probiotics and water retention

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skofbengsk
Regular Member


Date Joined Oct 2006
Total Posts : 229
   Posted 1/9/2009 9:53 PM (GMT -6)   
I was wondering if anyone has ever had trouble with water retention in their legs when taking probiotics. I tried taking probiotics a few years ago right before my official diagnosis. I was horribly sick for 8 months and gone thru a million tests trying to find out why. I began taking probiotics and the flora whatever to feed the probiotics as well as fish oil at the same time. Within a week my legs began swelling, it would go between my feet knees and lower legs. It hung around for about 2 months. The Dr. ran more tests heart liver kidney etc. and didn't come up with anything. I suspected maybe it could be caused by the fish oil or probiotics but I wasn't sure if it was because of that or just a nother symptom of my miserable disease. I quit taking them both at the same time and within a week or two the swelling went away and never came back. That was 2 years ago. I have not tried probiotics or fish oil since and never knew whether one was the cause or just a coincidence. This week I decided to take the activia two week challenge. Even though my problem is far from slow transit, I figured it was worth a shot. Any how with in 2 hours of eating the first cup I noticed swelling in my legs. It went away by the next morning but came back again after eating it on the second day. Today is day three and again I have swelling after eating it. This time it is much less severe than before, probably because it is a much lower dose.
 
Has anyone else had this or heard of this?  Also has anyone had success with activia or am I just wasting my time and money on something else. So far the only thing I have noticed besides the swelling is some gas and bloating.
Dx CD Oct '06  mom of 3 boys ages 11, 14,and my baby born Oct. 07. remarried July '05


pb4
Elite Member


Date Joined Feb 2004
Total Posts : 18000
   Posted 1/9/2009 11:23 PM (GMT -6)   
I've never had that and I've been taking probiotics for about 4 yrs, I've also never heard of that and don't even know how the 2 could possibly be related since probiotics are nothing more then friendly bacteria that aid with the gut flora, unless you're taking a type that has too much junky preservatives and sugars and such in it, otherwise I can't imagine how it could be related to water retention.

:)
My bum is broken....there's a big crack down the middle of it! LOL :)


Ides
Forum Moderator


Date Joined Nov 2003
Total Posts : 6816
   Posted 1/9/2009 11:39 PM (GMT -6)   
My mother [who has UC] decided to add protein powder to her diet. Someone had sold her on trying hemp based protein powder. she developed severe swelling in her lower extremeties within 2 days. Her legs were so swollen that the skin was leaking fluid. I think that something in the product was likely interfering with her blood pressure meds and her kidney function.

While most doctors likely would not take your observations to heart, I think we know our own bodies best.
Moderator Crohn's Disease Forum
CD, Ankylosing Spondylitis, lupus, small fiber peripheral neuropathy, avascular necrosis, peripheral artery disease, degenerative disc disease, and a host of other medical problems.
 


EMom
Veteran Member


Date Joined Aug 2007
Total Posts : 990
   Posted 1/10/2009 12:56 AM (GMT -6)   
One thought might be to try a different probiotic. There are many species and success can depend on finding the right one(s) for you. You might start with one that is simply lactobacillus acidophilus.

I'd be more inclined to consider the other ingredients in Activia. Check out the entire list. I can't find an ingredient list online, but saw that in Canada it has wheat on the label and the red colored yogurts have "carmine" added for color. This color is from boiled scale insects... I saw in another article from WebMD that the sugar content of Activia is high. When I was pregnant and dealing with swelling, my gyno told me to cut the sugar from my diet. These are just some thoughts... Maybe try a high-quality organic plain yogurt instead?
Mom to 16 year old son diagnosed in June, 2007.
Omega 3s, digestive enzymes, probiotics, vit. C, calcium w/D3, a good multivitamin and SCD legal yogurt
Started The Maker's Diet in Sept. '07. Incorporate Specific Carbohydrate Diet (SCD) recipes, too.


skofbengsk
Regular Member


Date Joined Oct 2006
Total Posts : 229
   Posted 1/10/2009 11:44 AM (GMT -6)   
Thanks for your quick responses. Gross, boiled scale insects. I have been hearing about probiotics for years and the ones I tried the first time were an inexpensive one. I've looked into them several times but I get too confused about what ones I should try, and the prices. They seem to range anywhere from $10 to over $50 a month. And I have read that many of them don't actually have anything live in them by the time you take them or digest them. I asked my GI about them a few years ago and he said not to waste my money that nothing was proven. But even the crohn's colitis foundation says they have shown promise in studies.

