IBUPROFEN a no no

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hendersonjames
Regular Member


Date Joined Sep 2005
Total Posts : 89
   Posted 1/8/2009 5:42 PM (GMT -7)   
I resently had a resection for Crohn's and in one of my followups with the surgeon was told to stay away from ibuprofen--that it might hasten a recurrance or something.
 
At my next visit with my gastro, (she didn't volunteer, to give her the benfit of the doubt I didn't wait till the end before asking), but she also confirmed a prohibition on taking ibuprofen.  This was the first I've heard.  Everyone else heard this and how long ago?

spookyh
Veteran Member


Date Joined Oct 2008
Total Posts : 1342
   Posted 1/8/2009 6:00 PM (GMT -7)   
It can cause bleeding, kind of like aspirin. Stick to acetaminophen for aches and pains.

Kaycie
Regular Member


Date Joined Jan 2006
Total Posts : 449
   Posted 1/8/2009 6:37 PM (GMT -7)   
Yup. It's been told me as well. I also cannot take antibiotics. I can take Cipro and Flagyl (those are bacterial antibiotics), but I cannot take something such as ammoixcillin. I flare up EVERY time.
Kaycie - Age: 26
Crohn's - Dx Nov 05
Failed Remicade, moving onto a Clinical Trial called ABT-874 - Tentative start date - 10/2/08 - 10/16/08  - Infusion, every 4 weeks.
IVF #1 (In-Vitro Fertilization) - Failed
IVF #2 - IVIg, Heparin, Baby Aspirin - TWIN GIRLS!!!
Reagan Dawn - 8/2/07 - Lived 1 hour 27 minutes due to Cloaca, NOT affiliated with my Crohn's
Addison Maria - 8/2/07 - 13 months old


gachrons
Veteran Member


Date Joined Mar 2007
Total Posts : 4527
   Posted 1/8/2009 6:39 PM (GMT -7)   
hi Yes it has been discussed alot here. lol gail
Hallarious woman over 50 ,CD ,IBS 27 years--resection,fistula's,obstructions,hemmies,and still alive.lol gail


patientspiders
Veteran Member


Date Joined Jul 2005
Total Posts : 733
   Posted 1/8/2009 6:44 PM (GMT -7)   
I don't think anyone officially "told" me for a while, but I definitely found out the hard way to avoid ibuprofen. It increased my bleeding when I was flaring, and just made my belly hurt in general... same for the naproxin stuff in Alieve... as well as baby aspirin. All have been no-no's for me for a long time, and I think that's pretty common with crohnies.

That being said, I know there's at least one other crohnie on the forum who takes ibuprofen everyday with no bad side effects. This topic came up when I was told I couldn't have NSAID's (non steroidal anti inflammatory drugs), and that I should try cutting out even the Tylenol. I'm probably a freakishly sensitive case though. Most crohnies seem to be able to take Tylenol without problems... and I used to be able to.

I'll see if I can find the link to the OTC painkiller, etc. discussion that we had a couple months ago.
27f, dx'd CD July '05 after 6 fistula/abscess surgeries
(miscarried at 13 weeks, now waiting to heal before trying again)
Stopped Humira August 22nd, 2008.
Went Gluten-Free, noticing some definite improvement.
Started LDN October 27th, and already LOVING IT.

"Our greatest fear is not that we are inadequate, but that we are powerful beyond measure."


inflamed
Veteran Member


Date Joined Nov 2005
Total Posts : 1340
   Posted 1/8/2009 6:49 PM (GMT -7)   
What I don't understand is why so many doctors have a problem communicating this to CD patients. It seems like many people on this site have been surprised by this information. I know primary care, OB/Gyn and other docs don't seem to know it either. I've started listing it as an allergy just to be safe.
Hoping to stay in remission after the birth of a healthy baby girl. On Pentasa during my pregnancy, went med-free 2 months to nurse (stupid), but back on Pentasa and still nursing.


patientspiders
Veteran Member


Date Joined Jul 2005
Total Posts : 733
   Posted 1/8/2009 6:50 PM (GMT -7)   
Here's that link...

http://www.healingwell.com/community/default.aspx?f=17&m=1310071
27f, dx'd CD July '05 after 6 fistula/abscess surgeries
(miscarried at 13 weeks, now waiting to heal before trying again)
Stopped Humira August 22nd, 2008.
Went Gluten-Free, noticing some definite improvement.
Started LDN October 27th, and already LOVING IT.

"Our greatest fear is not that we are inadequate, but that we are powerful beyond measure."


