kind of sad just wanted to ramble some

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daisyrambler
Regular Member


Date Joined Jan 2009
Total Posts : 126
   Posted 1/12/2009 3:39 PM (GMT -7)   
i have one more month of 40 mg pred. kind of sad about that ... but o well it will make me better. But the part that really made me sad ... he told me that i have cd in my rectum, colon, and all through my small intestine that my disease is a 4 on a scale of 1 to 4. I dont feel that sick ... I can eat almost anything i want ... I guess a number is just a number and i shouldnt let it get me down ... but you know it does ... well i guess i am done whinning now sorry shakehead
> 27 year old female < 
 
> Diagonsed with Crohns disease in 2000 <
 
> My Crohns is Crohn's Colitis ~ I have cd in my rectum, colon and all through my small intestine I was told today that on a scale from 1 to 4 mine is a 4 i about cried ..... I dont feel that sick : ( <
 
> Medication - pentasa(4000mg), imuran(100mg), prednisone(40mg for one more month then i get to tapper), potassium, vitamin C, multivitamin, and iron plus i will start humira in about a month <

In John 14:18 Jesus tells us ~ "I will not leave you orphans; I will come to you". He is always there for us even when we think noone else is. 


ivy6
Elite Member


Date Joined Sep 2005
Total Posts : 10404
   Posted 1/12/2009 3:54 PM (GMT -7)   
(((daisy)))

Just take it one day at a time. Try not to dwell on the month ahead... just think of today and try to get through it as well as you can.

When I get the medical blues, I put on the angriest or cheeriest (depending on how blue I am!) music I can find, and bop away to that until I start to feel a bit better. Music can be very cathartic. I then declare the day "International Be Nice to Ivy Day" and do everything I can think of to make myself feel loved and cared for. I might give myself a manicure, or watch a girlie film, or go for a drive, or curl up under a tree with my favourite book, or blow bubbles, or spend time with friends, or... well, you get the idea.

Sometimes it works and sometimes it doesn't, but at least it takes my mind off medical things for a while.

Perhaps you need a Be Nice to Daisy Day?

*hug*

Ivy.
Co-Moderator Crohn's Forum.


daisyrambler
Regular Member


Date Joined Jan 2009
Total Posts : 126
   Posted 1/12/2009 4:05 PM (GMT -7)   
thanks i do need a be nice to daisy day .... real bad ... and thanks for the *hug* i need that too. I know i have said this before but i love this site thanks again
> 27 year old female < 
 
> Diagonsed with Crohns disease in 2000 <
 
> My Crohns is Crohn's Colitis ~ I have cd in my rectum, colon and all through my small intestine I was told today that on a scale from 1 to 4 mine is a 4 i about cried ..... I dont feel that sick : ( <
 
> Medication - pentasa(4000mg), imuran(100mg), prednisone(40mg for one more month then i get to tapper), potassium, vitamin C, multivitamin, and iron plus i will start humira in about a month <

In John 14:18 Jesus tells us ~ "I will not leave you orphans; I will come to you". He is always there for us even when we think noone else is. 


gachrons
Veteran Member


Date Joined Mar 2007
Total Posts : 4527
   Posted 1/12/2009 4:23 PM (GMT -7)   
Hi Daisy Hope the month passes quickly for you and you are better soon. Hang in there what is your next line of meds? I know we usually get off the pred and on to a maintenance med? The fact that you are feeling pretty good and that you can eat are good things ,so at least you can console yourself knowing that. One day at a time is how I got threw the pred. So what would you like to do on your Daisy Day. I like Ivy, get my favorite tunes on and that helps. lol gail
Hallarious woman over 50 ,CD ,IBS 27 years--resection,fistula's,obstructions,hemmies,and still alive.lol gail