Any helpful information in finding a good one?
Dx CD Oct '06  mom of 3 boys ages 11, 14,and my baby born Oct. 07. remarried July '05


Nanners
Elite Member


Date Joined Apr 2005
Total Posts : 14994
   Posted 1/10/2009 12:33 PM (GMT -6)   
I use an inexpensive Lactobacillus. It costs me about $2 for 30, and I have not had any problems with them and they really have helped slow the D I was having down to 1-2 regular stools a day. Hope that helps. Oh by the way, mine are "pearls".
Gail*Nanners* Co-Moderator for Anxiety/Panic Forum
Been living with Crohn's Disease for 33 years. Currently on Asacol, Prilosec, Estrace, Prinivil, Diltiazem, Percoset prn for pain, Zofran, Phenergan, Probiotics, and Calcium and Xanax as needed. Resections in 2002 and 2005. Also diagnosed with Fibromyalgia and Osteoarthritis and Anxiety. Currently my Crohns is in remission.
*Every tomorrow has two handles.  We can take hold of it by the handle of anxiety, or by the handle of faith"*

pb4
Elite Member


Date Joined Feb 2004
Total Posts : 18000
   Posted 1/10/2009 1:27 PM (GMT -6)   
I use primadophilus reuteri made by natures way, very affordable (I pay 29.00 in Canada for 90 caps) and only one/day is needed, many require you take up to 4/day and that gets expensive too...google primadophilus reuteri made by natures way for more info. I've been using it for about 4 yrs now with some success.

:)
My bum is broken....there's a big crack down the middle of it! LOL :)


EMom
Veteran Member


Date Joined Aug 2007
Total Posts : 990
   Posted 1/10/2009 6:52 PM (GMT -6)   
We use Theralac. You can google it and read about it if you wish! Articles I've read say to choose a probiotic with multiple strains and at least 10-15 billion cfu (colony forming units) per capsule. You are right, though, there are soooooo many brands on the market now and a variety of beneficial strains. Makes you feel like you need an advanced degree in biology to make heads or tails of it all... smilewinkgrin
Mom to 16 year old son diagnosed in June, 2007.
Omega 3s, digestive enzymes, probiotics, vit. C, calcium w/D3, a good multivitamin and SCD legal yogurt
Started The Maker's Diet in Sept. '07. Incorporate Specific Carbohydrate Diet (SCD) recipes, too.


Margie11
Regular Member


Date Joined Aug 2008
Total Posts : 467
   Posted 1/11/2009 4:05 AM (GMT -6)   
Nanners,
Where do you find a Pearl probiotic for that price? I am in the natural products industry and pay more than that for my probiotics with pearl technology. In the industry, and in some more formal training we are often taught that most people can restore healthy guy flora from a single strain enteric product like the one you describe, except for a few long term flares and illnesses/treatments that require more intensive probiotic theropy. I fear the new products available at the grocery store because some companys have modified strains so they can patient them. I'm not sure that is not one of the things that contributed to this DD to begin with. I hope everyone is feeling well this weekend.
              Never go faster than your guardian angel can fly!                  
     Be Patient And Tough, Someday This Pain Will Be Useful To You 
 
 Crohn's for life, symptoms included terrible joint and soft tissue pain, just met first cousin who suffers from Reactive Arthritis-explains sooo much. Great control on SCD (when I'm good) and I get by with a lotta help from my friends!
                                                Margie11


skofbengsk
Regular Member


Date Joined Oct 2006
Total Posts : 229
   Posted 1/11/2009 10:57 AM (GMT -6)   
Nanners,
do you know the brand of the Lactobacillus that you are taking, and do you get it online or at the store?
Dx CD Oct '06  mom of 3 boys ages 11, 14,and my baby born Oct. 07. remarried July '05