LoveBeingSAHM
Regular Member


Date Joined Nov 2004
Total Posts : 52
   Posted 1/8/2009 9:31 PM (GMT -7)   
I also found out the hard way, but make sure all your Dr's know that Ibuprofen is a no-no. I know that sounds silly but I have been having nasty headaches due to a jaw injury and I was seeing my family Dr - he prescribed me something that led to major problems - well one of the ingredients was Ibuprofen - when I call my Dr he said "Oh - well I guess I need to put that in your chart - Really - no Ibuprofen, huh??" He even called my GI to confirm.

Michelle
Diagnosed with CD in 2000.  Currently taking 150mg Azasan adn Remicade every 7 weeks. 
In 2004 suffered from Hypersensitivity to Prednisone and can no longer take it.
Hand surgery due to Prednisone use in 2005 
Diagnosed with Endometriosis in 1984; one surgery in 1998 followed by Lupron treatment for 6 months (was put in drug induced menopause)
Diagnosed with Fibromialgia in 2004


Jen77
Veteran Member


Date Joined Mar 2006
Total Posts : 2691
   Posted 1/8/2009 10:07 PM (GMT -7)   
Yup that's correct, and that goes for all NSAIDS. I had a very sever bleed after taking aspirin for headaches. I can only take Tylenol now, and all my doctors have banned me from NSAIDS as well.
~Jennifer
 
Diagnosed with Crohn's Disease 2/06 after sever GI bleed. Has been suffering since 1998. History of rectal fistula and gallbladder removal. Taking Asacol, Questran, Toprol XL (for high blood pressure).


Sniper
Veteran Member


Date Joined Feb 2004
Total Posts : 6518
   Posted 1/8/2009 10:35 PM (GMT -7)   
That was one of the first things my GI told me, but I was eating them for pain like they were candy. Still have found nothing that works as well on the old spondalitis joint pain.
If we would read the secret history of our enemies,we would find in each mans life sorrow and suffering enough to disarm all hostility.


Wolfie40
Veteran Member


Date Joined Dec 2008
Total Posts : 947
   Posted 1/9/2009 4:41 AM (GMT -7)   
My doctor told me that the only thing that I should take is tylenol, as the others could cause problems.

SeanM
Regular Member


Date Joined Dec 2007
Total Posts : 44
   Posted 1/12/2009 2:50 PM (GMT -7)   
I was on a higher dose of Ibuprofen when I was in college and it gave me a bleeding ulcer. My reg doctor prescribed it for me. I was hospitalized for two days.
32 yr old male
Diagnosed with Crohns in 1994 (lower bowel/ileum)
Medication history:  prednisone, azacol, sulfasalazine, cipro
Current Medications: entocourt (periodically-as needed), Remicaid, flagyl
Surgeries: 2002 (remove fistula), 2004 (6" of ileum removed)


Joie1
Regular Member


Date Joined Oct 2008
Total Posts : 376
   Posted 1/12/2009 11:16 PM (GMT -7)   
Okay...so here's something I'm curious about. I can't take aspirin and all the other pain relievers. I go to the ER and the doc there says I have a choice between bowels or liver. If I take the tylenol/acetaminophen then it can cause more damage to my already damaged liver or I can bleed using any other OTC pain relievers. So I take the tylenol and I had the WORST flare for two days of what I'm assuming was bile salt D. Since they took my gallbladder out, does that mean it was causing more harm to liver since it was producing more bile salt then normal? I wasn't eating anything different. Even had problems on two days of Ensure and Gatorade while using the Tylenol.

I'm not trying to hi-jack the thread but I was wondering if anyone had some insight. I forgot to mention it to my doctor when I did see him last week...although HE told me I was taking too much Tylenol. And again I wonder where to beat my head since what the HECK am I supposed to do? I hurt and ache and such all the time so what are my options? Tramadol was awful for me. Ahhhh well. I even tried the capsasin roll-on stuff.
27/f/CD. 4 CD related surgeries: 2 resections, 2 JP drains, 3 NG tubes, many absesses (including the one my most recent surgery scraped off my ovary) and fistulas.
Currently trying to figure out hip and knee joint pain.
Have lost in these surgeries: appendix, 8 in. intestine, R fallopian tube, gallbladder, 10 in. intestine
Crohns Dx'd: February 2008.
Pentasa (and much mental screaming)

Trying to hang in there until January so I'll have some insurance and can visit a rheumy, neuro, GI, primary, pain control, and possibly a shrink so I could stop crying and living in my own lil pity party. :-P

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