Post Edited (Rider Fan) : 1/13/2009 1:33:27 PM (GMT-7)
I didn't mean to imply that our GI wouldn't use Imuran because there are 2 deaths recorded, and by the way, that was out of 7 known cases, so it's pretty high.
The concerns are well documented. If you read any of the drug pamphlets, you will see that the drug companies emphasis the warnings. Particularly with Imuran.
I have to commend our GI for not taking this lightly.
As far as white blood cell counts and response to infection, I really don't know a thing about that, and will ask her next time in.
Thanks for your imput.
We're in the same boat. If it's any consolation. This is the second time my daughter has taken Prednisone, and she didn't contract the Chicken Pox the first time, even considering she was in elementary school at the time with hundreds of kids, and likely exposed to it constantly.
One more thing though. My daughter was tested for immunity to Chickent Pox, as our GI said that some kids get it so young and with such few symptoms that they never even knew they had it. Unfortunately for us, she wasn't immune, so hasn't had it. In your case, get a blood test and find out.
I did read that of the 7, they were all taking immunosuppressants for differing conditions. So therefore, could have been on a varied dosage. Of the 2, I not even sure if they died from complications from their disease, and that it might just be coincidental. I doesn't change the fact that it's still a serious issue. There is no doubt that one could get quite ill.
I too, live in Canada, (Southern Ontario), and we are starting to hear about more and more about being vaccinated. It seems to be getting popular here, but just since the last couple of years.
I think I was mistaken in my previous post regarding differing conditions. If you check out the info. on this link, it indicates all 7 had IBD.
<<<73 Monte - isn't your daughter a teen? I would suspect since most teens have had chicken pox or have been vaccinated she would be a lot less likely to be exposed to it than she would be if she were in grade school. I know it is still serious but probably a fairly low risk.>>>
I remember thinking that it was extremely unlikely that she had Crohn's as well. You're probably right though, I would think the chances are slim.
First of all, it's great to see that you are having success with a more natural approach to treating the disease. I have done quite abit of checking into dietary changes to improve things. I'm sure you've heard this before, but, most of these diets seem to be very demanding to say the least. The other problem being, my daughter has always been an awesome kid, never caused a problem for anyone, always co-operative, helpful etc. the works. Until it comes to food. Even pre-crohn's she was a fussy eater. Just couldn't stomach the taste of certain things. I recently bought some liquid calcium for her, one tbsp. and she threw up, and that was the berry flavor.
Thank-You so much for offering your suggestions and prayers. Much appreciated. Good luck to your son as well.
Post Edited (Rider Fan) : 1/14/2009 8:16:45 AM (GMT-7)
I'm not at all sure about it being an individual thing. The Dr. really hasn't said anything about my daughters risk. Since this is the first time they've encountered this, they're really not sure how to proceed.
I think they're going to wait for a few months, then have the vaccine. What they're going to do about a maintanance medication is unclear. They did call and said to start taking Pentasa again, whick I don't understand as it didn't seem to be working for her.
Getting the Chicken Pox is certainly a concern for us. I don't know what else they could use other than Prednisone, as the same problem exists with any immunosuppressant.
The only other thing that might be a possibility would be LDN, which I've only read about here. In fact here in Canada, I don't believe they are prescribing it for Crohn's yet, as it hasn't been appoved.