Hopefully no cause for concern. She just came home early from school. Incredibly tired and falling asleep in class. I'm wondering if the Flagyl is causing this, as the last time she was on Prednisone, she had unbounding energy.
I'll be honest, Sometimes it seems like she's never going to be able to get the life she had back. I don't want to sound negative really. We'll keep hoping for the best. I might feel better if there wasn't so many other problems this time round. I"m worried about the abscess healing of course. Then there's still no maintenance plan of action yet.
Thanks for your imput, particularly about the antibiotics. Hopefully that's what's getting her down. She only has 2 more weeks of Flagyl, so we'll see.
I guess what you're both saying is, to be patient, and she'll get there. It sounds so good. I really wish I could totally believe it. I'll certainly try to get more positive. I'm basically a skeptic, doubter, and a worrier. Those are good qualities aren't they?
Thanks for the advice. She is tapering, but is only down to 30mgs, so quite a ways to go. If i could inquire. I'm always amazed at everyones signature. Sometimes it can tell quite a story. I'm often shocked at just how bad it can be for some.
You indicate that you had 3 resections, every other year, and now no other surgery for 12 yrs. That sounds like a pretty good run, but the stretch from 93-97, must have been fairly demanding.
What you're saying is the one postive thing I'm clinging to. The hope that the treatments will improve to the point that this disease is easily managed, and without risk. I admit, in the last 2 yrs. that my daughter was seemingly okay, I only rarely checked in here.
I see you're using LDN now. Hope it's working for you. It's not available here in Canada yet for Crohn's.
I'm sure I will keep posting updates, and especially questions. I have a never ending supply of those.
As far as the hemoroid thinking, I really don't think it's that, as she hasn't complained about any discomfort in that area. Perhaps, the larger stool caused a tear. I'll keep an eye out for any more blood.
You touched on something that I think about all the time. I have a younger child as well, and worry all the time about him getting this. I really hope your 2 girls don't have this. Your Mom must have suffered immensely back then, considering the limited treatment options.