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CazUK
Regular Member


Date Joined Jan 2009
Total Posts : 51
   Posted 1/12/2009 8:30 AM (GMT -7)   
Hi, I'm new here, although not new to Crohn's unfortunately!
 
I'm 27 and was diagnosed in Sept 2005 when a really bad flare landed me in hospital.  I'm sure it had been going on for many years before that.  Anyway I had the standard prednisone, then pentasa, then budesonide treatment for about a year before I elected to have a resection in Nov 2006.
 
I was well for about a year, and then last Sept a colonoscopy showed the disease was coming back at the site of the surgery (as you'd expect) and my doctor started me on 125mg of azathioprine.
 
Well for the last month I have felt fairly unwell - cramps and D after eating, but bearable.  But in the last week it has really accelerated, I can't eat anything without getting these symptoms - and I'm sticking to low residue stuff.  I'm in loads of pain as well straight after eating, and in the last couple of days it's ached constantly, almost like period pain.
 
Thankfully I have a routine hospital appointment tomorrow so can talk to my doctor, but can anyone tell me what this sounds like?  Do you think it could be the start of an obstruction?  I'm really worried because I can't bear to have surgery again so soon but at the same time I can't go on like this.
 
Thanks for reading if you've got this far!
 
 

daisyrambler
Regular Member


Date Joined Jan 2009
Total Posts : 126
   Posted 1/12/2009 9:09 AM (GMT -7)   
sounds to me like you are just haven a flare .... if azathioprine is the only meds you are taken maybe you need something in addition like ... pentasa or remicade or humira but thats just my thoughts .... yep I would definitely talk to your dr.

good luck and God bless !!
> 27 year old female < 
 
> Diagonsed with Crohns disease in 2000 <
 
> Medication - pentasa, imuran, prednisone, potassium, vitamin C, multivitamin, and iron <

In John 14:18 Jesus tells us ~ "I will not leave you orphans; I will come to you". He is always there for us even when we think noone else is.

Romans 8:28 And we know that all thing work together for good to those who love God, to those who are the called according to His purpose.  


patientspiders
Veteran Member


Date Joined Jul 2005
Total Posts : 733
   Posted 1/12/2009 9:25 AM (GMT -7)   
I'm sorry that you have to be here, but I'm glad that you found us Caz.

It doesn't sound like an obstruction to me... but others that have more experience with obstructions will be along soon, I'm sure.

It sounds like a good old flare to me... especially that bit about it feeling almost like a period pain.

I would second Daisy, and ask the doc what other treatments he thinks might help. Also, I would do your research tonight, and figure out which treatments you are comfortable with so that you're prepared for the discussion tomorrow. I personally didn't have a whole lot of luck with anything until I tried Remicade, but that's one of those big biologics, and people are rightfully a little apprehensive to jump to such an aggressive treatment.

Also, quite a few of us on here lately have found some relief by going to "alternative" doctors. Mine is an Applied Kinesiologist, but there's about 100 different practices and schools of thought that you could try. Ask around... I bet someone you know could refer you to a practioner off the beaten path. My experience has been that the Kinesiologist assess my WHOLE body, not just my guts. Three visits with him have helped me more than three YEARS with my GI. If you can find one in your area that is recommended, I'd say it's worth a shot.

Low residue is good, like you said. You could always take it one step further and do a "clear liquid" diet for a couple of days... broth, jello, etc. And pay extra attention to any cold medicines or over the counter stuff that might be causing you grief.

Good luck at the docs! And again, I'm glad you found us. This place has been a life saver for me since my own diagnosis in 2005.
27f, dx'd CD July '05 after 6 fistula/abscess surgeries
(miscarried at 13 weeks, now waiting to heal before trying again)
Stopped Humira August 22nd, 2008.
Went Gluten-Free, noticing some definite improvement.
Started LDN October 27th, and already LOVING IT.

"Our greatest fear is not that we are inadequate, but that we are powerful beyond measure."


CazUK
Regular Member


Date Joined Jan 2009
Total Posts : 51
   Posted 1/12/2009 9:33 AM (GMT -7)   
Thanks so much for your replies, I appreciate it. This place is a mine of information! I don't know anyone else who has Crohn's so it's great to have people who understand.

The other thing I forgot to mention is that parts of my abdomen are very tender to the touch and feel quite solid. I remember before I had my surgery that it was similar - hence the panic!

