CAN ANYONE HELP ME?

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deedee2
New Member


Date Joined Jan 2009
Total Posts : 3
   Posted 1/9/2009 8:36 AM (GMT -7)   
Hi Everyone,
I am 32 years old. My problems started lasted year in Nov 2007.  When I went to the bathroom I would poop and blood would come out like I was having my period. My doctor said it was probably hemorriods  That lasted for about a week I also developed some that look liked little pimps three or four. I went to my gyn she said it looked like herpes or warts and tested me for that.  When the test came back it was not and I asked her what it was but she did not know.  I started having stomach pain almost all the time in and April I was hospitalized for pancreatitis. Because my blood levels were high.  On the cat scan and mri it look fine.  I had diarrhea and/or constipation. they finally found something wrong with my gallbladder after doing a heda scan.  I had it remove May 2008.  I thought I would be back to normal but I still have pain in my somach all the time.  I alway have pain when I go to the bath.  Oct 08 I started feel really lightheaded and my stomach start hurt bad after I ate lunch. I start throwing up and had sevre diarrhea. I left work and went to my doctor and she hospitalized me for rapid heart rate and low blood pressure. I have diarrhea so bad I went on myself.  I was so upset and mad at myself.  That was the second time that happen wih in two months. The other was when I was on my daughters playdate talking to her friends mom.  I did not understand want is going on with me.   My doctor said it was a stomach virus.  After that everything start going wrong.  I was tired all the time, dizzy, legs and arm were numb.  I felt like I was always drinking but I was not.  I went back to my doctor and she ran blood. Nov 08 I found out I have a B12 Definecy. Now I take b-12 shots.  I also stop eating fried foods.  I don't know if this is crohn. I am going for a colon scope test on Monday. My case does not seem as bad as everyone else. I do not alway have diarrhea. When it comes on it lasts for two to three days.  I always have somach pain.  I also found out that almost everyone on my Fathers side has Crohn's.     Crohn's or not?  What is the beginning of Crohn's or does it just come on strong? What do you think? 
 
Dee     


Age:31 - Diagnosed: 
drugs: Topmax, allergra, Prevacid and b12 shots
surgeries....gallbadder
Procedures:1 upper endoscopy, on monday 1 colonoscopies

Post Edited (deedee2) : 1/9/2009 9:53:10 AM (GMT-7)


gachrons
Veteran Member


Date Joined Mar 2007
Total Posts : 4527
   Posted 1/9/2009 10:45 AM (GMT -7)   
Hi Dee Welcome to Healing Well and glad you joined us. Good you are going for a scope.Low B-12 does seem to be a problem for us with crohn's .I know the frustration of having not made it to the bathroom in time and we here have all expercienced it. So you are not alone in not making it in time. Some of us have mild, moderate, or severe crohn's so we are not all the same. Let us know how you make out with your scope on Monday. lol gail
Hallarious woman over 50 ,CD ,IBS 27 years--resection,fistula's,obstructions,hemmies,and still alive.lol gail


Nanners
Elite Member


Date Joined Apr 2005
Total Posts : 14995
   Posted 1/9/2009 10:51 AM (GMT -7)   
I agree with gachrons, we are all so different and do range from mild to severe. I hope that when you have your scope on Monday, that you are finally able to get some answers. Do keep us posted. Does sound very Crohns like.

Good luck,
Gail *Nanners*
Gail*Nanners* Co-Moderator for Anxiety/Panic Forum
Been living with Crohn's Disease for 33 years. Currently on Asacol, Prilosec, Estrace, Prinivil, Diltiazem, Percoset prn for pain, Zofran, Phenergan, Probiotics, and Calcium and Xanax as needed. Resections in 2002 and 2005. Also diagnosed with Fibromyalgia and Osteoarthritis and Anxiety. Currently my Crohns is in remission.
*Every tomorrow has two handles.  We can take hold of it by the handle of anxiety, or by the handle of faith"*

Illini
Regular Member


Date Joined Dec 2007
Total Posts : 298
   Posted 1/9/2009 11:06 AM (GMT -7)   
Dee-

Sorry to hear that you have been having such a rough time for so long.

