Frustrated and a little off topic

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ddr030505
Regular Member


Date Joined Nov 2007
Total Posts : 68
   Posted 1/13/2009 3:40 PM (GMT -7)   
Ok so back ground.. I was on humira nov 07 to aug 08.. they had to take me off because i had elevated liver enzymes due to a Virus (Cytomegalo virus).. it apparently is a virus that a majority of transplant and chemo patients catch not me!.. but the humira, asacol and entocort decreased my immune system really fast.   well.. now 4 months later my blood pressure is really elevated and now its been a month.. they ran a renal U.S. and found i had cortical atrophy.. I have no clue what this means and don't go see my doc till next tuesday about it.. what in the world is this and what causes it.... I am 24! what is going on!
 
If you know what cortical atrophy means please help me to understand.. all i know is atrophy is a deteriation... which for me is scary...
24 year old female Diagnosed Sept '03 still fighting for remission
longest break 9mths; meds: Asacol 6-400mg tabs aday, Iron 40mg; B-12 vit.-stopped Humira due to a CMV virus which cause liver elevation
Live Laugh Love *There are moments in your life that makes you and sets the course of who you're going to be. Sometimes there little, subtle moments. Sometimes, they're big moments you never saw coming. No one ask for their life to change, but it does. It's what you do afterwards that counts. That's when you find out who you are.*


Ides
Forum Moderator


Date Joined Nov 2003
Total Posts : 7077
   Posted 1/13/2009 5:04 PM (GMT -7)   
Cortical refers to the outside of an organ. Atrophy means a reduction in size or wasting away of an organ or tissue. So since you had a renal ultrasound, I guess you are saying they found renal cortical atrophy or kidney surface damage. There are degrees of any damage so until you talk to your doctor, it's impossible to tell the severity of the problem.

I know you are scared. The best thing is to try not to obsess about this until your appointment. If you are the type that gets really worked up and it could effect your health, call the doctor's office and ask that the doctor call you and talk about this now.
Moderator Crohn's Disease Forum
CD, Ankylosing Spondylitis, lupus, small fiber peripheral neuropathy, avascular necrosis, peripheral artery disease, degenerative disc disease, and a host of other medical problems.
 


ddr030505
Regular Member


Date Joined Nov 2007
Total Posts : 68
   Posted 1/14/2009 3:26 PM (GMT -7)   
and it thinkens.. it turns out my kidneys are that of a chronic renal disease patient.. in 6 months i went from normal to this.. and its in both of them.. i dont get it.. what is this....
24 year old female Diagnosed Sept '03 still fighting for remission
longest break 9mths; meds: Asacol 6-400mg tabs aday, Iron 40mg; B-12 vit.-stopped Humira due to a CMV virus which cause liver elevation
Live Laugh Love *There are moments in your life that makes you and sets the course of who you're going to be. Sometimes there little, subtle moments. Sometimes, they're big moments you never saw coming. No one ask for their life to change, but it does. It's what you do afterwards that counts. That's when you find out who you are.*


SydneyJo
Veteran Member


Date Joined Mar 2006
Total Posts : 1354
   Posted 1/14/2009 4:07 PM (GMT -7)   
Sorry to hear you are having such a tough time. I have no advice, just wanted to send (((HUGS))) your way.
Jo
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