Just Been Diagnosed With Crohns 3 Days Ago

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godschild
New Member


Date Joined Jan 2009
Total Posts : 2
   Posted 1/11/2009 6:33 PM (GMT -7)   
Hey everyone, I was just diagnosed with crohns, and I have a ton of questions. So if you could provide me with as much as info as possible that would be great!! some of the main things i want to know is, what type of diet should i be on? what type of bread can i eat? i have pain meds, but r there any good ways to reduce stomach pain? Can you send me something with a little motivation and inspiration in it, because i really need it right now!! :)

LMills
Veteran Member


Date Joined Apr 2008
Total Posts : 1753
   Posted 1/11/2009 6:41 PM (GMT -7)   
Hi godschild, first of all, welcome! I'm glad you found this site. It's a wonderful place for resources and support.
As for your diet, unfortunately, every Crohn's case is different so you will have to find the best one for you based on a lot of trial and error. Many of us are one the SCD i.e. Specific Carbohydrate Diet. It does not work for everyone, but many of us have found relief through it! I don't follow it strictly but make some variations of my own.
Some of us can have bread and others, like those on the SCD or Maker's Diet, do not eat bread AT ALL. There is a possibility that it's not good for you or beneficial except to fill you up when you're hungry.

A good way to start is to avoid junk food, cheap food, refined sugar, sodas, caffeine, strong alcohol(some people can drink wine in moderation), high lactose dairy if it seems to give you problems(aged cheeses and yogurt are generally safe), and also avoiding foods with additives, preservatives, and so on can help.

Many of us avoid most things that are not natural and/or organic. There are many delicious things you can make easily at home! You might browse through our recipe threads :) There are some good ones on here that are gentle on the stomach.

Drinking a lot, and I do mean a LOT, of water will be good for you.

Many people also take probiotics. They give you gas and bloating initially, but these symptoms will go away with time and your body will be all the better with the additional beneficial bacteria!

A note about cutting bad things out of your diet as well: You may feel even worse for a little while. This is normal! Part of it is that when your bad bacteria die off they produce endotoxins and other such wonderful things which may make you feel worse. This too will pass..

Anyway, I don't want to write too much more without questions from you, and I'm sure other members will be along to help soon :)
20 years old, Diagnosed with moderate to severe Crohn's and Colitis in May of 2008.
Currently taking:
Prednisone 20 mg, pentasa 2 pills 4x a day, bentyl as needed, omeprazole in the morning, multivitamin, humira every other week, and good probiotics.
Surgery for ectopic pregnancy most likely the result of severe Crohn's inflammation in July of 2008.
Attempting a diet without refined sugars, high fat content, bleached or bromated flour, most dairy, red meat, and avoiding anything spicy like the plague. Also refuse to eat anything with trans fat or high fructose/corn syrup.
"He who has a why to live for can bear with almost any how."


DancrAlwaz
Regular Member


Date Joined Dec 2008
Total Posts : 38
   Posted 1/11/2009 6:41 PM (GMT -7)   
Hi there. Sorry you have to be here, but it's a great source of information. You'll find that this disease is highly individualized, and what you can eat can vary day to day with how you feel. When I'm not flaring, I find I can eat whatever I want. Certain foods make me more gassy, but I can tolerate pretty much everything. Not the case for some people. When I am flaring, I try to stick to more bland foods, such as chicken, potatoes, bananas, etc.

A lot of people will direct you to the Specific Carb Diet (SCD) but I'm no help on that because I don't know the first thing about it.

As for stomach cramps, I find that a heating pad can help to ease them.

You WILL have periods of feeling good, so focus on getting towards that, and staying there :)
Rachael - 24 years old, diagnosed with CD in Dec. of 2004.

Currently on 20 mg of Prednisone, 2.4mg Lialda, and 100mg Azathioprine. Also multi-vitamins, and Anti-D when necessary. 1/2 tablet of 5MG-325 MG pain pill when needed

I thank God every day for an amazing support network of family, my boyfriend who has been there since the beginning, and my friends who never waver.


LMills
Veteran Member


Date Joined Apr 2008
Total Posts : 1753
   Posted 1/11/2009 6:43 PM (GMT -7)   
Ah, but as for the stomach pain, I just wanted to add quickly, some good things that help are:
peppermint tea
applying a heating pad to your abdomen
deep breathing!
antispasmodics like bentyl

And I have ultracet on hand for when things are unbearable and for the rough days in between the better ones. Just don't stay on pain pills for too long at any one time because they can make your stomach stop. Which I realize could be desirable but getting it back to work again is not fun...
Painkillers are useful to have for just-in-case moments though.

AND, just in case, if you have problems with diarrhea, many members recommended imodium for me so I start with half a tablet and increase if needed. It helps :)
20 years old, Diagnosed with moderate to severe Crohn's and Colitis in May of 2008.
Currently taking:
Prednisone 20 mg, pentasa 2 pills 4x a day, bentyl as needed, omeprazole in the morning, multivitamin, humira every other week, and good probiotics.
Surgery for ectopic pregnancy most likely the result of severe Crohn's inflammation in July of 2008.
Attempting a diet without refined sugars, high fat content, bleached or bromated flour, most dairy, red meat, and avoiding anything spicy like the plague. Also refuse to eat anything with trans fat or high fructose/corn syrup.
"He who has a why to live for can bear with almost any how."


FallColors
Veteran Member


Date Joined May 2007
Total Posts : 1220
   Posted 1/11/2009 6:44 PM (GMT -7)   
Hello godschild,

Welcome to the forum! Sorry you have to be here, but its great you found us! There are lots of folks here who can help you -- unfortunately, not me. I don't have your symptoms. I suggest you use the Search tool at the top middle of the page to look through old posts.

