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LauryLu
Regular Member


Date Joined Dec 2008
Total Posts : 75
   Posted 1/13/2009 2:15 PM (GMT -7)   
I believe Entocort is the only drug I have not been on. By the sounds of it is a form of steroid? My question is does it give simular side effects to prednisone (moonface?) What are some people's common side effects from this and has it been successful with you?
Age: 26 Female
Diagnosed at 6 with Crohn's
Bal-resection at 15
Plenty trials of steriods, anti-biotics, Asacol, Pentasa, Immuran, Remicade.

Admitted for severe flare 12/2008
Avoided surgery once again - 1 ft diseased, narrowed lower intenstine found
treated with high does steriod/antibiotics - currently weaning off Prednisone

started Humira 12/14/08


Nanners
Elite Member


Date Joined Apr 2005
Total Posts : 14995
   Posted 1/13/2009 2:24 PM (GMT -7)   
I have always found that Entocort has way less systemic side effects for me. When I was on it I didn't get the crazy mood swings or moon face with them. They take a little longer to work than Pred, but they worked well for me when they kicked in. JMHO
Gail*Nanners* Co-Moderator for Anxiety/Panic Forum
Been living with Crohn's Disease for 33 years. Currently on Asacol, Prilosec, Estrace, Prinivil, Diltiazem, Percoset prn for pain, Zofran, Phenergan, Probiotics, and Calcium and Xanax as needed. Resections in 2002 and 2005. Also diagnosed with Fibromyalgia and Osteoarthritis and Anxiety. Currently my Crohns is in remission.
*Every tomorrow has two handles.  We can take hold of it by the handle of anxiety, or by the handle of faith"*

isergodur
Veteran Member


Date Joined Jan 2009
Total Posts : 831
   Posted 1/13/2009 2:32 PM (GMT -7)   
i dont get any side effects from entocort. No moonface..
24 year old female

Diagonsed with Crohns disease in December 2008..

Medication - Asacol, Remicade, Entocort


wanthealth
Regular Member


Date Joined Feb 2008
Total Posts : 78
   Posted 1/13/2009 5:40 PM (GMT -7)   
Laurylu,
Both Entocort and prednisone are steroids---the difference is that Entocort works mainly in the intestine- only about 10-20% is available outside of the intestine, while prednisone affects the whole body. That's my understanding of it. That could explain the difference in side effects. Entocort has helped me, with few side effects.
Moodindigo

SallyC
Regular Member


Date Joined Nov 2004
Total Posts : 158
   Posted 1/13/2009 6:31 PM (GMT -7)   
Entocort worked very well for me with my last flare. No moonface but did notice while at 9mg I was tired and had a slight headache. Was fine once I went down to 6mg. I love it compared to predinsone!
Sally
Sally
 
Diagnosed with UC in July of 2003 then diagnosed with Crohns in August of 2006.


straydog
Forum Moderator


Date Joined Feb 2003
Total Posts : 13451
   Posted 1/13/2009 10:45 PM (GMT -7)   
My dr has had me on Entocorte since June of 05. I cannot tolerate steroids of any kind and he was very reluctant to start me on it because of this problem. But he decided it was worth a shot. He explained to me that 95% of the Entocort is metabolized in the small intestine and that leaves a very small amt free so to speak. I have been on many different sterids in the past for various other illnesses, and no I have not had any of the steroid type problems associated with it, like the others. Susie


CazUK
Regular Member


Date Joined Jan 2009
Total Posts : 51
   Posted 1/14/2009 6:11 AM (GMT -7)   
Hi, I've just been put back on Entocort because I'm flaring. It hasn't worked for me in the past, but my doc wanted me to give it a try first before putting me back on pred, which has much worse side effects.

I can't remember noticing any side effects the first time I took it, I'll let you know if I have any this time! Of course because it is a drug that acts locally, it is less 'powerful' than pred if you know what I mean which is why it can be ineffective in severe flares.
Diagnosed with Crohn's disease in Sept 05 aged 24
 
Resection in Nov 06
 
Currently taking 125mg azathioprine daily


NostraHistoria
Regular Member


Date Joined Nov 2008
Total Posts : 351
   Posted 1/14/2009 7:46 AM (GMT -7)   
I do not see any side effects from entocort, but it seems to be less effective than prednisone. When I first started taking it, the pain went away just like it did right away with prednisone. However, the problem was with blood. Right now, I am seeing less and I am hoping it will go away soon.
27m - Dx January 2005 and given 80mg Prednisone to taper off and 12 tablets of Asacol
Normal medication: 12 tablets of Asacol daily


nruth
Regular Member


Date Joined Mar 2006
Total Posts : 195
   Posted 1/14/2009 1:19 PM (GMT -7)   
The main side effect causes a severe drain on my bank account. cry

NostraHistoria
Regular Member


Date Joined Nov 2008
Total Posts : 351
   Posted 1/14/2009 1:59 PM (GMT -7)   
When I bought 8 weeks worth, it was over 1000. If you buy it through Canada, it is around 300 or so.
27m - Dx January 2005 and given 80mg Prednisone to taper off and 12 tablets of Asacol
Normal medication: 12 tablets of Asacol daily


SallyC
Regular Member


Date Joined Nov 2004
Total Posts : 158
   Posted 1/14/2009 8:11 PM (GMT -7)   
I had to pay 75$ for one month in the US. Needless to say, I had 3 days left of my taper and ran out and was not about to refill it! I guess it is quite a bit more costly than pred.
Sally
 
Diagnosed with UC in July of 2003 then diagnosed with Crohns in August of 2006.

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