns disease in 2000 <
 
> Medication - pentasa, imuran, prednisone, potassium, vitamin C, multivitamin, and iron <


pb4
Elite Member


Date Joined Feb 2004
Total Posts : 20576
   Posted 1/9/2009 12:12 AM (GMT -7)   
I think as far as working the abs that's something each person will have to try first because even while flaring, doing crunches (sit ups are a waste of time in my opinion) don't bother me at all.

:)
My bum is broken....there's a big crack down the middle of it! LOL :)


daisyrambler
Regular Member


Date Joined Jan 2009
Total Posts : 126
   Posted 1/9/2009 12:36 AM (GMT -7)   
wow cd is the most crazy thing in the whole world lololol ..... it is allllllllllllllll ways different for every person. I didnt even think that, that would be different for each person. I thought that crunches would hurt anyone with cd.
you learn something every min.
> 27 year old female < 
 
> Diagonsed with Crohns disease in 2000 <
 
> Medication - pentasa, imuran, prednisone, potassium, vitamin C, multivitamin, and iron <


Wolfie40
Veteran Member


Date Joined Dec 2008
Total Posts : 947
   Posted 1/9/2009 4:38 AM (GMT -7)   
I'm just the opposite. I can't gain weight. I've been on Prednisone and ate like a horse and I still did not gain a pound. I do have a high metabolism and I'm running around at work all day long. I even walk my dogs about a mile or two everyday. So that might have something to do with it.

55555jlw
Regular Member


Date Joined Dec 2008
Total Posts : 103
   Posted 1/9/2009 7:12 AM (GMT -7)   

I agree with many of these posts.  The BEST WAY to feel good and lose some fat in the process is to eat foods low in starches, sodium, sugars, and fats.  For 4 weeks try keeping a food log adn at the same time keep a list of foods that are no no's and Green Light. 

Try not to eat :

breads, pastas, cakes, cookies and the like, ANY RESTAURANT FOOD (packed with sodium), no box dinners & frozen dinners (packed with sodium and preservatives), pop, and whatever else you think fits into these categories. nono

Green light foods- even for many Crohnies: tongue

Salad- add some raw spinach, fully cooked vegetables (do not add butter or salt), fruits (no citrus or skin), lean meats like chicken breast, lean beef, some fish.  Don't fry your food- don't you wonder where all that oil goes when you fry--- into your food and into your blood stream!  drink plenty of Water!!!!!

 

What I have learned is that people don't realize how much water weight they are carrying around from too much sodium in their diet.  Flush it out with water.  All that fat on our bodies is also in our organs- heart, digestive system, liver, and so forth. 

Try adding some mild exercise to your daily routine, listen to some soothing or uplifting music that really makes YOU feel Good!  Go for a walk and gradually increase your distance and time. 

MAKE A PLAN.  STICK TO IT AS MUCH AS YOU CAN.  FORGIVE YORUSELF FOR MESS UPS.  GET BACK ON TRACK AND START AGAIN.  GIVE YOURSELF A "FREE" MEAL OF YOUR FAVORITE SINFUL FOOD ONCE A WEEK IF YOU HAVE FOLLOWED YOUR RULES ALL WEEK.

WITHOUT A ROADMAP, WE WOULDN'T MAKE IT TO OUR DESTINATION.  THAT IS WHY A PLAN IS KEY. 

EAT RIGHT + EXERCISE = A HEALTHIER LEANER BODY

WORKIGN TOWARDS A GOAL AND DOING OUR BEST TO STICK TO IT MAKES US FEEL

STRONG- EMPOWERED

MORE SELF CONFIDENT

IN CONTROL

Boy, I feel inspired now- I think I will put on my headset and go get some exercise.

 

 In order to lose 1# of fat a person needs to burn at least 500 more calories every day for one week.   Keep a close eye on what you are putting in and make sure you are buring off more!