I really hope you guys are right and it's nothing more than a flare I can ride out. Thanks again.
Diagnosed with Crohn's disease in Sept 05 aged 24
 
Resection in Nov 06
 
Currently taking 125mg azathioprine daily


daisyrambler
Regular Member


Date Joined Jan 2009
Total Posts : 126
   Posted 1/12/2009 9:49 AM (GMT -7)   
just some more rambling lol
when I was first dx i had just had surgery to remove a ovarian cysts and my abdomen was like that very tender to the touch and it felt like they left a towel or something in there ... or like the solid feeling you are having sometimes i wonder if our intenstions just get swollen and thats why we feel like that

but i hope we are right to and its just a flare ....

o and good idea about the research ... I find its always good to try to know a little about what you think (lol) the dr will say.

yep yep glad you found the site ... I am knew here too and I love it .... I've been on everyday from the day I found it. :)
> 27 year old female < 
 
> Diagonsed with Crohns disease in 2000 <
 
> Medication - pentasa, imuran, prednisone, potassium, vitamin C, multivitamin, and iron <

In John 14:18 Jesus tells us ~ "I will not leave you orphans; I will come to you". He is always there for us even when we think noone else is.

Romans 8:28 And we know that all thing work together for good to those who love God, to those who are the called according to His purpose.  


patientspiders
Veteran Member


Date Joined Jul 2005
Total Posts : 733
   Posted 1/12/2009 9:52 AM (GMT -7)   
Whenever I'm flaring I have "hard spots" too, as my doc calls them. Sometimes if it gets really bad, he puts me on an anti-spasmodic like Levbid or Levisin and a week or so of that loosens up the knots and helps with some "frequency" issues.
27f, dx'd CD July '05 after 6 fistula/abscess surgeries
(miscarried at 13 weeks, now waiting to heal before trying again)
Stopped Humira August 22nd, 2008.
Went Gluten-Free, noticing some definite improvement.
Started LDN October 27th, and already LOVING IT.

"Our greatest fear is not that we are inadequate, but that we are powerful beyond measure."


LMills
Veteran Member


Date Joined Apr 2008
Total Posts : 1753
   Posted 1/12/2009 3:24 PM (GMT -7)   
The others have already given really great advice..the only other thing I can think of is maybe going on a short prednisone burst to prevent the inflammation and continuing to be very careful with diet :) Staying away from sugar and fat really helps I've noticed. And starches..
20 years old, Diagnosed with moderate to severe Crohn's and Colitis in May of 2008.
Currently taking:
Prednisone 20 mg, pentasa 2 pills 4x a day, bentyl as needed, omeprazole in the morning, multivitamin, humira every other week, and good probiotics.
Surgery for ectopic pregnancy most likely the result of severe Crohn's inflammation in July of 2008.
Attempting a diet without refined sugars, high fat content, bleached or bromated flour, most dairy, red meat, and avoiding anything spicy like the plague. Also refuse to eat anything with trans fat or high fructose/corn syrup.
"He who has a why to live for can bear with almost any how."


gachrons
Veteran Member


Date Joined Mar 2007
Total Posts : 4527
   Posted 1/12/2009 6:29 PM (GMT -7)   
Hi Caz Welcome to Healing Well glad you joined us and hope you can get your crohn's feeling better soon. You were wandering about obstruction are you having any feelingd of obstruction? Hope your Dr. appointment goes good. lol gail
Hallarious woman over 50 ,CD ,IBS 27 years--resection,fistula's,obstructions,hemmies,and still alive.lol gail


CazUK
Regular Member


Date Joined Jan 2009
Total Posts : 51
   Posted 1/14/2009 6:07 AM (GMT -7)   
Thanks all. Well my doctor thinks it's just a bad flare and has put me back on budesonide. It didn't work for me before, so if I'm not better in a week he's putting me onto pred (bleurgh).

Have to have another colonscopy and ultrasound too just to check what's happening inside!

I'm very glad it doesn't seem to be an obstruction, just bad inflammation.
Diagnosed with Crohn's disease in Sept 05 aged 24
 
Resection in Nov 06
 
Currently taking 125mg azathioprine daily


Nanners
Elite Member


Date Joined Apr 2005
Total Posts : 14995
   Posted 1/14/2009 7:44 AM (GMT -7)   
I was going to say I thought you were just in bad flare too, but its obvious that you and the doc have already figured that out:)

But did want to welcome you to Healingwell. As you have already seen there are alot of wonderful and supportive folks here just trying to live with this dd (darn disease) too. Hope the Entocort does the trick and you are feeling better soon. Good luck!
Gail*Nanners* Co-Moderator for Anxiety/Panic Forum
Been living with Crohn's Disease for 33 years. Currently on Asacol, Prilosec, Estrace, Prinivil, Diltiazem, Percoset prn for pain, Zofran, Phenergan, Probiotics, and Calcium and Xanax as needed. Resections in 2002 and 2005. Also diagnosed with Fibromyalgia and Osteoarthritis and Anxiety. Currently my Crohns is in remission.
*Every tomorrow has two handles.  We can take hold of it by the handle of anxiety, or by the handle of faith"*

CazUK
Regular Member


Date Joined Jan 2009
Total Posts : 51
   Posted 1/15/2009 5:05 AM (GMT -7)   
Thanks Nanners :-)
Diagnosed with Crohn's disease in Sept 05 aged 24


Resection in Nov 06



Currently taking 125mg azathioprine, 9mg Entocort, calcium and Vit D daily

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