Hmmmmmmmmm Pain releiving with crohns? Often?

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Chronicallyill
Regular Member


Date Joined Apr 2008
Total Posts : 195
   Posted 1/9/2009 11:05 AM (GMT -7)   
Just wondering how you guys deal with your pain? Do any of you take pain relievers frequently or do you just grit and bear it? I find I never take tyelnol or anything for that matter for colds or headaches and I dont take anything for the pain of my crohns.
 
Just wondering if anyone uses them to constantly relieve the pain?
Age:22/6"1'/146lb - Diagnosed: 2001 @ age 15 now 22
First time mom as of March 8th 2008
Past drugs: Pentasa, Flagyl, Budesonide, Prednisone, tons of Antibiotics, Didrocal, 6mp
Past herbal remedies and vitamins:Probiotics, Omega 3&6, Prenatal vitamins, B12, Calcium, iron, vit C, vit D, vit E, Selenium, mineral drops
Current drugs: Valtrex, Methotrexate as of October 2008
Problems:Fissure and Tags on rectum, blood clots, Chronic UTI's, Osteopenia, Ulcers in my decending Colon
No surgeries....yet. Gone through 5 G.I.'s found a 6th G.I. crossing my fingers
Procedures: 4 colonoscopies, 1 upper endoscopy, 2 barium swallows, 1 biopsy of the fissure and tag (chron's affected)


Illini
Regular Member


Date Joined Dec 2007
Total Posts : 298
   Posted 1/9/2009 11:13 AM (GMT -7)   
I try not to take a lot of pain relievers due to past liver issues. I try to sleep off headaches but some I can't survive without a dose of Tylenol.

Regarding the Crohn's pain, I generally just live with it. If I am home I'll lay down with a heating pad for a few minutes. I've found that helps me.
July 2007 Drug-Induced Liver Injury
January 2008 Crohn's Ileitis
Currently trying... Enteral Nutrition, Flax Oil, VSL#3, Folic Acid, Vitamin E


Chronicallyill
Regular Member


Date Joined Apr 2008
Total Posts : 195
   Posted 1/9/2009 11:17 AM (GMT -7)   
Yes the good old heating pad. I bought a really nice one that keeps me happy :). Hmmmmmmm I wonder why heat makes it feel better.
Age:22/6"1'/146lb - Diagnosed: 2001 @ age 15 now 22
First time mom as of March 8th 2008
Past drugs: Pentasa, Flagyl, Budesonide, Prednisone, tons of Antibiotics, Didrocal, 6mp
Past herbal remedies and vitamins:Probiotics, Omega 3&6, Prenatal vitamins, B12, Calcium, iron, vit C, vit D, vit E, Selenium, mineral drops
Current drugs: Valtrex, Methotrexate as of October 2008
Problems:Fissure and Tags on rectum, blood clots, Chronic UTI's, Osteopenia, Ulcers in my decending Colon
No surgeries....yet. Gone through 5 G.I.'s found a 6th G.I. crossing my fingers
Procedures: 4 colonoscopies, 1 upper endoscopy, 2 barium swallows, 1 biopsy of the fissure and tag (chron's affected)


isergodur
Veteran Member


Date Joined Jan 2009
Total Posts : 831
   Posted 1/9/2009 11:28 AM (GMT -7)   
i try to skip the pain meds but when i am at my worst i get morphine pills called Tramol, i am in Iceland so i dont know if you have this type in the US..
sometimes i have to go to the hospital to get morphine shots depends on the pain i am in.

But i dont like pain killers so i try to be strong and be kind to my liver :)
24 year old female

Diagonsed with Crohns disease in December 2008..