Nanners
Elite Member


Date Joined Apr 2005
Total Posts : 14994
   Posted 1/11/2009 11:04 AM (GMT -6)   
Sorry guys I get them in Mexico at a little inexpensive pharmacy. They work great for me. I was going 4-5 times+ D a day and now I go once or twice a day more normal stools. I found them by a fluke. My husband takes a Omega 3,6,9 and a Aminoacid type supplement from there and has had good luck with those too. I can't take his Omega 3,6,9 because his is derived from flax seed oil and doesn't agree with me, I am looking for one made more from fish oils than the flax seed.
Gail*Nanners* Co-Moderator for Anxiety/Panic Forum
Been living with Crohn's Disease for 33 years. Currently on Asacol, Prilosec, Estrace, Prinivil, Diltiazem, Percoset prn for pain, Zofran, Phenergan, Probiotics, and Calcium and Xanax as needed. Resections in 2002 and 2005. Also diagnosed with Fibromyalgia and Osteoarthritis and Anxiety. Currently my Crohns is in remission.
*Every tomorrow has two handles.  We can take hold of it by the handle of anxiety, or by the handle of faith"*

skofbengsk
Regular Member


Date Joined Oct 2006
Total Posts : 229
   Posted 1/11/2009 11:10 AM (GMT -6)   
Bummer, I have been up for an hour. I would rather be in bed right now but I had to go to the bathroom, I have been in there 5 times already this morning. Mornings are the worst, needless to say I don't leave my house until after ten am.
Dx CD Oct '06  mom of 3 boys ages 11, 14,and my baby born Oct. 07. remarried July '05


Nthorn
New Member


Date Joined Feb 2014
Total Posts : 1
   Posted 2/3/2014 10:58 PM (GMT -6)   
First time poster. Started a good quality probiotic a month ago, and began gaining weight. I take a diuretic, but I seemed to be puffing up again. Some in the legs, but mostly in the abdomen. I had not changed anything else. And to answer the original question, I had been taking Omega 3 for years with no side effects. I noticed that I wasn't going to the bathroom very often either, So I finally decided to stop the probiotic, and now I'm back to "normal". I'd never heard of this before. I do remember that my face always used to feel puffy when I ate yogurt. Guess I'm allergic to bacteria, too!
Just glad to know I'm not crazy.

mtgman
Veteran Member


Date Joined Mar 2005
Total Posts : 1285
   Posted 2/4/2014 12:44 AM (GMT -6)   
I've been on pred forever and have a bad problem with edema. I also take probiotics and have not seen a worsening/improvement when I start/stop the probiotics.
40 year old male living in AZ. Diagnosed with Crohns at age of 15.
Currently on 15 mg prednisone, Asacol HD, Humira, imuran
Feeling up and down for a while now...

hld4good
Regular Member


Date Joined Jan 2010
Total Posts : 191
   Posted 2/6/2014 1:20 PM (GMT -6)   
Be sure to read the list of probiotic species on the package. One of the other posts is right. Buy only live, active flora without sugar, corn, dairy, gluten, preservatives, etc. I wouldn't use anything that didn't contain at least 10 species and a total of 40 billion per day and you won't find those in a pharmacy or supermarket. Probiotics haven't been know to cause side effects other than the beneficial effect, unless they are combined with flavors, fillers and other ingredients we can't pronounce. There are a host of companies that sell high quality probiotics, but you need to do the homework. How long have they been in business? Are they sourced in the U.S.? Is there a satisfaction guarantee? And there's the cost. Mine are very high quality and one capsule costs me .47 a day, including shipping.
Age 61,Crohn's since age 21
3 bowel resections, 1 fistula repair
Crohns was limited to the terminal ileum.
No medications since 2001 and clear of crohns since then.
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