Do you ever get Remicade if you're not feeling well?

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Julie1014
Veteran Member


Date Joined Oct 2005
Total Posts : 1245
   Posted 1/13/2009 3:54 AM (GMT -7)   
I usually get Remicade every 4 weeks, but it has been 6 weeks since I received it because I got the flu.  I don't have a fever anymore, but I still don't feel well so I am going to cancel my appointment for today and reschedule, just to be on the safe side.  My question is, do you ever receive your Remicade if you have a fever, or if you're just feeling "crummy," or do you postpone it?  I hate to keep putting it off, because I really need it.......  Thank you for your time!  Blessings, Julie
Diagnosed with Crohn's March 2006, Fibromyalgia November 2008
Asacol 3 times a day, Remicade 10mg/kg every 4 weeks, Prednisone 10 mg, Miralax,  Prevacid 30mg, Vit B12, Vitamin D, Slow-FE (Iron), Hydrocortisone enemas
Imuran stopped 9/8/08 (possible Pancreatitis)
Paxil 40mg daily (for Panic disorder)
Xanax .5mg as needed (for anxiety attacks)
 
 
 
 
 


cbk
Regular Member


Date Joined Apr 2007
Total Posts : 134
   Posted 1/13/2009 7:12 AM (GMT -7)   

I've done it before when I had a bad cough, needless to say the nurses were not so pleased with me...but obviously I survived.

I would speak to the doctor before you cancel...you don't want to exacerbate your disease if you don't have to.


22 Female, currently on MTX. Previously on Imuran, Remicade, Pentasa, etc. Ileocolic resection in 2006.


JenLS
Regular Member


Date Joined Apr 2008
Total Posts : 60
   Posted 1/13/2009 8:39 AM (GMT -7)   

My nurse always asks if I have an active infection before she starts the drug. 

Talk to your doctor, get his opinion.


RedAdmin
Veteran Member


Date Joined Aug 2003
Total Posts : 1017
   Posted 1/13/2009 10:31 AM (GMT -7)   
I have talked to my doc when I had a cold and I have NEVER postponed an infusion.
Red (Lee Ann)
    'Be who you are and say what you feel...
     Because those that matter...don't mind...
     and those that mind...don't matter.'


MishBall2
Regular Member


Date Joined Apr 2007
Total Posts : 345
   Posted 1/13/2009 10:56 AM (GMT -7)   
Yes I have, I usually lie to the nurse.   I know a lot of you will say i'm being bad, but I'm just answering truthfully.
33 years old. Diagnosed in 2002ish. 
Taking Asacol, Lomotil TID, and on Remicade since 2004. 
Lower Bowel area only, except for the short stint (about 2 weeks) that I had mouth sores.  Also have external/anal fistula and anal/vaginal fistula. 
 


patientspiders
Veteran Member


Date Joined Jul 2005
Total Posts : 733
   Posted 1/13/2009 11:45 AM (GMT -7)   
I'm with Mish... I have lied to the nurse many times... bad though it may have been. I've never been "feverish", but I have had a cold or just general ick before when being infused. I found out the hard way that postponing the infusion was worse for my guts than living with the cold for an extra week or so. But again, that's just me.
27f, dx'd CD July '05 after 6 fistula/abscess surgeries
(miscarried at 13 weeks, now waiting to heal before trying again)
Stopped Humira August 22nd, 2008.
Went Gluten-Free, noticing some definite improvement.
Started LDN October 27th, and already LOVING IT.

"Our greatest fear is not that we are inadequate, but that we are powerful beyond measure."


indigosunrise
Regular Member


Date Joined Nov 2007
Total Posts : 497
   Posted 1/13/2009 3:46 PM (GMT -7)   

I have had 3 Remicade infusions and for two of them, when I went in, I had a low-grade fever.  The first time the nurse called my doctor and spoke to the pharmacist and they decided to move ahead with the infusion.  The second time I had a fever, my GI was out and the pharmacist said to go ahead anyhow so they did. 

I am with the others on here--I would rather have the Remicade while not feeling too great then pay the consequences of waiting for the infusion. 

 


Julie1014
Veteran Member


Date Joined Oct 2005
Total Posts : 1245
   Posted 1/13/2009 4:37 PM (GMT -7)   
Thanks to all of you for your feedback. I called my GI today and I am going to receive my infusion Friday. That's the soonest I can get in. He asked me to wait a couple of days.
Diagnosed with Crohn's March 2006, Fibromyalgia November 2008
Asacol 3 times a day, Remicade 10mg/kg every 4 weeks, Prednisone 10 mg, Miralax,  Prevacid 30mg, Vit B12, Vitamin D, Slow-FE (Iron), Hydrocortisone enemas
Imuran stopped 9/8/08 (possible Pancreatitis)
Paxil 40mg daily (for Panic disorder)
Xanax .5mg as needed (for anxiety attacks)
 
 
 
 
 

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