 


DX in 2000,  on Pentasa only :)
daughter age 15 newly dx with Crohn's
 
 


dangdonkey
Regular Member


Date Joined Jan 2009
Total Posts : 22
   Posted 1/9/2009 7:24 AM (GMT -7)   
Loose weight? Wow I can't keep the weight on.
6 feet tall and I weigh 140lbs. Have been having weight loss issues for years.
There was a point early in my Crohn's fiasco, I'm pretty sure it was the roids I was taking, when I ballooned to 220 lbs, but that was long ago. Every since the Fistulas appeared, some 14 years ago, I can't keep any weight on.

Interesting thread.
Thanks for sharing.

Brian

Joie1
Regular Member


Date Joined Oct 2008
Total Posts : 376
   Posted 1/11/2009 12:04 AM (GMT -7)   
Ummm... 4'7" tall and I weighed 122 at the doctors office the other day. 119 the day afterward and now I'm 124. Usually associated with Ensure. It calms the flare but wrecks my weight. I look "right" at about this weight. Thinner looks all Nicole Ritchie (hubby calls her "bobblehead" b/c of the head-body proportions from her previous eating disorder). I look skeletal when I lose weight. It sure is a catch-22. Calm the flare and lose weight. Or eat and hurt. I used to weigh a LOT...as in 175...then I lost it and never got back up to that. Was down to 87 during a hospital visit many years ago b/c I was vomiting up the one thing I ate a day: slice of white bread with honey. I was working at the time too so I didn't eat during the day and instead ate at night, threw up for hours afterward.

Honestly, I'm not sure you won't hurt from too much weight loss. Sometimes I wonder if the pain on my joints may be caused by the constantly fluctuating weight/thinness. As in, malabsorbtion of food, leading to a thinner body.

I swear...if we could sell our disease to anorexics/bulimics...we'd be millionaires...all of us. Sounds awful but consider that they do it to themselves what our bodies do to us for any reason at all.
27/f/CD. 4 CD related surgeries: 2 resections, 2 JP drains, 3 NG tubes, many absesses (including the one my most recent surgery scraped off my ovary) and fistulas.
Currently trying to figure out hip and knee joint pain.
Have lost in these surgeries: appendix, 8 in. intestine, R fallopian tube, gallbladder, 10 in. intestine
Crohns Dx'd: February 2008.
Pentasa (and much mental screaming)

Trying to hang in there until January so I'll have some insurance and can visit a rheumy, neuro, GI, primary, pain control, and possibly a shrink so I could stop crying and living in my own lil pity party. :-P


jmb11880
Regular Member


Date Joined Apr 2007
Total Posts : 22
   Posted 1/11/2009 9:39 PM (GMT -7)   
I can't keep weight on for nothing. As a child i was overweight until i was dx. As a soph in a high school i was well over 200 lbs. When i officialy dx as a senior i was 124 lbs. I never got over 135 lbs then right before my surgery last year i was 110 lbs(i'm 6' 2"). Now i'm up to 150 lbs and don't expect to get any higher(Dr. says i have a high metabolism), although i would like to get up to about 160-165. In any case i feel better than i have in years so i'm not complaining. My mom on the other has crohn's and is over weight and is always complaining that she can't lose weight. I always tell her be thankful your'e in remission. It usually works for a lil bit but she's the type of person who likes to complain about everything and anything :-) .
28 yr old male, father of 3yr old daughter and 17 old son.
 
Dx'd in 1998 w\ chohn's
resection of TI & stricturoplasty on Feb. 26, '08
MEDS: Remicade every 4 weeks, Pentasa 2000mgs/day,entocort 6mgs/day,Imuran 100mg/day, 1 multivitamin a day and fosamax once a week, nexium 40 mg/day, imuran 150mg/day

New Topic Post Reply Printable Version
Forum Information
Currently it is Sunday, December 04, 2016 5:14 AM (GMT -7)
There are a total of 2,732,449 posts in 301,021 threads.
View Active Threads


Who's Online
This forum has 151186 registered members. Please welcome our newest member, debbixij.
203 Guest(s), 1 Registered Member(s) are currently online.  Details
tamo


Follow HealingWell.com on Facebook  Follow HealingWell.com on Twitter  Follow HealingWell.com on Pinterest
Advertisement
Advertisement

©1996-2016 HealingWell.com LLC  All rights reserved.

Advertise | Privacy Policy & Disclaimer