Medication - Asacol, Remicade, Entocort


LMills
Veteran Member


Date Joined Apr 2008
Total Posts : 1753
   Posted 1/9/2009 12:04 PM (GMT -7)   
I use a heating pad and tea to try and soothe things first, but if I really can't bear it then all I have at the moment is ultracet which I use SPARINGLY. I get headaches so bad once a month or two that my left eye waters and I cannot think about anything. Sleeping it off isn't possible either in those cases though I do try and sleep most everything else away. Hot showers help a lot too if the energy is there.
20 years old, Diagnosed with moderate to severe Crohn's and Colitis in May of 2008.
Currently taking:
Prednisone 20 mg, pentasa 2 pills 4x a day, bentyl as needed, omeprazole in the morning, multivitamin, humira every other week, and good probiotics.
Surgery for ectopic pregnancy most likely the result of severe Crohn's inflammation in July of 2008.
Attempting a diet without refined sugars, high fat content, bleached or bromated flour, most dairy, red meat, and avoiding anything spicy like the plague. Also refuse to eat anything with trans fat or high fructose/corn syrup.
"He who has a why to live for can bear with almost any how."


gachrons
Veteran Member


Date Joined Mar 2007
Total Posts : 4527
   Posted 1/9/2009 12:22 PM (GMT -7)   
Hi For body aches if it got bad I used tylenol,for crohn's in the abdomin pain I got tired of suffering and went to outpatients and finally got some help after I got a blockage. I did get a needle once that helped my CD for a daycould get to sleep . Are you able to sleep?lol gail
Hallarious woman over 50 ,CD ,IBS 27 years--resection,fistula's,obstructions,hemmies,and still alive.lol gail


bektold
Regular Member


Date Joined Jul 2007
Total Posts : 456
   Posted 1/9/2009 1:12 PM (GMT -7)   
I'm a wimp.  I live on Tylenol for my joint pain- not that it does much good.  I was prescribed tramadol about a year ago and all it did was make me nauseaous and dizzy.  It didn't help the pain at all.

Allison77
Regular Member


Date Joined Feb 2005
Total Posts : 421
   Posted 1/9/2009 3:22 PM (GMT -7)   
Im alergic to Tylenol and have found that when things get really bad I take some Aleve. We can't buy it here in Canada so whenever a friend goes to the States they bring me back a BIG bottle. I stocked piled a few from my honeymoon (to the states) in November! LOL. I've been taking Arnica Montana and that has greatly reduced my aches and pains. My heating pad is constantly going, in fact have one on my chair in the office at work!!
-Allison
RX Crohn's 1999, over 30 surgeries, 3 strokes, still kickin!!
 
"The most unfortunate thing that happens to a person who fears failure is that he limits himself by becoming afraid to try anything new."


ozonehole
Veteran Member


Date Joined Dec 2006
Total Posts : 559
   Posted 1/10/2009 1:19 PM (GMT -7)   
If I'm obstructed, I take Buscopan. It's not available in the USA for some strange reason, but there is an equivalent called Levsin. See these websites for info about Buscopan:

http://www.buscopan.com

http://www.netdoctor.co.uk/medicines/100000395.html

And this for info about Levsin:

http://www.rxlist.com/levsin-drug.htm

These are anti-spasmodic drugs. Not addictive, but overuse can have some side effects, notably they can contribute to glaucoma. So I don't take Buscopan often, just as needed.

These drugs are available orally, including S/L (sub-lingual) form which you dissolve under the tongue rather than swallowing. However, an injection is much more effective, and the only way you can take it if you're completely obstructed. When needed, I inject myself IM (intra-muscular) rather than IV. The pain relief is almost instant.

I'm living in Taiwan now, having recently returned after a 2-year hiatus in the USA. In Taiwan, I can buy injectable Buscopan over the counter for US$1 per vial. In the USA, Levsin requires a prescription and costs an outrageous US$150 per vial. But the pill (get S/L version) of Levsin is not expensive.

best regards,
Robert
Crohn's since 1988
3 resections


jmb11880
Regular Member


Date Joined Apr 2007
Total Posts : 22
   Posted 1/11/2009 9:48 PM (GMT -7)   
I try not to take any pain meds since i already have PSC, a form of liver disease so i don't want to speed up the process if i don't have to. I just grin and bear it. It helps that i have a very high tolerance for pain :-) .
28 yr old male, father of 3yr old daughter and 17 old son.
 