Take care!
Diagnosed early 2007 with rectal Crohn's.  Several peri-rectal abscesses and two fistulas with setons.  Allergic to Remicade and Humira.  Currently on 6MP.


gachrons
Veteran Member


Date Joined Mar 2007
Total Posts : 4527
   Posted 1/11/2009 6:44 PM (GMT -7)   
Hi godschild Welcome to Healing Well glad you joined us. I eat low residue easy to chew easy to digest foods. No popcorn, nuts ,seeds, raw veggies or fruit, peppers and no turnip for me. I do eat white bread and white rice ,chicken, turkey, well cooked vegetables and cooked fruits,jello, pancakes, waffles ,lasgana .I also chew foods good. I also take a multily vitamin with K since I have resection I make sure I have vitamin K. Lots of us have B-12 shortage so I get a shot once a month. I also take vitamin D and calcium.

As for motivation being diagonised at first is a bit scarry for all of us but life is easier with help and support, this is a good place with lots of caring people .How old are you if you don't mind me asking? We look out for each other and help out when we can. Don't feel alone and ask all the questions you would like. lol gail
Hallarious woman over 50 ,CD ,IBS 27 years--resection,fistula's,obstructions,hemmies,and still alive.lol gail


LMills
Veteran Member


Date Joined Apr 2008
Total Posts : 1753
   Posted 1/11/2009 6:45 PM (GMT -7)   
Ugh, okay sorry, and I just wanted to add the link to the SCD website in case you were curious:

http://www.breakingtheviciouscycle.info/index.htm

The book is also available and has a lot more information and recipes.
20 years old, Diagnosed with moderate to severe Crohn's and Colitis in May of 2008.
Currently taking:
Prednisone 20 mg, pentasa 2 pills 4x a day, bentyl as needed, omeprazole in the morning, multivitamin, humira every other week, and good probiotics.
Surgery for ectopic pregnancy most likely the result of severe Crohn's inflammation in July of 2008.
Attempting a diet without refined sugars, high fat content, bleached or bromated flour, most dairy, red meat, and avoiding anything spicy like the plague. Also refuse to eat anything with trans fat or high fructose/corn syrup.
"He who has a why to live for can bear with almost any how."


SydneyJo
Veteran Member


Date Joined Mar 2006
Total Posts : 1354
   Posted 1/11/2009 8:38 PM (GMT -7)   
Welcome Godschild, just wanted to say hi as you already have gotten some great advice :) Jo

Nanners
Elite Member


Date Joined Apr 2005
Total Posts : 14995
   Posted 1/12/2009 8:01 AM (GMT -7)   
Hi Godschild, I wanted to add my welcome too. Diet is very individual for us. You might want to keep a food diary of how foods affect you, and avoid the ones that give you probs. I eat a low residue diet myself. You can google it and get ideas of what you can and can't eat. Look forward to hearing more from you.
Gail*Nanners* Co-Moderator for Anxiety/Panic Forum
Been living with Crohn's Disease for 33 years. Currently on Asacol, Prilosec, Estrace, Prinivil, Diltiazem, Percoset prn for pain, Zofran, Phenergan, Probiotics, and Calcium and Xanax as needed. Resections in 2002 and 2005. Also diagnosed with Fibromyalgia and Osteoarthritis and Anxiety. Currently my Crohns is in remission.
*Every tomorrow has two handles.  We can take hold of it by the handle of anxiety, or by the handle of faith"*

Yoda
New Member


Date Joined Jan 2009
Total Posts : 8
   Posted 1/12/2009 10:33 AM (GMT -7)   
Hi
I have found that cutting out all meat and eating fish has helped me. No processed food just fresh produce has helped me. Also cut out dairy and use soya milk. Helped me know end. There is research that shows that Crohns can be linked to cattle.
good luck
 I ahve had Crohns for the last two years. I have fistulating Crohns in the lower bowel and Crohns of the duodenum
I take Nexium 40mg tablets 1 aday. Azathioprine tablets 150mg a day. Asacol 400mg 6 tablets a day. Motilum 10 mg PRN.
I have a sutton drain to aid my fistulars to heal.


FallColors
Veteran Member


Date Joined May 2007
Total Posts : 1220
   Posted 1/12/2009 10:45 AM (GMT -7)   
Hello Yoda,

Welcome to the forum! I you talking about the theory that MAP bacteria can be passed through cows milk??
Diagnosed early 2007 with rectal Crohn's.  Several peri-rectal abscesses and two fistulas with setons.  Allergic to Remicade and Humira.  Currently on 6MP.


godschild
New Member


Date Joined Jan 2009
Total Posts : 2
   Posted 1/12/2009 1:51 PM (GMT -7)   
Hey, i want to thank everyone for their support and for answering my questions, i really appreciate it. Im sure i will have a couple more questions to ask in the future, it feels good to know that i can come here and ask all of you wonderful ppl. GODBLESS & THANK YOU!!!
 
KEEP THE FAITH


Roni
Veteran Member


Date Joined May 2003
Total Posts : 2480
   Posted 1/12/2009 2:02 PM (GMT -7)   
Ditto lmills on not eating processed food, sugar, preservatives, etc. Try to stick to a natural diet. Use honey instead of sugar. You can try sourdough breads; they are much easier to digest than commercial breads.

Definitely add a probiotic and even digestive enzymes (as suggested above). You'll notice a nice difference if you follow just these simple guidelines.

Best wishes!

Roni
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