It is certainly possible you have Crohn's. Crohn's does not always "come on strong" with the usual symptoms. I was diagnosed with Crohn's and did not have diarrhea, constipation, or bleeding (and still don't). But I do have pain at times, occasionally fevers, and a lot of bowel noise pretty much all the time because of a narrow area of intestine. It's good that you are finally getting the colonoscopy done, that is usually the gold standard for Crohn's diagnosis. You have already had a CT and MRI but unless you had oral contrast when those procedures were done, they would not be able to diagnose Crohn's. I had CT scans and MRIs and other tests but was not officially diagnosed until a colonoscopy and CT-Enterocyclis.

A few other things to consider...

After gallbladder surgery, some people do develop consistent diarrhea. The drug Questran (cholestyramine) may help if that is your problem. Have you already tried this?

Second, there is a fairly rare condition called Sphincter of Oddi dysfunction. A percentage of people who have their gallbladders removed actually had/have this condition. It can cause pain and pancreatitis. If Crohn's is not the answer, you may want to look into this.

Welcome to healing well and let us know how everything goes.
July 2007 Drug-Induced Liver Injury
January 2008 Crohn's Ileitis
Currently trying... Enteral Nutrition, Flax Oil, VSL#3, Folic Acid, Vitamin E


deedee2
New Member


Date Joined Jan 2009
Total Posts : 3
   Posted 1/9/2009 11:46 AM (GMT -7)   
Thank you for all of your help. Everyone
The reason they I was hospital for pancreatic was because my enzymes were high or sightly higher than normal. They were ways fine after they toOK out my gallbadder. Every time I went back to my doctors and when they put me in the hospital they do a blood test to measure liver and pancreatic enzymes. Do you think even with normal blood levels it still could be oddi dysfunction.

I think I am just very nervous and I feel like I should have had answers months ago. If I do have Crohn's I will not have anyone to really talk to about it. Even now no one in my family understands what I am going through. Everyone on my Father side I do not know. I have not seen them seen them since I been a little kid. By chance I felt it was time for him to meet my two kids. Thats when I found out my great grandma had Crohn's, two of my Uncles, and seven or more of my cousins. That was Sunday this sunday.

Sorry just need to talk to anyone.


Age:31 - Diagnosed: 
drugs: Topmax, allergra, Prevacid and b12 shots
surgeries....gallbadder
Procedures:1 upper endoscopy, on monday 1 colonoscopies

Post Edited (deedee2) : 1/9/2009 12:59:08 PM (GMT-7)


gachrons
Veteran Member


Date Joined Mar 2007
Total Posts : 4527
   Posted 1/9/2009 1:55 PM (GMT -7)   
Hi Dee dee we are always here to help each other so don't be sorry we are glad to help .Wow that is alot of family members that have had or have crohn's and it is wise of you to get checked for it. A person needs to get good medical care. I find most of us have low B-12 too so I get a shot once a month for that . Perhaps you will get to know your Father's family better I do not know my maternal family very well either so I understand what you mean by not knowing them .lol gail
Hallarious woman over 50 ,CD ,IBS 27 years--resection,fistula's,obstructions,hemmies,and still alive.lol gail


Zanne
Veteran Member


Date Joined Apr 2005
Total Posts : 3763
   Posted 1/9/2009 2:19 PM (GMT -7)   
Just wishing you luck on your test and I hope that you get some answers. But please if for some reason they don't find out what is wrong, keep looking. You know that what is going on isn't normal. Several possibilities have already been suggested besides CD, although I would have to agree that with your family history, it really is the front runner. Too many people stop looking for the answers and just think they are blowing things out of proportion and suffer needlessly because doctors can't find the problems easily. Please keep us posted and know that you can come and ask any questions you need to.

Best wishes.
Suzanne

CD 19 years offically, 29 unofficially. 3 resections '93, '95 '97
Symptoms constantly but all tests show only minor ulcerations. Currently having multiple episodes of gastritis with no known cause.


Prednisone, 6MP,Prevacid, B12 shots, Bentyl, Xifaxan.....

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