I so understand that you are concerned about all the meds. Have you heard that there is a possibility to calm down IBD by reducing all sugar use, all carbo (wheat and so), and even change the diet totally. there are several good books at amazon.com writing about how to do this. Jini Palteson with her Listen to Your Gut, Elaine Gottschall with her Breaking the Vicious Cycle, and a third diet known as the Makers diet which you can google. I think the inventor is Jordan Rubin. We also have the mild medicine which many parents give their kids in combination with one of this diets, this medicine is called Low Dose Naltrexone, short: LDN, and is compounded from Naltrexone, or Revia, you can find more about it on ldninfo.org.
Those parents actually stops giving their kids the meds and gives them LDN instead, with great results. But I think it's necessary to combine LDN with a good diet.
I use this medicine and have combined it by avoiding sugar and wheat and increasing vegetables, fish, poultry and meat. I have never been using as much medicine as your son. Now my Crohns are behaving, and I can eat whatever I want, without getting sick. I have used LDN for more than a year, and all my symptoms gradually got away within 3 months.
Post Edited (BeeSting) : 1/13/2009 1:58:14 PM (GMT-7)