Dx'd in 1998 w\ chohn's
resection of TI & stricturoplasty on Feb. 26, '08
MEDS: Remicade every 4 weeks, Pentasa 2000mgs/day,entocort 6mgs/day,Imuran 100mg/day, 1 multivitamin a day and fosamax once a week, nexium 40 mg/day, imuran 150mg/day


Nanners
Elite Member


Date Joined Apr 2005
Total Posts : 14995
   Posted 1/12/2009 7:55 AM (GMT -7)   
I am one that uses pain meds on a daily basis. I couldn't function if I didn't. I take 1/2 tab Percoset 3 times a day as needed. I take the pain meds mostly for my joint pain more than the Crohns pain. I also use a heating pad religiously, it really helps the most for my tummy pain.
Gail*Nanners* Co-Moderator for Anxiety/Panic Forum
Been living with Crohn's Disease for 33 years. Currently on Asacol, Prilosec, Estrace, Prinivil, Diltiazem, Percoset prn for pain, Zofran, Phenergan, Probiotics, and Calcium and Xanax as needed. Resections in 2002 and 2005. Also diagnosed with Fibromyalgia and Osteoarthritis and Anxiety. Currently my Crohns is in remission.
*Every tomorrow has two handles.  We can take hold of it by the handle of anxiety, or by the handle of faith"*

SeanM
Regular Member


Date Joined Dec 2007
Total Posts : 44
   Posted 1/12/2009 8:06 AM (GMT -7)   
I try to avoid pain meds but sometimes I have to take 1 percoset (325 mg) when the pain becomes too much to bear.  Tylenol or Advil has no effect when I'm in the midst of a flare up.  The positives for taking percoset is that it relieves the pain and it binds me, the negative is that it makes me dizzy and slightly nauseous, plus it's tough on the liver.
32 yr old male
Diagnosed with Crohns in 1994 (lower bowel/ileum)
Medication history:  prednisone, azacol, sulfasalazine, cipro
Current Medications: entocourt (periodically-as needed), Remicaid, flagyl
Surgeries: 2002 (remove fistula), 2004 (6" of ileum removed)


Becoming undone
Veteran Member


Date Joined Jul 2007
Total Posts : 927
   Posted 1/12/2009 8:09 AM (GMT -7)   
I spend a lot of time on the Chronic Pain forum. I have a PM doc due to extra-intestinal manifestation of this DD which can be almost worse than the diarrhea. I am on the patch, so that my stomach does not become upset. It has helped given me some life back. It also slows the transit time for foods...a big needed plus for me.

However, I do not need them when my inflammation is under control. Lately though, that has not been possible. I feel better on high doses of prednisone, but I cannot take that forever.Not to mention it has other side effects, roid rage being just one(which my DH gets to live with, bless him)

I want to live, not to just exist. Life is too precious and too short for me to spend most of it in horrid pain, so I do what I must.

I pray that someday, we all will not need these medications, cause frankly, I tired of having more meds that a great-great gandma and only in my 30's

baaadgut:(
Regular Member


Date Joined Nov 2008
Total Posts : 22
   Posted 1/12/2009 2:14 PM (GMT -7)   
I try and avoid taking pain meds but when I really need I take good old demerol and that seems to knock me out so at least I can sleep. My heating pad is also always on during the day I snuggle up to it when needed but at night I have it tucked around me all night. I use it so much that I wear them out and am always on the hunt for a new one. I am looking for a King size one which is nice and soft, not that hard plastic stuff--anybody have good suggestions where to find one, I would appreciate it. Trust me I have tried many and ended up taking most back. Thanks!!
 


kryssi923
New Member


Date Joined Jan 2009
Total Posts : 6
   Posted 1/15/2009 12:17 PM (GMT -7)   
I don't take anything that I don't have to - this includes Tylenol, etc... I haven't taken any OTC )meds in years (except TUMS! my lifesaver wink  )... I use a heating sack that my sister made for me (pop it in the microwave for a few minutes and it lasts for almost 2 hours - can take it anywhere) and I take 1/2 or 1 pill of prednisone for abdominal cramps... it usually works for me for quickly. It's not the conventional way of taking steroids, but I can't commit to a course of them - the side effects shocked
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