LMills
Veteran Member


Date Joined Apr 2008
Total Posts : 1753
   Posted 1/12/2009 8:23 PM (GMT -7)   
Don't ever apologize for 'whining.' Rant and rave all you need please...you'll always have people who are here to listen without judgment or resentment.
That being said, I am really sorry you're going through this right now..I see you're starting humira soon though which hopefully will help a lot. I have noticed improvements on it, but the shots do sting and it will take a while. The way I see it though is that getting better is worth that wait of several months and definitely outweighs the brief ten second shot sting.
Have you tried modifying your diet? I know it's easy to eat most anything on the prednisone and pretty difficult to resist its munchies side effects, but I noticed improvement in that area as well when I stopped eating the bad foods my body craved and found things to stave off those extra hunger pangs.
In any case, I'm sorry if I wrote too much..especially if you weren't looking for what I said >_< I just sincerely hope that you start feeling well soon without the prednisone..I feel like what the doctor said was pretty disheartening, but I truly believe you can make it better!
20 years old, Diagnosed with moderate to severe Crohn's and Colitis in May of 2008.
Currently taking:
Prednisone 20 mg, pentasa 2 pills 4x a day, bentyl as needed, omeprazole in the morning, multivitamin, humira every other week, and good probiotics.
Surgery for ectopic pregnancy most likely the result of severe Crohn's inflammation in July of 2008.
Attempting a diet without refined sugars, high fat content, bleached or bromated flour, most dairy, red meat, and avoiding anything spicy like the plague. Also refuse to eat anything with trans fat or high fructose/corn syrup.
"He who has a why to live for can bear with almost any how."


daisyrambler
Regular Member


Date Joined Jan 2009
Total Posts : 126
   Posted 1/12/2009 9:56 PM (GMT -7)   
yes i am going to start humira the next time i go to the dr in a month. I have been on it before so i know about the sting ... lol and ill take that over the pred any day lol I really appreciate you guys ... everyone is soooo very nice and understanding .. and yes i did take a be nice to daisy day .... i got in my car and turned the music up reallllly loud and drove to my mom and dads house lol. and i did my best not to think or talk about cd at alllll lol I'll make it just fine .... lol just had a little low point lol but i am much better now : ) just one day at a time lol and yes i feel like what the dr said was pretty disheartening too but i know that im not that sick and all is well .....

thanks again
> 27 year old female < 
 
> Diagonsed with Crohns disease in 2000 <
 
> My Crohns is Crohn's Colitis ~ I have cd in my rectum, colon and all through my small intestine I was told today that on a scale from 1 to 4 mine is a 4 i about cried ..... I dont feel that sick : ( <
 
> Medication - pentasa(4000mg), imuran(100mg), prednisone(40mg for one more month then i get to tapper), potassium, vitamin C, multivitamin, and iron plus i will start humira in about a month <

In John 14:18 Jesus tells us ~ "I will not leave you orphans; I will come to you". He is always there for us even when we think noone else is. 


Joie1
Regular Member


Date Joined Oct 2008
Total Posts : 376
   Posted 1/12/2009 10:14 PM (GMT -7)   
That sucks Daisy. Still, you always got to look upwards and outwards. The moon sure is beautiful this week. It's the closest to Earth that its been in a year. It makes me feel a bit less centered on myself and my pain and my troubles when I feel like a strand of a greater tapestry. Seeing a huge moon like that makes me feel like a single piece and it makes me feel better. Also, I found a spritzer of lilac oil. I LOVE the smell of lilacs and spring.

I suppose what I'm getting at is this. All those small things add up to all these wonderful, awesome things that happen in my microcosm of my world. Hehe, I'm egocentric enough to think that the world revolves around me. At least, my small piece of the world revolves around me since its my view of the world. Anyways, it works for me. Looking outside and seeing the squirrels actually gathering nuts makes me laugh too (childhood memories of feeding the squirrels with my grandfather in the park). As I said...it's all looking FOR those itty bitty things I've loved my whole life.
27/f/CD. 4 CD related surgeries: 2 resections, 2 JP drains, 3 NG tubes, many absesses (including the one my most recent surgery scraped off my ovary) and fistulas.
Currently trying to figure out hip and knee joint pain.
Have lost in these surgeries: appendix, 8 in. intestine, R fallopian tube, gallbladder, 10 in. intestine
Crohns Dx'd: February 2008.
Pentasa (and much mental screaming)

Trying to hang in there until January so I'll have some insurance and can visit a rheumy, neuro, GI, primary, pain control, and possibly a shrink so I could stop crying and living in my own lil pity party. :-P

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